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Ed in Baja

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ed in Baja

  1. Ed in Baja
    Widmer brewery in Portland makes a VERY good IPA that is certified at less than 20/ million . I had no reaction to it. Industrial Quaker's oat production...? I have eaten regular old oats and had no problem, in restaurants, for example. But then I did. Seems a gamble for me.
  2. Ed in Baja
    I have been using more gluten free products lately with Xanthum gum. Initially I found it a little weird. A little bit of stomach rumbling, etc. and a kitchen spill was interesting and alarming...its was impossible to clean up, especially after hitting spilled water on the counter and floor. After using a rag, windex, cleanser, and scrubbing to no avail,...
  3. Ed in Baja
    Actually, there are many case studies showing that neuro problems can progress in the absence of gluten in the diet. I found them when I was puzzled as to why my symptoms progressed. Its most common in people who present with neuro problems, and may have very few classic celiac gut issues. That was my case.It's also clear that therapies such as an appropriate...
  4. Ed in Baja
    Hi Folks, Have not been on in a long time. My main symptoms prediagnosis were neurological...I Went all the way to cerebellar ataxia. I had great hopes that going gluten-free would make me magically better...but have found that while the acute ataxia andHD skin problems largely resolved, other symptoms are progressing. A forum member gently informed me...
  5. Ed in Baja
    Hi Y'all, When I was diagnosed, I felt better right away, but worried about lingering nuero muscular problems. I had progressed to cerebellar ataxia in the 15 years of lack of diagnosis. Scared me BAD! I have IDDM type 1 as well. My motor nerve problems had always been called diabetic amyotrophy, though they did not fit the profile, just a convenient garbage...
  6. Ed in Baja
    When I visted my chinese doctor once for nuero muscular problems after a similar episode( we all rebel sometimes consciously or not) he said"why you do that?". So, why you do that? might be useful to explore that for yourself. And yes, i feel bad when i do that, and can feel my muscles responding poorly, and I feel clumsy, and guilty. Hang in there,and learn...
  7. Ed in Baja
    Hope you are feeling better! My symptoms were mostly nuerological as well. In retrospect I did have some GI upset...thought it was the green chili suace! ( I live in baja, Mx.)But not classic celiac disease GI problems. Brain fog almost gone after six months. Just in the morning now. Nueromuscular problems better ...75% or so. It IS discouraging that they...
  8. Ed in Baja
    Good for you! I am not a Vegan...but eat mostly vegan. If you claim to be one and then qualify as in "I eat a few eggs" you will get slammed by the true believers. I adopt a vegan diet regularly, then eat some fish, or my neighbor will bring me some lobster..the author Micahel Pollan has distlled the minimum common denominator of a healthy diet as: "eat real...
  9. Ed in Baja
    You might consider at least temporarily eating a vegan diet...I lost a ton of weight and bp dropped too.
  10. Ed in Baja
    Thanks! Its an adventure. Your explanation makes sense to me. Ed
  11. Ed in Baja
    Three months post diagnosis, going well. But some weeks ago I went deep sea fishing, fought some really big fish, came home and was flat for a week, all the fatigue returning. Endo Doc says it might be adrenal problems as well, suggested "polyendocrine syndrome". Any body else have experience of this? I suppose it stands to reason, all of the hormones work...
  12. Ed in Baja
    I did a challenge test the other day by accident and got slammed with a return to symptoms...breading on fish that I somehow did not notice. Wow. I guess this really is a one way trip!!
  13. Ed in Baja
    I had a red beard , before it went white. Some red hair, a real mutt.I have several redheads in my family. Family is from Italy, where there is a LOT of celiac disease. No more pasta for me! I have noticed in my career, Dentistry, where I viewed many medical histories, that redheads seem to have a lot of allergies and auto immune diseases. It is a recessive...
  14. Ed in Baja
    I totally empathize. My symptoms were "undiagnosed" since they appeared 10 years ago and consequently I lost my career, and progressed to major neurological problems before being diagnosed. But the truth is I feel better and better each day. And have received a great deal of support from the people here in this forum. Anger and despair are certainly temptations...
  15. Ed in Baja
    Thank you so much for the kind and considerate responses, as well as being obviously well informed. Very good to know that there are others out there dealing with this stuff successfully. Regards, Ed
  16. Ed in Baja
    Just diagnosed with celiac disease, after 26 years with IDDM. Have had increasing nuero muscular problems for ten years, but always got "what do you expect, you have type 1". peripheral nueropathy, gastro paresis, diabetic myopathy, lots of things suggested, no Dx. one Dr even thought it was stiff man sysndrome. My very active life has gradually been curtailed...
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