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Rachel--24

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Everything posted by Rachel--24

  1. Rachel--24
    I dont think that DQ1 would ever become a "Celiac" gene...not unless they were to change the whoe description of what confirms Celiac Disease. Right now it is destruction of the villi....and DQ1 does not seem to have this affect on the villi. I only know of one person to have a positive biopsy with the DQ1 genes....so it would be very rare.
  2. Rachel--24
    No....they are not intolerant just by carrying a gene. Ok...so 43% of the American population carry Celiac genes.... 1% of the entire population actually develops Celiac. 81% of the population has some type of gene predisposing them to gluten sensitivity....but no.....this does not mean that 81% of the population is gluten intolerant.....just that...
  3. Rachel--24
    Wow Andrea...you amaze me. It does make it way easier to compare the results that way. Rinne....I am sooo on a mission to find that link with the explanation about the western blots.....I'm gonna find it tomorrow. My eyes are too tired right now. It was really good....very informative. It talked alot about the IND's too. I was just thinking...
  4. Rachel--24
    Just having a gene wouldnt make them intolerant.....the gene would have to be "triggered" by something. Nearly the entire population carries some combination of these genes....whether it be a celiac gene and an intolerance gene, 2 celiac genes or 2 intolerance genes....we all have them.....its just a matter of whether or not they are "active". They actually...
  5. Rachel--24
    AWESOME!! What a relief Sandy.....thats great news. Have fun on the camping trip! I LOVE camping.....its one of my favorite things.
  6. Rachel--24
    I wonder if the Celiacs that have primarily neuro. symptoms are carrying the DQ1 gene along with their Celiac gene....I'm betting they are. I'm thinking DQ2=GI symptoms and DQ1=neuro symptoms. When both genes are present its probably the DQ1 symptoms that are more pronounced. Thats just a guess though.
  7. Rachel--24
    Nancy, Thanks for your post! Most of the symptoms you've listed I had as well. Its funny that I forget alot of the things I went through because its been a long time since I've experienced those symtpoms. I had a swollen tongue too...It was hard to talk and I'd slur my words as if I was drunk. I had no noticeable GI symptoms my first 2 years of...
  8. Rachel--24
    Rinne....the results are pretty similar to mine. Lymetoo had said that the IND's are basically weak positives. It was all explained in the link she sent but I guess I deleted it. I still say pm her your results. She probably knows how to read them better than the docs do. My 66 band was positive and she said that that particular band being positive...
  9. Rachel--24
    Rinne....did your results look anthing like mine? Did you have IND's on the double starred bands?? The double starred bands are the ones that are *most* important. I had sent my results to LymeToo.....shes really familiar with the bands and how to read the results. She said that based on my results I have Lyme Disease.....in her opinion. This was...
  10. Rachel--24
    Rinne Here is the results of my IgM and IgG Western Blots. Its what I sent to you and Robbin when I first found them in the mail. This is actually the IgM results but the IgG were almost identical. IgM Western Blot 18 kDa. neg 22 kDa. neg **23-25 neg 28 kDa. neg 30 kDa. + ** 31 kDa neg **34 kDa. IND **39 kDa. IND **41 kDa. ++ 45 kDa. neg...
  11. Rachel--24
    Yeah....thats for sure! Noone can ever say that we arent one VERY determined bunch here. We dont give up....we've been here like almost 8 months now....and never once giving up! Its weird to go back and read my first post and then be here now.....having an answer....I'm still overwhelmed by it all. All of the recent developments have been very...
  12. Rachel--24
    I KNOW!!!! I'm thinking the same thing....heres Julie.... OK...so I shortened it a little.....BUT STILL....I seriously almost FELL out of my chair!! I'm with you Susan......its totally CRAZY...spooky even. Maybe we were all suppossed to meet here in Rachelville, figure this out....and GET WELL!! I always thought we could definately...
  13. Rachel--24
    Your son has a Celiac gene....so he *could* at any time in his life have that gene "triggered". My guess is that at this time he would more than likely test negative for Celiac in all traditional testing. The biopsy is not conclusive. The Enterolab results arent conclusive for Celiac either. So what do you do with him? Thats something you'll have to...
  14. Rachel--24
    I hadnt even given it a thought and now.....I think I'll be laughing about this for awhile. Hmmm....
  15. Rachel--24
    Awww Andrea We love you too......you are the BEST cheerleader!! Judy....me either. The good news is that when I become a BioSET lady.....I'll be able to go into full scientificness about the whole thing. Hmmmm.....I wonder if being a BioSET lady means I could treat myself!! That would be WAY cool......and WAY cheaper too...
  16. Rachel--24
    Yeah...I remember!! I remember thinking......"Ummm...I am SOOOO the least likely person ever to become a nutritionist!" Yeah....me with all my "Racheling" habits and daily pints of ice cream. ROFL Yeah.....Rinne be really cool, calm and collective when approaching the door.
  17. Rachel--24
    Judy, My BioSet treatments dont address the Lyme....that is for my Dr. to do. The Bioset is for getting some things that are "broken" back into working order. Also.....of course....the main thing is eliminating all these chemical and food sensitivities. Thats what the BioSet treatments are for. Ulimately, by getting my immune system to calm down...
  18. Rachel--24
    Not me...I was FINE...never had any viruses or infections or nothing. Even the Lyme got shut down by my immune system for 2 years....until I got OVERLY stressed out from my stupid relationship....and then the idiot dentist decided to expose me to mercury in every way possible.....then BAMN....I became allergic to the world. Honestly, I dont even...
  19. Rachel--24
    OMG...I totally almost fell out of my chair. Julie...Lyme sucks but I'm gonna make an assumption here and go ahead and say Congrats. I know you've been sick alot longer than I have.....so its gotta be somewhat of a relief for you. I'm not at all surprised by this but when I opened up the new page and saw "People, I have Lyme".....I got kinda...
  20. Rachel--24
    Well....that would depend on how reliable these stool tests really are. We wont know for certain until Dr. Fine's studies are available for peer review....until then we just have to take Phyllis's word for it. Thats why I would like to retest sometime in about 6 months.....under an assumed name.
  21. Rachel--24
    Andrea, Do we know of any DQ1 non-Celiac individuals (no celiac gene) that have had a COMPLETE resolution of symptoms while on a gluten-free diet?? When I was reading on the Braintalk board there were many people with DQ1 who had severe neurological symptoms.....it didnt seem like the majority of these people were OK with just going gluten-free. They had...
  22. Rachel--24
    Carla, this is another big question. As we know...I react to *everything*...gluten is just one of MANY things affecting me. How do I know there is truelly anything "autoimmune" going on though. While I'm sure a great deal of people with non-celiac gluten sensitivity *can* develop an autoimmune response to it....I'm sure it cant be autoimmune in *every* case...
  23. Rachel--24
    I'm still not totally convinced that it will work though. Yeah....it truelly is fascinating stuff but it wont be very fascinating to me if it doesnt work. If it works I will most definately be interested in learning everything I can. Not everyone has to have bad Herx reactions. It depends on how well you are detoxing and also if the dose...
  24. Rachel--24
    Yes....it is their claim to fame.....but is it valid? We dont really know because Dr. Fine has not yet published anything for peer review. So.....we are just taking Enterolab's "word" for now. When people have positive tTG in the blood...they are usually diagnosed Celiac. They either have a positive biopsy (although this is not always the case) or they are...
  25. Rachel--24
    Obviously I share your concern about the specificity of the tTG antibody. As far as the IgA and IgG antigliadins.....I had always read that it was *only* the IgG antibodies which are not specific for Celiac Disease and can be seen in conditions other than celiac. I had never read that about IgA though. I'm not sure what everyone's opinions are about...
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