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Aprilelayne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aprilelayne

  1. Aprilelayne
    holy crap....I just got in with my new doctor for next Monday. Now just cross our fingers that she will listen to my woes about my personal ailments and see if we can run the nutrient levels and possibly some celiac panel tests.
  2. Aprilelayne
    Thank you for reading!! I know I've vented, whined, and complained throughout this thread. I just don't know where else to spill all this garbage to. Responding to the questions and bringing it together in one post: I know she has not had endoscopy with biopsy to try to figure things out and understand the reasons, although it may be time for this...
  3. Aprilelayne
    Thank you everyone, your responses have given me a glimmer of hope for an answer, ANY answer! Now just to wait for that first appointment with the allergist (April 24th) I have to admit that I've been less than impressed with the gastro. The office is run poorly and her personality is rather mellow and calming which of course seems dismissive and...
  4. Aprilelayne
    Just curious if anyone has experienced better effort from an allergist/immunologist than the gastro? We have been working with the gastro since Sept to identify what my 2yr olds problems are, or the source of her chronic 'functional diarrhea.' Her IgA was negative, so the gastro is standing firm on not celiac. I pushed for a RAST allergy testing...
  5. Aprilelayne
    Weekend notes: Most of the weekend was related to asthma complications and a low-grade fever. Lots of coughing. Her movements were foul. But in the potty, when she's rushing she will use the baby potty as its quicker to get on than to use the stool to get onto the toilet. So I had the pleasure of having to clean it out. Since Thursday, with the...
  6. Aprilelayne
    Its so ironic, I did WW for several years and gravitate towards food items with 'added fiber' and 'protein' type bars, but come to find out that the added protein is typically added soy!!? I guess my baking and cooking skills will be back in full use! Luckily I enjoy baking and experimenting. Hubs didn't comment on a carb-free dinner last night. ha...
  7. Aprilelayne
    There are many people with confirmed Celiac despite not having any outward symptoms. Its good to get the test confirmed since your original doctor never explained or clarified your first results. Good luck.
  8. Aprilelayne
    Thank you!! My mother and husband both were like 'oh thats great, soy is an easy fix, no more soy milk.' Neither of them realized that I switched her off of soy six months ago. To prove my point I told them both to blindly go and grab any box from the pantry. Husband's random item had a 'contains wheat, soy, and milk' Mother's random item had 'contains...
  9. Aprilelayne
    I personally have not taken celiac off the table yet. I suspect the immunologist will run the IgG and another RAST. Because soy and gluten both are in everything I've resorted to mostly gluten lite dinners, at least removing the soy. I can't get pushy with daycare until I get an action plan and official allergy statement. She doesn't eat much of their...
  10. Aprilelayne
    Just notes to keep tabs of things in one place in prep for the allergist/immunologist appt on 4/24. 3/13 - peaches at lunch. Rash around mouth that spread to bottom half of face within 30 minutes. 3/17 - vomit morning wakeup again. liquid green stools. 24hours == doubled up dose of zantac 3/18 - liquid lime green stools
  11. Aprilelayne
    I've purchased a 1000u supplement that was strongly recommended by a couple friends who have little ones with allergies and celiac. Ironically, we live in South Texas and the temps are in the upper 70s and 80s already, so she is getting outside for an hour at least everyday while at school. Then we do our outdoor walks every evening as well while the...
  12. Aprilelayne
    Got the report, nothing to report other than the peanuts and soy findings. It makes sense, as a whole her symptoms can be noted as an allergic reaction to something. I've been online and started reading labels in the pantry last night because much like gluten/wheat, soy is in sooo many things. Luckily it is one of the top 8 allergens so its labelled...
  13. Aprilelayne
    Waiting on the faxed full report, but just got off the phone with the gastro. RAST allergy testing gave us two surprises. peanuts soybeans So it was a good that we switched from soy to almond back in October. The peanut is a nominal class 1, so she states its likely a false positive and not to worry about it. I of course will pay more attention...
  14. Aprilelayne
    Can her pediatrician not give the diagnosis? We are under the care for my 24month old with the gastro, but my pediatrician is fighting for me as well that if the gastro won't make the diagnosis, she will do it for school and daycare purposes. You have more than enough evidence of gluten being a source of medical distress for your child, the gastro should...
  15. Aprilelayne
    Fridays' appt with gastro: After waiting again over an hour to see the doctor, she visited with us and we discussed whats been going on. She's assuming this past month's vomit and severe diarrhea was a bug of some sort, so she focused on the rest of her history in the four months since we left. She's confident its not celiac because of her weight...
  16. Aprilelayne
    Rough night for the little one. No vomit or diarrhea thankfully, but she was up all night whimpering and crying out spells that were followed up with significant gas passing. I can only presume that the whimpering is from the gas pains It would come in waves about every 20minutes. At one point my husband brought her to the living room and sat with...
  17. Aprilelayne
    I'm good, I've long had to eat differently than the rest of the family when I grew up, and I've been carb-free (minimal) and gluten light for over a year already. Ironically the little one already knows she gets different things than us. She will point to the milk and call it 'daddy's milk' (cow) versus 'my milk' (almond) and will shake her finger at...
  18. Aprilelayne
    Awesome advise!! She's a stubborn one, so whatever foods I do end up having to remove from her diet will be quite the battle, but will be done for her own health. If it turns out to be gluten related, my concern is more about my husband's understanding and the amount of safeguards that will need to be in place to allow the house to still have gluten...
  19. Aprilelayne
    Agree! Which is also why I am wanting to have more confidence in if its all related to gluten before removing it. Transitioning her away from gluten at 2yrs old is not going to be fun. My gut and what is going on right now makes me want to actually push for the endoscope. Not only for the celiac evaluations but also for the reflux damage if any.
  20. Aprilelayne
    and this morning its back!? -vomit and diarrhea I can understand the rationale that her reflux has returned, she's only vomiting after laying down or sleeping. She's burping more often lately which is our only daytime symptom I've caught. But the diarrhea? If it was a stomach bug, it would be gone. Her samples were just taken on Tuesday, a week...
  21. Aprilelayne
    Honestly next Friday is likely the soonest we would get in anyway. I checked her weight this morning at home and she maintained for the last 24hours, and she is not dehydrated anymore. Daycare said she had several trips to the potty (100% potty yesterday!!) and had one bowel movement into the potty!! They were awesome and snuck a peek for my food/daily...
  22. Aprilelayne
    Giardia and parasite tests all came back negative. back to the category of 'unknown' She has improved back to her version of normal. No vomit this morning. I had considered giving her prevacid last night if I noticed anything, so I'm paying close attention if I need to resume her reflux meds. Its likely a generic stomach bug, I myself ended...
  23. Aprilelayne
    What a weekend! This is all likely a stomach bug or something, but notating it since we are seeing the gastro so soon. Plus the issue of reflux returning possibly: On Thursday I got called to pull her out of daycare due to extreme diarrhea. Three sponge bathes and school and four outfits within five hours. No fever or distress, just watery bowels...
  24. Aprilelayne
    Had our visit with the pediatrician, who because of doctor politics wouldn't run the cbc and vitamin levels. The gastro would likely end up running them again to confirm or running different things, so the ped didn't want to have my daughter poked twice or more than necessary. Despite her steady growth chart and everything on the outside appearing well...
  25. Aprilelayne
    Agree, we are seeing her regular ped regarding possible food allergens, apart from the gastro issues. She is seeing the gastro to address the gastric and stool issues. Do they cross paths? Are they inter-related? quite possible....but frankly I think eliminating any food allergen as causes is likely the next round to bring us fullcircle into the gluten...
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