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Aprilelayne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aprilelayne

  1. Aprilelayne
    This is my daughter to a T. She's 18months and we are pending results right now. Her constant weight in the 70% has been the stumbling block to get past our pediatrician, but the gastro jumped on top of all the same symptoms you've listed and immediately mentioned Celiac testing for me and her. We've been lactose free for her entire life due to my personal...
  2. Aprilelayne
    I should have made my username "PoopMom" ....or change it after this weekend at least! The samples were not easy, but I managed. We started the probiotics on Friday night and fiber therapy Sunday morning. She has been great and eaten some better choices this weekend, more fruits and veggies yesterday than in an entire week! I was hopeful that we may...
  3. Aprilelayne
    I hope you get some answers soon enough, its hard to watch the little ones get so sick and not know the cause I honestly hadn't read anything about the 'rosy cheeks' until you mentioned it here!! I need to read on that as it may be yet another symptom to add to our growing list and odds of celiac (she's 18mons)
  4. Aprilelayne
    Thanks! I thought we missed some. you posted while I edited but I thought the same thing. This should at least give us something to work with for now I hope. I'm focused on the acidity of her diarrhea right now since that seems to be causing her so much pain.
  5. Aprilelayne
    Good news! Seems my daughter's gastro is pretty proactive! Today was an initial consult, agreed something is off. She took a lot of family history, loved my food logs and summary I prepared and ultimately let me ramble about my lifetime of gastro ailments. Before we got to talk about my daughter she recommended me getting tested for celiac based on what...
  6. Aprilelayne
    oh wonderful news!! Gastro nurse just called about a cancellation for tomorrow!!
  7. Aprilelayne
    So sorry for all the stress this is causing, its frightening to be alone with a child and dealing with fainting and bad spells. What you described is exactly what I deal with my Irritable Bowel Syndrome (I'm not dx w/ gluten intolerance or celiac as of yet). Are these fainting or light-headed sensations associated anytime you urinate or use the restroom...
  8. Aprilelayne
    Thanks Prickly, We are doing just that, I'm using luke warm water in the basic squirt bottle (from the hospital at her birth actually) and the baby washcloths to help clean her up. Then its naked time, which is the more difficult thing in that we have carpet throughout the house and well, we are cleaning up diarrhea puddles every so often. Just twice...
  9. Aprilelayne
    I'm at my wits end....finally got an official appointment with the peds gastro. October 15th, 40days away!! I have an 18month old with open sores and raw skin from diarrhea and we are supposed to stay as-is until seen??? I'm sorry, I can't purposely keep her in pain! I just don't know what it is or how to fix it at this point if its celiac/gluten or...
  10. Aprilelayne
    If you want to get officially tested you will need to continue eating gluten for now. By removing the gluten or even going gluten-light, you may end up with a falst negative on your test. Its recommended you stay on gluten until after testing to ensure a more accurate (but not a perfect guarantee) result.
  11. Aprilelayne
    I've been reading here about constipation and that the constant diarrhea may be indicative of constipation? I'm curious as to when she would have ever gotten constipated though, she's had a total of three solid bowel movements in her life. They were the week she graduated to whole milk that she drank for three days when I realized how distended her belly...
  12. Aprilelayne
    Very true, I'm a member at another board and while we do have some celiac talk in there, I know them too well from other aspects of life to start talking about poop and gas. At this point I have to wait until Tuesday to call, insurance snag on the referral to the pediatric gastro....but hopefully this time next week I will at least have my daughter scheduled...
  13. Aprilelayne
    Curious if the scope gave you any additional results?
  14. Aprilelayne
    So true! and the need for a community or forum to talk about such wonderful things, right? haha
  15. Aprilelayne
    I'm dealing with trying to find answers for my 18month old currently, so your post got my attention. Did I read correctly, that after testing scope is when you found the lactose and sucrose intolerance? or was she diagnosed based on the testing results? Curious how the initial thoughts and dx were constipation, with multiple movements and soft daily...
  16. Aprilelayne
    That's what is the confusing part with her....despite the hard belly and lack of fiber in diet, she actually has diarrhea 90% of the time. I'd consider blockage except that she has D so much she has welts from the acidity. Not to elaborate on my own IBS, but her D is very similar to mine in that its quite literally stomach acid or whatnot that causes welts...
  17. Aprilelayne
    Add another rough day for the kiddo to help push me along with this gastro referral. Total diet yesterday: -1/2 cup cheerios -2 chicken nuggets -3 dehydrated greenbean chips -5-7 saltine crackers -6 peanuts (literally six, I count because of choking hazards) -2 mini rice cakes and soymilk. All day long between 6am and 8pm. Despite that...
  18. Aprilelayne
    Thank you both for such quick responses. I resumed gluten eating this month in anticipation for testing, but my daughter has continued with her regular diet. I have already completed four weeks back on gluten and it has been rough! I've second guessed my return to gluten because of the pain and discomfort daily But I know its solely to help both of...
  19. Aprilelayne
    I have hesitated in joining and asking, but I'm starting to second guess myself. I am 80% confident that I am at least 'gluten sensitive' and 50-70% sure that my 18month old is as well, if not a true Celiac. Her ped finally gave us a referral for a GI to assess her in response to her many issues. Have to wait until Sept 1st to call for the appt. I'm still...
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