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Aprilelayne

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Everything posted by Aprilelayne

  1. Aprilelayne
    My DD also has a severe soy allergy, I noticed the same with apples with peels. We reverted to natural applesauce or peeling the apples (sadly removes a lot of the vitamins) . I don't have any suggestions though, we are newly navigating the soy allergen issue. she's still reacting at least twice a week to unknown triggers (soy or something else.)
  2. Aprilelayne
    Skin testing of suspected allergens was a bust yesterday. Nothing, not even soy showed up positive despite the RAST test and marked improvement since its elimination. The allergist was apologetic and explained that while she may not have an IgE reaction or response, she obviously is having a gastro response to soy and other stuff. She agreed that the...
  3. Aprilelayne
    ABSOLUTELY! If we are sedating her at all, I want to address as many things as possible in one swoop.
  4. Aprilelayne
    Small update.... We met with the gastro on Friday, who is now bringing the scope on the table sooner than later in response to the allergist's plan. We have allergy skin testing on Wednesday of this week to determine any other major allergen issues. I am to call the gastro's office with the findings or to prompt them to obtain the results from the...
  5. Aprilelayne
    And I'm fully aware that I'm now more on an allergy quest than a celiac one if necessary, but honestly I haven't found another forum that is similar enough since her issues are prominently gastro related. Just being clear that I am fully aware that celiac is not an allergy. I do know that I have a refluxy,ezcema laden kiddo who vomits regularly and...
  6. Aprilelayne
    Met with the allergist yesterday...and honestly I'm not optimistic to answers. That or I'm just frustrated. We discussed her history and reaction patterns, I gave her the detailed food logs for the last three incidents, all of which were soy-free days. Before we got to that she explained that soy is typically a minor allergy that kids do grow out of...
  7. Aprilelayne
    Tomorrow is our allergist/immunologist meeting (finally!) and hopefully we will come back with some plan of action. Either additional testing or an action plan to manage her confirmed soy allergy. She is still randomly reacting to something though, sh had a bad reaction on Sunday to something I cannot pinpoint. I wrote her food log out before I forgot...
  8. Aprilelayne
    I'm still learning myself but from what I've learned: IgA -- control numbers, nothing indicative other than the fact you do create enough antibodies to allow the further testing. IgG -- indicative of long term or chronic infections -- while you are on the high end, it is within normal range? IgM -- (this I haven't seen too often on this board) is related...
  9. Aprilelayne
    I'm new to this as well, but I do recognize that the first exam, the one that is high is actually your control. That IgA indicates you have enough antibodies to allow the following tests to be run. That is not indicative of celiac in of itself. The following tests all show you currently in a 'negative' for celiac disease. That is not to say you don...
  10. Aprilelayne
    Thank you everyone, I have days where I wonder if I'm barking up the wrong tree with all of this. Vomit free since Sunday, but I think she's still nauseous, she holds her belly when she's sitting on the couch and rubs it. Nominal appetite still. Poop report from school for yesterday was a solid, but still pale yellow. I had never made a note of...
  11. Aprilelayne
    I'm fairly confident that the allergist/immunologist will, like several board members here, suggest a trial period of gluten-free to see if we find any improvements. While this is good, it will be difficult. My little one goes to daycare, no way around that. I've confirmed with our location that she is the only Soy Free kid, we have several nut allergy...
  12. Aprilelayne
    Right? I currently 800mg of B, so I was really surprised with how low it was. but according to the 'range' I'm normal, so the doc didn't see it. I left a message with the nurse to check on the VitD, thinking that it had been ordered. If not, I need it if anything for a baseline. for whatever it is that I am plagued with, since its not celiac as in...
  13. Aprilelayne
    Rough weekend again. Little one has started up her random vomitting again. Friday to the point of having to be picked up from school. Severe liquid diarrhea throughout the weekend. Nominal appetite all weekend. Vomit on Sunday evening of water. Adding insult to injury, I'm having my random nausea day again already. mysterious hives on my abdomen...
  14. Aprilelayne
    Real quick....got my results in hand, as expected for myself with no answers. *I knew going in so suddenly that my results would be skewed due to my prolonged use of supplements and being gluten-lite for almost a full year. The 'celiac panel' was passed with flying colors. Gliadin IgA 3.96 (0-15) Gliadin IgG 2.68 (0-15) Ttg IgA 1.25 (0-15) Ttg IgG...
  15. Aprilelayne
    Not celiac or gluten related, but it sounds very similar to my reactions to bagged salads. I have chalked it up to it being the preservative they use to maintain freshness inside the bags that I react so strongly to. I can chop a head of lettuce or use romaine leaves/spring mixes or what not without any problems. But the bagged 'fresh express' or...
  16. Aprilelayne
    4/2 - Zantac bumped up to 5mls 2xday.
  17. Aprilelayne
    Its hard, anytime anesthesia is involved for our little ones! But yes, do it now while she's young and you can get solid documentation to move forward. Having the chief as her doctor would make me feel more confident. Good luck today! And all the best thoughts for your daughter.
  18. Aprilelayne
    Yep! She clarified that she ran those two separately because they didn't appear to be in their office's official 'celiac panel.' If anything we've doubled up on a test or two somewhere. I have to remind myself that I know some will be skewed. My BVitamins and likely my D will be skewed since I've religiously taken supplements for both for nearly three...
  19. Aprilelayne
    Sorry, my post was in response to the question here: Yes, any MD is able to the testing, as we are seeing only MDs for my daughter's dx quest. I'm sorry if I confused anyone if I misread the question.
  20. Aprilelayne
    holy moly...it worked! The doctor listened, and she agreed if anything to consider myself NCGI based on anecdotal information alone. But agreed to the testing for 'official' purposes and to help my daughter's gastro. Ordered: CBC w/ nutrients Vit D/B tests 'Celiac Panel' that includes four tests, she wasn't sure which ones. 'AGA IgA' 'TTG IgA...
  21. Aprilelayne
    updated notes: -diarrhea reaction again to peaches?? -BMs becoming more solid!!! but consistently yellow, pale -increased complaints of 'belly hurting' in afternoon and evenings. Daycare remarked complaints about 45min after eating. A kudos to the daycare, they have officially updated their 'allergy' alerts to include her Soy allergy even without...
  22. Aprilelayne
    While we are still in the testing mode for my 2yr old...just wanted to confirm that nutrient testing is also done at the young age. She's had a baseline and a followup already since she was 18months old. (granted no closer to a dx, but we are watching nutrient levels)
  23. Aprilelayne
    3/27 - dinner of peaches, pineapple and biscuit. (Biscuit is soy free but not wheat free) flushed cheeks within 10 minutes of eating. *picture taken Complaints before and after of tummy hurting. Still need to verify what she ate for lunch other than rice. Eta:diarrhea within 20min.
  24. Aprilelayne
    I hope so, I explained when I called for an appointment that I was having "complications from my IBS and tired of feeling like crap." I've been really cranky and down for the last month, I am not myself...so if anything I need to do something about it instead of just whining about feeling like crap more often than not. Doesn't help that I'm in a bad...
  25. Aprilelayne
    Yes, the primary reason we were referred to the gastro was for her reflux and food texture aversion. Prior to initiating feeding therapy, we wanted to confirm what she could actually eat and to scope and see if her esophagus was damaged to the point of her food aversions that she had at the time. The gastro started with nutrient testing and the above...
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