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Really good scratcher

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About Me

Hi, I am a full time employee for a medical supply distributor. I love what I do. I help sell and distribute medical supplies for Physicians offices and Acute Care Facilities. I am a 50-something year old woman and I enjoy life and have a generally good attitude towards my health.

I am happily married to my college sweet heart of 33 years. We have three grown sons. My youngest son is engaged to be married.

My road to discovering I was a Celiac began over three years ago, but now that I look upon my life it may have started many, many years ago. I was diagnosed with IBS in my 30's, right after the birth of my third child. I have had Gerd, and acid reflux since then. In high school I was told my thyroid was too slow, but I was active and healthy, so we ignored that. I felt mostly normal and very healthy for many years. Then I started getting severe migraines in my twenties. We thought it was hormones going crazy. I even went on weekly migraine treatments for about three years. Surgically I have had seven abdominal surgeries, including C-sections for the birth of all three of my sons. I've had correctional adhesions, gall bladder, and hysterectomy all done abdominal. Then about three years ago, my skin went crazy. I was diagnosed with Psoriasis at first and was even put on Humira, and then Embrel. Neither prescription worked for the skin condition. I've been put on series of Prednisone treatment and these will help clear up my skin, but the rash/skin condition would always return. A year ago I went to a new dermatologist, and he took scrapings, and skin biopsies. All turned out negative for Celiac's. I've kept battling the itchiest rash ever and my skin is horrible. It's mostly on my lower legs, but has crept over my abdomen, all over my arms, and on my back and buttocks. I finally went to a dermatopathologist and more skin biopsies were taken. I've been told it's an auto-immune disorder. Why is this so hard to diagnose?

  1. It seems that those of us with DH often get negative test results for Celiac's. To me it seems the standards are not set correctly. My blood work and biopsies continually come back negative, but my rash pictures certainly show DH in viewing. I have suffered for three years. I have been on a steroid cream or ointment since my first year. Most prescription...
  2. I am definitely doing the gluten-free life now. I am new at it. Learning a lot--and there is a lot to learn. It's a little overwhelming and kind of depressing to give up so much right now. I'll get over it and embrace it soon enough, but I know I'll handle it better as I go through the stages of withdrawal from gluten. I have to recognize this is a true,...
  3. You sound like me! These are the exact things I have been going through. I even go the the University Dermatology department! I've been a subject of their Grand Rounds. Still no true DH or Celiac diagnosis! I have been trying Gluten Free for almost a month now. I still have heartburn really terribly, but I feel a little better. My stomach still goes crazy...
  4. I'll go clear the privacy setting on Flickr. Just didn't want the entire Flickr world to see them. It's ok if my DH friends see them, LOL!
  5. O.K. I am not proud of these. I look pretty awful. This is how I have looked now, going on three years. I hope by continuing this new lifestyle, my skin will clear up. I understand though, it can take quite awhile. Sigh. Open Original Shared Link Open Original Shared Link Open Original Shared Link Pretty rashy, I know! Plus for some reason...
  6. I was put on Dapsone for a short while, and couldn't tolerate it well at all and was taken off Dapsone. Now i am on an Immunosuppressant drug called Cellcept. My docs/derms all agree I have an Auto Immune disorder. Cellcept is what I am currently on, but I've only been on it three days. So far so good, but it's real early yet. I am hoping this and going Gluten...
  7. I was put on Dapsone for a short while, and couldn't tolerate it well at all and was taken off Dapsone. Now i am on an Immunosuppressant drug called Cellcept. My docs/derms all agree I have an Auto Immune disorder. Cellcept is what I am currently on, but I've only been on it three days. So far so good, but it's real early yet. I am hoping this and going Gluten...
  8. Hi pricklypear, I have had two rashes together before when they found out I was allergic to my water pill, and found out sulpher based drugs really give me an allergic reaction. I know how miserable that is!! Dapsone was tried with me anyway and it didn't take but two weeks and my rash got worse. Took me off Dapsone, and now I am on Cellcept, an Immunosuppressant...
  9. I did see my Dermatopathologist on Monday. The biopsies she took came back negative once again, and so did the blood work for Celiac's. I am a puzzle. I am also disappointed this rash and all my conditions don't point to anything I can work on. It's frustrating!! I want a label for it, because not knowing why this rash is happening to me is for the birds...
  10. So what next? I am trying to cut out gluten; I am new to the iodine thing, so want to cut out Iodine, but wow! Gluten and Iodine are in so many standard things! I can eat meat--plainly grown and raised. Good I am a carnivore, so that is good. I also love almost all fruits and vegetables. Sigh, huge sigh of relief! Grains. Still puzzled. Rice is good. Quinoa...
  11. Thanks everyone for responding! I am starting to learn so much, and yet,... so much more to learn! It's still REALLY NEW to me! The support here is terrific! I will check in here quite often! To all that respond, a great Thank-You from me!
  12. Love this site for the support! Thank-you for all that have responded! I'll let all of you know what the results say tomorrow! Onward now with my own research, as I feel we are our own best support in our search as to why we have what we have!
  13. Love your reply Marilyn! Thanks for the humor, albeit the truth too~!
  14. It's so hard right now for those of us that are DH!! I have had this skin condition for so long now, my derm wants to name it after me!LOL! It's a mystery to diagnose. I suppose that is because the panels for testing are just not that up to date. This is a relatively new disease in our world. I would venture to guess its because something agriculturally has...
  15. Why is Sea Salt so bad when it doesn't contain Iodine?
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