Jump to content

Really good scratcher

Advanced Members
 View Profile  See their activity

  • Posts

    22

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Really good scratcher

  1. Really good scratcher
    It seems that those of us with DH often get negative test results for Celiac's. To me it seems the standards are not set correctly. My blood work and biopsies continually come back negative, but my rash pictures certainly show DH in viewing. I have suffered for three years. I have been on a steroid cream or ointment since my first year. Most prescription...
  2. Really good scratcher
    I am definitely doing the gluten-free life now. I am new at it. Learning a lot--and there is a lot to learn. It's a little overwhelming and kind of depressing to give up so much right now. I'll get over it and embrace it soon enough, but I know I'll handle it better as I go through the stages of withdrawal from gluten. I have to recognize this is a true,...
  3. Really good scratcher
    You sound like me! These are the exact things I have been going through. I even go the the University Dermatology department! I've been a subject of their Grand Rounds. Still no true DH or Celiac diagnosis! I have been trying Gluten Free for almost a month now. I still have heartburn really terribly, but I feel a little better. My stomach still goes crazy...
  4. Really good scratcher
    I'll go clear the privacy setting on Flickr. Just didn't want the entire Flickr world to see them. It's ok if my DH friends see them, LOL!
  5. Really good scratcher
    O.K. I am not proud of these. I look pretty awful. This is how I have looked now, going on three years. I hope by continuing this new lifestyle, my skin will clear up. I understand though, it can take quite awhile. Sigh. Open Original Shared Link Open Original Shared Link Open Original Shared Link Pretty rashy, I know! Plus for some reason...
  6. Really good scratcher
    I was put on Dapsone for a short while, and couldn't tolerate it well at all and was taken off Dapsone. Now i am on an Immunosuppressant drug called Cellcept. My docs/derms all agree I have an Auto Immune disorder. Cellcept is what I am currently on, but I've only been on it three days. So far so good, but it's real early yet. I am hoping this and going Gluten...
  7. Really good scratcher
    I was put on Dapsone for a short while, and couldn't tolerate it well at all and was taken off Dapsone. Now i am on an Immunosuppressant drug called Cellcept. My docs/derms all agree I have an Auto Immune disorder. Cellcept is what I am currently on, but I've only been on it three days. So far so good, but it's real early yet. I am hoping this and going Gluten...
  8. Really good scratcher
    Hi pricklypear, I have had two rashes together before when they found out I was allergic to my water pill, and found out sulpher based drugs really give me an allergic reaction. I know how miserable that is!! Dapsone was tried with me anyway and it didn't take but two weeks and my rash got worse. Took me off Dapsone, and now I am on Cellcept, an Immunosuppressant...
  9. Really good scratcher
    I did see my Dermatopathologist on Monday. The biopsies she took came back negative once again, and so did the blood work for Celiac's. I am a puzzle. I am also disappointed this rash and all my conditions don't point to anything I can work on. It's frustrating!! I want a label for it, because not knowing why this rash is happening to me is for the birds...
  10. Really good scratcher
    So what next? I am trying to cut out gluten; I am new to the iodine thing, so want to cut out Iodine, but wow! Gluten and Iodine are in so many standard things! I can eat meat--plainly grown and raised. Good I am a carnivore, so that is good. I also love almost all fruits and vegetables. Sigh, huge sigh of relief! Grains. Still puzzled. Rice is good. Quinoa...
  11. Really good scratcher
    Thanks everyone for responding! I am starting to learn so much, and yet,... so much more to learn! It's still REALLY NEW to me! The support here is terrific! I will check in here quite often! To all that respond, a great Thank-You from me!
  12. Really good scratcher
    Love this site for the support! Thank-you for all that have responded! I'll let all of you know what the results say tomorrow! Onward now with my own research, as I feel we are our own best support in our search as to why we have what we have!
  13. Really good scratcher
    Love your reply Marilyn! Thanks for the humor, albeit the truth too~!
  14. Really good scratcher
    It's so hard right now for those of us that are DH!! I have had this skin condition for so long now, my derm wants to name it after me!LOL! It's a mystery to diagnose. I suppose that is because the panels for testing are just not that up to date. This is a relatively new disease in our world. I would venture to guess its because something agriculturally has...
  15. Really good scratcher
    Why is Sea Salt so bad when it doesn't contain Iodine?
  16. Really good scratcher
    I feel overwhelmed as well. It's all really new to me too. Last year right after Thanksgiving--as I always host for our family, I had a terrible break out rash. Had the rash prior to that Thanksgiving, but that was the real date in my life I finally figured out for myself it could all be Gluten Related disease. I woke up in the middle of the night with my...
  17. Really good scratcher
    I have been battling a terrible skin rash for over three years now. I have seen several dermatologists. They have all been wonderful. Yet we are still trying to determine what I have. It has been diagnosed over the past three years as simple dermititis, eczema, and Psoriasis. I have been on Embrel and that failed, and Humira and that failed. I have had skin...
  18. Really good scratcher
    I am overwhelmed too. Going Gluten Free is very new to me. It is a complete change. It's kind of hard right now. I worry how sensitive I am. I read about cross-contamination and now I worry about that! Really, does all it take is a tiny tiny amount of gluten to offset your progress? The other day a friend of mine made me a salad and proudly told me she took...
  19. Really good scratcher
    I have had spots like those too. My blisters are long gone, but my skin still itches like crazy. I wish my skin did not itch so much. My skin now peels and is very dry. I have been mis-diagnosed with Psoriasis several times. A skin biopsy in one spot done last year did show a small amount of Psoriasis once. But my next dermatologist said it was definitely...
  20. Really good scratcher
    I wondered about Xantham gum and Guar too! I thought those were safe. Wow the things to avoid! It's a little overwhelming to a newbie.
  21. Really good scratcher
    Good article! This could explain why so many are mis-diagnosed! I like where it says, Agricultural changes to wheat production may have boosted the protein. Could be a conspiracy theory, but I love conspiracy theories!
  22. Really good scratcher
    I am so new at this! I have been un-officially diagnosed, but three of my doctors tell me to to try the Gluten Free life. I have been trying for a few weeks now. It's not easy at all yet. I think I have a good attitude, but the adjustment is still very new, and I am still trying to figure out what to avoid and what to have. I get heart burn and acid reflux...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.