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Hala

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Hala

  1. Hala
    I have severe pancreatic insufficiency. I've had several stool tests done and they've all come back showing "completely undetectable levels of digestive enzymes". So by the sounds of it my pancreas has basically retired (although I don't seem to have an insulin problem). I'm prescribed Creon to take with everything I eat, which has lipase, protease and amylase...
  2. Hala
    It's the first in the list of symptoms listed by Coeliac UK: Open Original Shared Link I think you should definitely push for blood test and biopsy. But remember, you have to be eating gluten for the tests to be accurate!
  3. Hala
    Does hypoglycaemia cause night sweats? Most nights I wake up at least once drenched in a cold sweat. I don't think I'm getting too hot because I don't feel hot and I very rarely get too hot (wore jumpers in Africa during the summer). Anyway, it's pretty annoying and gross
  4. Hala
    Thank you. I looked up hypoglycemia but a lot of the symptoms seem really severe, I've only been experiencing a few of the milder ones. The monitors look pretty expensive but I'll shop around and see if I can get one cheap. Hi Marcus . Unfortunately my body is really awful at digesting fats. I have pancreatic enzymes to take with food but the drinks...
  5. Hala
    Okay, thanks for the info, I didn't realise you could be hypoglycaemic without diabetes. I tried to book a blood test but my surgery's fully-booked for now so I ordered a home glucose urinalysis test to do first. Probably not accurate but I thought I'd check before trying to book an appointment again. Hi, sorry I should have made myself clearer....
  6. Hala
    And there's absolutely no history of diabetes on either side of my family.
  7. Hala
    Thanks for the advice everyone. I've never been tested for diabetes but I've had a lot of blood tests recently so surely they would have picked up diabetes or hypo/hyperglycaemia? Then again, I am ALWAYS thirsty even though I'm definitely not dehydrated because I pee all the time and it's always clear in colour. The doctors here are rubbish and it's...
  8. Hala
    I'm prescribed high-energy supplement drinks (I have complex malabsorption issues and pancreatic failure) which are really sugary. Anywho, after I have these drinks I quite often feel dizzy/sick and get mild heart palpitations/tachycardia. Even when I sip them really slowly.This happens with sugary food as well. They're definitely gluten-free so it's not...
  9. Hala
    It'd be interesting to find out what causes the variation! Maybe it depends on the strength of our immune system at the moment of ingestion? Or the region of the intestines targetted? Yep I would never experiment for 'yucks' . The destruction celiac disease reaped on my body led to me being hospitalised for several weeks on end this year. I'm still recovering...
  10. Hala
    Hiya . Back when I was eating gluten I didn't have particularly consistent symptoms either, although if I ate a gluten-heavy meal I definitely suffered heavily afterwards! But sometimes I wouldn't feel much of a reaction at all, or would feel crap after a non-gluten meal. Maybe some of the symptoms have time-lags? Or perhaps whilst the antibodies are always...
  11. Hala
    I just have a few questions re the mechanisms of coeliac disease. I'm a zoology student with coeliac disease (and associated conditions....gluten really reaked havoc on my body!) so am interested in the science, but I've always struggled with comprehending the biology of the immune system. Maybe it's because mine's so rubbish, ha Do we ALWAYS react to...
  12. Hala
    .Would it be worth getting my thyroid tested?
  13. Hala
    Have also been experiencing a twitching thumb and numb fingertips....any ideas? I do have a history of carpel tunnel syndrome but it doesn't usually affect me this way....
  14. Hala
    Thanks guys . I have talked to the dietitians about possible other intolerances, including lactose, soy, egg etc. but they tell me they're reluctant to have me cut out any foods (I'm a vegetarian) until I'm a higher weight, and I can see their point. I really don't like the supplement drinks at all :/. The liquid feed I get through the tube is really good...
  15. Hala
    What a lovely topic title, sorry about that! Over the past year I have lost a lot of weight and am experiencing many 'IBS-like' symptoms. This includes stomach aches, varying food transit times (often very fast), undigested food in stools, blood/blood clots and mucus in stools. I was diagnosed with coeliac disease (very positive blood test and endoscopy...
  16. Hala
    This might not be in supermarkets where you live but there's probably an equivalent. Open Original Shared Link It's really easy as a quick sauce for when you're feeling lazy. Just heat it up with water and vuala, instant dairy-free 'cheese' sauce . It's got quite a mature taste but I think a 7-year-old would be okay with it. Tastes like real cheese too...
  17. Hala
    I don't know where you guys live but in the UK Domino's is very coeliac-aware! They use separate screens for the pizzas, which are kept sealed and away from the other pizzas. They don't use any wheat flour on premesis, use separate sauces and utensils and have one dedicated staff member to each pizza. Then again, I've only had one domino's pizza since going...
  18. Hala
    Thanks Mushroom, I suspected as much! My local doctors are awful though, and very financially-constricted. They don't offer allergy/intolerance testing at all and when I asked about thyroid testing they basically shot me down, and said regular blood tests would be adequate. I will go and see my GP on monday to do some begging. I can't live feeling this ill...
  19. Hala
    I get regular blood panels and my thyroids are supposedly fine...?
  20. Hala
    You hit the nail on the head for me there. Coeliac disease has/still is causing me dramatic weight loss and I am currently horribly underweight. I already have to deal with people making judgements when they just walk past me, but when I have to make a big fuss every time I'm discussing food issues with a chef/waiter, I'm wondering whether they're thinking...
  21. Hala
    Thanks for the advice (and don't worry, I love a good long ramble!). I just wish I could see what was going on inside me so I knew exactly what to eat/avoid!!
  22. Hala
    I don't have any advise for you because I'm experiencing the same thing, I just wanted to let you know you're not alone! I was diagnosed 11 weeks ago (to this day!) and am in constant discomfort! I feel like I have far more symptoms now than before going gluten-free, although they are different ones and it may be just that I'm more conscious of them.....
  23. Hala
    Oh yay, someone else like me!!! After diagnosis I thought having to avoid gluten would be the most difficult part but then all these other intolerances started to raise their ugly heads! Can't tolerate any processed gluten-free products, corn, soya, white potatoes, rice, eggs, lactose and probably tonnes more! Seem to have difficulties with nuts too. Along...
  24. Hala
    I've had problems with tolerating any alcohol since my first coeliac symptoms started to arise....I completely skip the drunk stage and go straight to an awful sick/hangover stage!
  25. Hala
    Seems like our bodies just can't cope with anything
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