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nosy parker

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nosy parker

  1. nosy parker
    Congratulations! I think that you are doing all you can by going gluten free now, and it`s very wise to do so. It is certainly highly probable that you have celiac so I would assume that at this point, even if you do the endo later for confirmation. Speak to your doctor about nutritional deficiencies that are possible because of this and they can test...
  2. nosy parker
    Just wondering, since the blood tests don't seem to me to be a great detector of celiac (of course this is just my impression). How likely are they to be useful for kids? I decided after my ongoing saga to go ahead and test my boys. They are doing the TTG-IgA and IgG, as the other tests you all reference don't seem to be available here. They are ...
  3. nosy parker
    Well, I'm in Canada so the health insurance aspect doesn't apply to me. But as for life insurance or disability etc, that could be a real burden or problem. Imagine your kids are grown, start a family and have problems obtaining a mortgage because they don't qualify for mortgage insurance. Or can't get basic life insurance coverage to protect their family...
  4. nosy parker
    Gemini, everything you said is exactly how I feel. I already told my GI that IBS is just a big catch-all for "I don't know what's wrong with you". I don't understand that the can obviously see something in there that shouldn't be there and they just dismiss it. I mean if scalloping isn't supposed to be there, doesn't it warrant an explanation as to why...
  5. nosy parker
    I'm in Canada so insurance isn't involved. The paper I have says "Final pathology report". I have no idea if there are other reports prior to that. This one does indicate the number of biopsies (11 of one section and 5 of the other) and the size range, and also what they were sent in. But nothing other than that. What do you mean "how they are presented...
  6. nosy parker
    I was speaking to a pediatrician today about my never-ending celiac saga. Although my endo showed some evidence, biopsy was negative. I explained that my real concern is for my kids and this is what worries me. She advised me to go and get gene tests to at least see if I have those. But what really surprised me was that she told me NOT to get my kids...
  7. nosy parker
    I doubt they will do any procedure that involves sedation on a sick child. My son had his adenoids removed and tube inserted in his ears several years ago, and we had to re-schedule the morning of the operation (we were already admitted and he was in a gown on the bed) because he had a bit of congestion from a cold and they heard him cough once. But...
  8. nosy parker
    Thank you Gemini. I only had the initial blood work done (ttg-iga), but discovered then that I was IgA deficient so the test was useless. My GI did the endo because I also have low ferritin and many other symptoms so he figured we'd just go in and look. I haven't had any other blood work done. I doubt they will do any now that the results are negative...
  9. nosy parker
    So I was finally able to obtain both my endoscopy report issued by my doctor after the procedure and the pathology report. It doesn't seem very detailed and I'm a bit surprised by what's written. Endo report (with photos) Findings: Normal esophagus. Normal stomach (#2). Rather clear scalloping of D1/D2 both biopsied aggressively to r/o celiac...
  10. nosy parker
    Thanks to everyone for your kind support. I've spent the last 2 days pretty upset about the whole thing. But I need to get on with things and take my health into my own hands, regardless. I do believe gluten is an issue, celiac or not. To be totally honest, I wanted the vindication of being able to say "see, I'm not crazy and making this up!". But that...
  11. nosy parker
    Just got back from my follow-up appointment. Seems everything is normal. GI said he took 11 samples and that everything came back as "normal". Very disappointed. Suppose I should be happy, but I can't say I am. Still no real answer as to why I feel like this. I cannot believe that it's normal to have regular stomach pain. Not discomfort, real pain...
  12. nosy parker
    I agree with kareng. Celiac can cause extensive damage and I would want to know what my insides had suffered. I assume some baseline might be useful if you want to establish how healing has progressed in the future. I'm actually quite surprised that doctors diagnose celiac and then don't do a thorough evaluation of a person's health inside and out...
  13. nosy parker
    Miss-Marie, just to add my experience. I had both a colonoscopy and endo done and oddly enough the colonoscopy didn't worry me but the endo was freaking me out. And I was just outside the room as the previous patient was doing his endo without any sedative. Believe me those choking sounds didn't help! Anyway, they gave me a bit of sedative for the colonoscopy...
  14. nosy parker
    I soooo agree. I am really angry! Wait until I speak to them! Don't they realize that this is going to worry someone to no end!!?? Actually I think if they have something bad to tell you they sure as heck aren't going to do it over the phone, right? So what else can they do but call you asap and set up an appointment, without saying anything at all?...
  15. nosy parker
    Ok, I'm trying to breathe...... I just googled low ferritin and kidney cancer and that REALLY didn't help. Sometimes I hate the internet (or myself for being such an info junkie) I don't know how I will make it to next Wednesday. Why would I need to see anyone if they found kidney stones?? If that's what it is, I sure don't feel anything. Do they...
  16. nosy parker
    Ok, so yesterday my GP called with results of my blood work. Everything was great according to her. My liver, my kidneys, my cholesterol etc... except for low ferritin. So I was happy that all sounded good, but still wondering about the low ferritin. My GI did my endo Apr. 2 and his secretary called to schedule me back on May 27th. They don't call...
  17. nosy parker
    I am waiting until the 27th to see my GI for follow-up of endo, but in the meantime I saw my GP who ordered a sries of blood tests. She said everything was good and all my numbers are great. Perfectly healthy, my good cholesterol is high and my bad cholesterol is very low, vitamins and minerals are all good. EXCEPT my ferritin is still low. This was the...
  18. nosy parker
    Hi dark, What is it that you are scared of exactly? Is it the actual endoscopy? I had both a colonoscopy and upper endoscopy done and I can tell you that prior to the exam I was freaking out about the upper endoscopy. I was soooo nervous about that test. It didn't make sense to anyone that of those two tests I was worried about that one, as most people...
  19. nosy parker
    1- Why does it sound like being gluten-free is scary "healthwise"? I keep reading that it's very hard to get your required nutrients when on this diet. I would have thought the opposite to be true. I mean wouldn't eating healthy proteins (meat) and a lot of veggies, fruit etc.. be good for you? You could still have dairy. Maybe fiber would be a bit tougher...
  20. nosy parker
    Ha! I wish! I actually think she had a cancellation in order to put me in that soon. I assume they don't consider it life-threatening (which is a good thing) because the secretary did say not to worry because if it was something urgent I would be seen sooner. So of course I'm thinking it's my celiac diagnosis! But I'm really trying to keep it in perspective...
  21. nosy parker
    Thanks. But I am holding out hope that this is "good news". If HIS office called me to schedule a follow-up, then I assume something came up in the biopsies. I hope it'll be some kind of answer.
  22. nosy parker
    Just a quick update. I got a call from my GI's office because he needed to schedule a follow-up. They left me a message and I have an appointment May 27th. Around here, the doctor doesn't call unless there's something to discuss. It was pretty much left "Everything looked good" after the endo and he gave me a requisition for an additional test to rule...
  23. nosy parker
    Good luck! Hope the answers come real soon!
  24. nosy parker
    The biocard test is now called celiacsure. It's a TTG IgA test. I used it and it is very simple to use. Unfortunately I am IgA deficient so the test was useless for me. I didn't know this at the time. But, for $50 it is certainly worth a try if it can get the ball rolling with your doctor should it reveal a positive. It's approved by Health Canada and...
  25. nosy parker
    Can't you call them and ask them to send them to you? I can't help you with interpretation of what you've written, but I'd be going cuckoo if there were results and I couldn't read them! Aaaack!
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