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SeekingSarah

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Latest Celiac Disease News & Research:

Everything posted by SeekingSarah

  1. SeekingSarah
    Celiac panel was negative: Deamidated gliadin peptide antibody IgG ELISA: <4.9 EU/mL Mine: 0.6 Deamidated gliadin peptide antibody IgA ELISA: <6.1 EU/mL Mine: 1.3 Anti-human tTG IgA ELISA: <10.3 U/mL Mine : 1.0 Anti-endomysial IgA IFA: Negative Negative Total serum IgA: < 3 years: 8-220 mg/dL; 3-13 years: 41-395 mg/dL; >13 years: 4...
  2. SeekingSarah
    Deamidated gliadin peptide antibody IgG ELISA: <4.9 EU/mL Mine: 0.6 Deamidated gliadin peptide antibody IgA ELISA: <6.1 EU/mL Mine: 1.3 Anti-human tTG IgA ELISA: <10.3 U/mL Mine : 1.0 Anti-endomysial IgA IFA: Negative Negative Total serum IgA: < 3 years: 8-220 mg/dL; 3-13 years: 41-395 mg/dL; >13 years: 44-441 mg/dL Mine: 470 (or 410 ugh can...
  3. SeekingSarah
    Ok had the idea to look up testing lab and compare the ranges there...and from I can make out on the scan this is it. Deamidated gliadin peptide antibody IgG ELISA: <4.9 EU/mL Mine: 0.6 Deamidated gliadin peptide antibody IgA ELISA: <6.1 EU/mL Mine: 1.3 Anti-human tTG IgA ELISA: <10.3 U/mL Mine : 1.0 Anti-endomysial IgA IFA: Negative Negative...
  4. SeekingSarah
    She's a nurse...while she doesn't dismiss my gluten theory I think she's just trying to be helpful with the rash but I try to explain its a reaction not a fungus or infection.
  5. SeekingSarah
    A few places are healing and bam 2 new blisters appear around my mouth, I have 4 areas total on my scalp and each have new painful bumps, back of neck and forehead so my entire head is pounding. I called the derm office today to get an appointment and I get voicemail, and they actually never called back from the last time I called, when I had a persistent...
  6. SeekingSarah
    GRRRRRRRRRRRrr....printing the page just prints it out in same 1/4 page scanned image. Going to call and ask for them, I'm sure they'll just say "oh the results state result not indicative of Celiac diagnosis"...that's it. Questions: Should I push for endoscopy biopsy next or see a dermatologist for skin biopsy of rash for possible DH...or both?
  7. SeekingSarah
    I'm going to try and print once home (out of town right now), if I can't read the print out then ill ask them for a copy.
  8. SeekingSarah
    But it does appear only 5 results verses the number of tests suggested...so there were some he didn't order...correct?
  9. SeekingSarah
    My sed rate was 65, normal being 0-20. Already knew I was def in b12 and d but they write that off as being post op rny gastric bypass.
  10. SeekingSarah
    I even tried to pull up on my boyfriends huge screen but its same resolution, once I'm home I will try to print it and see if its more legible. It's a can into their system since they sent the blood out for the celiac panel. If I'm making it out verses the ranges two are borderline. Like the 1.0 is where the reference starts...so I'm right there.
  11. SeekingSarah
    The results are scanned into the patient portal but the type is so small and opening up in a new page and zooming is just blurry. I can read Results do not support a dx of Celiac. I think these are the readings: 0.4 IgG 1.3 IgA 1.0 TTG IGA Negative EMA Total Serum IgG 470 Thats the best I can make out....I can't see the ranges worth...
  12. SeekingSarah
    My thoughts exactly...I've also read a few places on IBS forums that IBS would not cause the elevated SED rate....
  13. SeekingSarah
    The GI I saw in 2009 was in Miami, FL, this new doctor was in KY as I have moved back to Ohio...they didn't even have the 2009 GI name nor a release from me to get the records. I offered the name and phone at check in but the receptionist said they get it from me if the Dr wanted them...
  14. SeekingSarah
    Oh yes, I've been a college student and I used to work at a university in Student Affairs....caffeine is a best friend. I am going to get the GI records from 2009 just to see what blood tests were actually done and what the results were...just curious. The IBS dx was basically in 2009 was basically because the Celiac and Chrohns were negative. If what the...
  15. SeekingSarah
    I know, I'm like hello FUNYUNS are gluten free...I'm GOOD. LOL Joking...sorta. I already eat a lot of unproccessed food, I was eating MORE "whole grain fiber" foods to HELP with the supposed IBS from the last GI who brushed me off...now this one is saying IBS without even having the other's records or any test yet...so you get IBS from pushing on my abdomen...
  16. SeekingSarah
    I feel your frustration about being told "it's just IBS"...what were your blood results? I hope they did take the correct number of samples and you get clear results from them...some answers not the default IBS.
  17. SeekingSarah
    Initial blood results back CBC, CMP, and SED rate...the CBC and CMP look normal to me...SED rate which measures inflammation normal is 0-20...mine is a 65.
  18. SeekingSarah
    Thank you! I didn't want to make him mad by pulling out my list and asking that he make sure all were done, he already wasn't completely on board...and I know my PCP in FL (next time I see her, I live in Ohio now) would order anything he did not order.
  19. SeekingSarah
    Horrible day for symptoms too...blood this am with bm. Ate a turkey sandwich on a wheat deli thin before appt and I don't know why had such horrible bloating and cramping while there, driving home felt I need to puke too...got home nothing but flem when I tried to puke, and even more blood and clotting with bm (I have fissure and hemmoriods, but there was...
  20. SeekingSarah
    Wait, what? I don't want to lose my b%$@#iness! With that said, I have been very depressed, irritable (like every little thing about work bothers me, and it shouldn't bother me to the point I just want to quit...that is not rationale), just want to sleep all day, all worse the past few months, the same time I've had the DH (self DX for now) outbreak, might...
  21. SeekingSarah
    I feel the same way, originally my GI appt was for May, but I found another one who could see me sooner, appt on Monday! Having been brushed off by a GI a few years ago and told I had IBS...I have no idea what my blood results really sad I didn't suspect Celiac, never really knowing much about it so I didn't inquire further as to what tests he actually did...
  22. SeekingSarah
    Casey I sent you a friends request so I can connect with you once I know more....
  23. SeekingSarah
    I to both of you...skin issues is what finally made me think Celiac also...saw Jennifer Esposito on the Today Show mention it and currently I have a bad outbreak on my scalp. Always seem to have spots on my face...was dx with IBS a few years ago...questioning that now. I have appt with GI on Monday. There are others that will most likely welcome you with...
  24. SeekingSarah
    Saw the NP today, should have just cancelled the appt given I did not pick up either med she offered...script for anti-fungal shampoo and IBS meds. I told her since I got an earlier appt I didn't want to try any new meds that might mask symptoms, she just said be sure and cancel the appt with the other GI to which she referred me to and that she "looked up...
  25. SeekingSarah
    PCP is in FL, not sure when she will be back from maternity leave. I have appointment with a GI on April 1st, if he isn't responsive they why yes I'll get PCP to run test, I'll be down there later in April and I'm sure her partner would order them for me if she isn't in office.
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