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SeekingSarah

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Everything posted by SeekingSarah

  1. SeekingSarah
    Good luck, make sure that SED rate gets followed up in case there is something else going on. I see my FL PCP in a couple weeks, she is more receptive to my concerns since she has treated me for 9 years, she is on top of the SED rate, after the 84 one in May I found out from another doc that I had a common bac infection occurring so that might explain...
  2. SeekingSarah
    Well I'm hoping if I can get some sort of DX for myself...it will encourage my sister and my mom to steer him in the right direction for his issue. I have little say, but for a kid who rarely would ask for something for him to bring up these things to my mom show they must be bothering him.
  3. SeekingSarah
    When I first read about Celiac I told my mom I wondered if my nephew's mild behavior issues growing up were due to it? Well just spent weekend with him, he is 18, noticed right off he has a sore spot on his LIP exact spot where I get one. He also has rash on his chin like I get. Then during lunch he was not eating and told my Mom that food makes him sick...
  4. SeekingSarah
    The "rash" or skin issue I have are either yellow blisters on my face, or hard painful bumps that are not pimplelike (no core or head). Just had a few tiny sores appear on my chest, again, I have visible scars from previous outbreaks. Face, scalp, neck/hairline, back, chest, scars on arms from previous sores, bump on roof of mouth, and blister cluster in...
  5. SeekingSarah
    Any thought to why GI issues are worse in the morning? I spend at least and hour in the bathroom, just cannot empty bowels, not constipated per say, just cannot move everything out., stomach continues to cramp the rest of the morning, might actually need to have another BM or it's just cramping...maybe mucus, but I feel completely wiped out many times I just...
  6. SeekingSarah
    Yes, I know that...as I stated the IBS, Low Vit D, Low B-12 and the anemia can come be after effects of gastric bypass but they are all also related to Celiac or Gluten, intolerance as is the skin rash, acid reflux, missed periods, night sweats, weight gain...etc.etc.etc.etc.etc. Thus the reason I'd like some real answers instead of just blaming the surgery...
  7. SeekingSarah
    Just got my retested SED rate via the patient portal...it's now 86. Something's not right....awaiting to see what PCP will recommend tested this week. The local doctor who ran the original SED rate that was 65 has NEVER said a thing about it....grrrr hate some doctors.
  8. SeekingSarah
    What is the name of the cheek swab genetic test?
  9. SeekingSarah
    Oh geez I think I could easily find someone to discredit a test...that is IF they'd even give me a test! Especially now that the initial blood panel was neg, the derm was like "why biopsy if the blood test was negative?"....isn't a skin biopsy needed for dx of OTHER skin issues too? But after her show of ignorance I now longer trusted she'd even do the DH...
  10. SeekingSarah
    My Celiac panel was neg, very high Total Serum Iga? High SED rate 65. PCP who has treated me for the past 9 years is back from maternity leave and is said Celiac wouldn't account for that high of SED rate, she ordered it retested (from FL, I am now in Ohio) waiting to see if it's still high. Saw local dermatologist about skin rash, she refused to do a biopsy...
  11. SeekingSarah
    NP said "well if the blood test were negative? then why test?" Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms...
  12. SeekingSarah
    There is also the option of Gastric Sleeve, they do not bypass intestine, but no foreign object in you that can slip or cause erosion. As someone in the opposite position it is good that he was DX before surgery. In general, I don't see a lot of information re: weight loss surgery and celiac...so even his surgeon might not have definite answers. You...
  13. SeekingSarah
    I am 35... my Total serum was high and my SED rate was 65 (normal 20)...other celiac panel was neg. Hitting roadblock at getting skin rash biopsied. PCP is concerned with SED rate, wants it rechecked....surprise the GI doc who ordered it never called about it.
  14. SeekingSarah

    ARCHIVED Columbus, Ohio

    SeekingSarah replied to bridgeofsighs's topic in Doctors

    Is Dr. Ackerman still at OSU? I'm not finding one on the website, just an anesthesia doctor.
  15. SeekingSarah
    I even told the derm today that I was hoping for a biopsy of skin to see if it's DH before I decide whether to have an endoscopy biopsy...as in you know let's do a non-invasive office procedure before I have to go under anesthesia, etc. and STILL she brushed off the possibility it was gluten related or any REAL diagnosis of the skin rash...instead it is dx...
  16. SeekingSarah

    ARCHIVED Need A Dr In Dayton Oh

    SeekingSarah replied to raea2002's topic in Doctors

    What is Dr. Akerman's first name? What hospital does he practice?
  17. SeekingSarah
    NP said "well if the blood test were negative? then why test?" Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms...
  18. SeekingSarah
    ((((((hugs)))))
  19. SeekingSarah
    I really haven't had treatment for lymphedema for years because it's maintained by wearing my garments, I just went yesterday to be measured for new ones and my legs are in very good condition, considering...I just think it might be the overall issue causing the kidney problem...who knows...just monitor it all...awaiting word from my PCP.
  20. SeekingSarah
    Being born. I have actually primary lipedema which causes abnormal adipose tissue to accumulate in my hips, thighs, and upper arms...that excess tissue puts additional pressure on my lymph system causing the lymphedema in my legs. Open Original Shared Link Actually no gluten diet is recommended by some lipedema doctors.
  21. SeekingSarah
    How is what being treated? The lymphedema? It's in maintenance, There is no treatment other than compression therapy, I have compressed all that can be compressed, wear garments to keep legs from swelling up with lymph fluid....lymph fluid is protein rich fluid. Mom's kidney issue just being monitored and BP being controlled.
  22. SeekingSarah
    My mom is stage 4, she is 66 and had told me it was due to her chemo and radiation from breast cancer 12 years ago....her father (my grandfather) also had kidney issues I believe, he drank a lot though. Thankfully I do not have diabetes or high blood pressure...I do wonder if it's the lymphedema issue that contribute to protein in urine.
  23. SeekingSarah
    My PCP in FL (I moved back to Ohio last year) is back from maternity leave so I emailed her an update that I'm pursuing possible Celiac or Gluten intolerance as cause of some of my medical issues. I told her the Celiac panel was negative but I have appt with dermatologist this week. I mentioned my SED rate was 65, and she replied back that was very high ...
  24. SeekingSarah
    All I know is as recent as August my thyroid levels were "normal". My mother, sister, and aunt (goiter removed) have thyroid issues. Have had recent cycle issues, I see my gyn this month also for annual and am going to be sure thyroid is looked into further than just the basic level testing.
  25. SeekingSarah
    I didn't have this test right? I know WIKI isn't the best reference but the exercise induced breathing made me go hmmmmm. Anti-gliadin IgE [Open Original Shared Link] The IgE antibodies are more typically found in Open Original Shared Link-related conditions such as Open Original Shared Link, Open Original Shared Link, and wheat-dependent Open Original...
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