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SeekingSarah

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Latest Celiac Disease News & Research:

Everything posted by SeekingSarah

  1. SeekingSarah
    So I called the compromise option of the doctors 45 min away larger hospital than local, and guess what they had appt for April 1st! I feel confident that since they are in a larger city (tri-state area) they probably also have more experience also or have seen more cases. Regardless even in Miami it would be starting with a new GI, so I can't avoid having...
  2. SeekingSarah
    Ok I'm going to slowly start counting post WLS patients I find here, since from what I ask of surgeons they act they have no knowledge of celiac in post-ops. grrrrrrrrrrrrrrrrrrr I'll be post op RNY 10 years. My issues started more after a GI bug 5 years ago, but still brushed off as if I was just a none compliant WLS patient.
  3. SeekingSarah
    I'm very active in the WLS community and have not found many post-ops with Celiac, having much more success here than in the other communities, actually sent a message to a very popular WLS doctor asking if any of his patients have been dx'd post op or if he knew of any literature on the topic and he said "none". But that doesn't surprise me, typically only...
  4. SeekingSarah
    I will call the GI local tomorrow and see if they will just order them early, and if anything the PCP office in FL does love me I have baked them lots of cake over the years, I might be able to get my PCP's office partner to order them, I already have a planned trip to Miami in two weeks. I have held off on even emailing my PCP, but I cannot wait she will...
  5. SeekingSarah
    Anyone do a visual exam for an anal fissure?
  6. SeekingSarah
    No Chicago would be a 7+ hour drive or a flight which airport is 2 hours away itself =( if I have to travel I'd just go to Miami where they have my records and know my history. Local small town docs are frustrating, my PCP in Miami to whom I still communicate with and see when needed just had a baby last week so she will be out for a few weeks, I say a few...
  7. SeekingSarah
    That is what I told my mom, I need the positive DX to stick with it. But the way my diet already is it will not be too difficult and as I check some of my favorite items like ketchup, miracle whip, and kraft dressing I am good on that front too. Any chance your doctor is in Southern Ohio? I need a good doc! =)
  8. SeekingSarah
    Well I saw the NP today armed with my list of tests I wanted, she looked at the scalp sores and mentioned cradle cap, etc I told her I've actually dealt with this for years, my PCP in FL had given me a medical mousse years ago but that I had seen something that made me think it was all related to the IBS issues, Thyroid symptoms (but normal tests), etc etc...
  9. SeekingSarah
    OMG??? I had TWO TIAs!!!! Nov 2004 and Jan 2005 however it was following a DVT and they found I had a PFO (small hole in my heart) and THAT was deemed the cause and I had the hole closed. This is all starting to be too much to take in...and all blamed on bad eating habits and even when I was eating better it was just deemed I must be lying since I...
  10. SeekingSarah
    How are you doing? I had RNY in 2003, had what a GI said was IBS for 5 years but just heard that celiac disease could be related to these skin issues I also have so I am pushing for more tests before I go gluten free.
  11. SeekingSarah
    I forgot to mention I have acid reflux and take nexium too and saw that is also a symptom...and oh honey...I'm a natural hanger I didn't even mention then on GI issue like mini strokes..and DVT...and hole in my heart...no no don't cue the violins...all that is has been taken a care of since 2006 and I'm all better in that regard, I am one to stay on top of...
  12. SeekingSarah
    Last week in the middle of the night half asleep I heard Jennifer Esposito mention her scalp fire on the Today Show being related to celiac disease. I was shocked and relieved all at the same time. At this very moment I have painful scalp sores, I've dealt with episodes of these sore for years, I have thick hair, at one time it was thought hair clips were...
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