PamelaB
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by PamelaB
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bloating ARCHIVED Constant Bloating
PamelaB replied to Ginger1012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree that it can take years to feel completely healed and then you still might have some less than good days. Being celiac will be a lifelong challenge but you will become a very exceptional cook of gluten free meals. As for the bloating, have you considered SIBO. Small intestinal bacterial overgrowth. The symptoms often mimic IBS and Celiac Disease... -
ARCHIVED Struggling with Rifaximin
PamelaB replied to jddh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi J, I am challenged with both Celiac Disease and SIBO so I can understand your concerns. I have been on many courses of Rifaximin with Neomycin to get rid of the bacteria and what you are experiencing is par for the course. You may find that at the half way point you seem extra bloated then it just disappears. All the side effects from the drugs will end... -
What I try to remember is that celiac disease and my health issues do not define me. I define me. One day I realized all I had to talk about were my illnesses and how boring was that. So I stopped talking about it. There is so much more to me and I refuse to let any illness be my identity. Doesn't mean it's easy. Doesn't mean I often don't live with nausea...
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I realize this post will not make very popular with the group. But I get frustrated reading how miserable people feel and then read what they are eating. I want to pull my hair out when I read how staying away from gluten makes someone feel so much better and yet they are careless about it, get glutened and then opine about it. PEOPLE if you have been...
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ARCHIVED Newly Gluten Free, New Symptoms
PamelaB replied to Soconfused27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you had your blood levels checked for possible anemia. I was fatigued beyond belief and found out I was severely anemic but didn't know the cause therefore they did and endo to look for GI bleeding and ended up getting diagnosed with Celiac. Even though a year ago blood tests for celiac disease were negative. But since the biopsies were positive, I am... -
I can't thank all of you enough for your kind words of support. Like you said as my husband sees me getting better then maybe his support will grow. I have to admit it is still hard for me to wrap my head around the fact that this is for life. Nothing feels in my control anymore. As I gain a sense of control back and a routine to shopping, cooking and eating...
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I have been 5 weeks gluten free and it has been a struggle. I also suffer with IBS-C and anemia due to the celiac but am currently receiving IV iron infusions to increase my levels. My struggle is my spouse and his inability to grasp the severity of the situation. Or maybe he has just become desensitized to hearing me say "I don't feel good" for so long...
