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In fact, my older sister requested my gluten free Frosted Banana Spice cupcakes for her birthday "cake".

Could you post a recipe? Those cupcakes sound delicious.

I wonder if the cumulative effects of getting a little bit of gluten everyday is making things worse. I also wonder how well a detox will work when you're getting glutened everyday. Can the body really detox if you're bombarding your immune system at the same time?

I think you could get a disabled sticker for your car if you have complications from celiac that doesn't allow you to walk a longer distance. But you wouldn't get one just because you have celiac. ADA is worded something along the lines of "reasonable accommodations must be made" and a celiac doesn't need to have access to close parking but would need access to a safe, CC-free environment for eating.

I'm in the same boat as you. I often don't feel sick when I get glutened, but if I gluten myself several days in a row I start to get sick. Maybe you should eat twizzlers once a day for the next week and see what happens I'm thinking I either have a much higher gluten tolerance level than others and my immune system can handle it now that it's healed or I am getting damage but it just takes a few days for reaction to make it to my joints and muscles to make them hurt.

Since celiac disease - by definition - requires an abnormal blood test, or an abnormal appearing intestine on biopsy, and symptoms that resolve with a gluten free diet, how is it possible to know that one has celiac disease while not testing positive in any way?

If symptoms simply resolve by being on a gluten-free diet that's great - but that doesn't mean you have celiac. (And it doesn't mean that your problems aren't serious or in any way unequal to or less than those involved with celiac. In fact, your problems may be worse and I mean no ill will by asking this question.) I'm just honestly curious - if you don't test positive in any way there's simply no way to know if you have it. In fact, by definition, if you don't test positive in any way, then you don't have it. You might have something worse. But in order to have celiac, you've got to test positive in some way in addition to resolution of symptoms by being on the diet.

For the traditional medical community to diagnose celiac you have to have a positive blood test or scope, but that misses all the people in the early stages of celiac who don't have enough damage to test positive. Unfortunately traditional medicine can only detect end-stage celiac which is a real shame. If you go gluten-free without a positive test and feel better, it may be celiac, but it may also be some other form of non-celiac gluten intolerance. I think many here who have self diagnosed feel badly enough when glutened to feel confident that they are in fact celiac (or beginning stage celiac). I know this is the case with me. I will never know for sure if I'm celiac, but my health is so, so much better now that I am 100% committed to my lifelong gluten-free diet.

Based on their age and the fact that they eat gluten free at home, I wouldn't be very confident in getting a positive diagnosis. I guess it can't hurt to try for one, though. The worst that happens is it's negative. Would you be happy with genetic testing? They don't have to be eating gluten for that.

Yes, what Tim says. For those of you who had dentists that checked, would you mind posting the brands they are using that are gluten free? Thanks.

I tried to remember what the name of the brand my dentist uses, but I forgot... Can I blame this on brain fog??

I would contact the caterer. Many fancy caterers can accommodate a gluten-free diet.

I just got a new dentist and the toothpolishing stuff said gluten-free right on the box! I was quite surprised.

I'm curious--what do you mean by I'm not gluten free at all? I avoid all sources of wheat/barley/millet/gluten in foods that I know of--I really did think maybe my husband knew what he was talking about with tasting 3 of the beers he sampled...None of the other food I had had any wheat in them according to the waiter--was there something else I mentioned that had gluten in it and I don't know it?

<"If I need to be gluten free...">

OK, OK, I KNOW I need to bee gluten free to be as healthy as I can be. That doesn't mean I ALWAYS do it 100%

UM--so nobody here EVER cheats? Wow--you guys are my heroes! Apparently none of you come from eating disordered or addiction backgrounds. Either that or you're on a higher playing field than I... An addict cheats sometimes. It is nothing I'm proud of, but I fail to do what is best for me 100% of the time. Not that I really want to--and I would of course be MUCH healthier if I never cheated--but that's not me. Maybe one day it will be me, I'm just not there yet. But for now, I stayy 99.9% gluten free (--until dinner at the Broadmoor...then I sample my husband's dessert, which I didn't order because it clearly had flour in it. Mind you it is a very SMALL sample (1cmX1cm at most)) but really--you guys NEVER cheat?

OK, in my family, food was an addiction. Maybe alcohol too. I'm the only kid who didn't end up obese (probably BECAUSE of all the diahrhea, now that I think about it...Yuck...) nor addicted to alcohol (except for my 1 brother who has brain damage and is much better at will power than I, he never had problems with drugs or alcohol--he really is a great man)... Yup, my other sister is morbidly obese, and my older brother, Rex, just died of esophogael cancer--he switched from cigarrettes to chew...Darnit! And his sons STILL chew...

Anyway, that doesn't mean I can't learn from other people's suggestions. Maybe there are some other people out there who are struggling to be good besides me? Man, way to make a girl feel lousy...Still, I am trying to stay healthy. And I am not perfect. I probably--no, strike that, I most likely NEVER will be perfect this side of heaven. But I do persevere, and I will keep trying!

I certainly didn't mean to make you feel badly. The tone of the post made it sound like you don't really eat completely gluten-free on vacation, starting with the beer. And 99.9% gluten-free is not gluten-free. And please don't make assumptions about my background. You may find that going gluten-free helps a lot. Here's what I've discovered.

1. Gluten is an addictive substance itself. If you eat it occasionally you will go through cravings and withdrawal every time.

2. Gluten affects some people neurologically which leaves you open for depression, other addictions and mental illness.

3. You body kind of understands that some foods don't sit well which can lead to subconscious psychological issues with food.

If you eat gluten every week or two, your body will never get out of this vicious cycle. It will never heal. My last glutening took me six weeks to get over. No, I never cheat. Because I never want to feel the way I did before I went gluten-free again. I want my life back. I understand there are plenty of people out there who do cheat. It's not easy. I would encourage you to find a way to motivate yourself to stay 100% gluten-free.

To get back on the topic of weight loss, it seems that many people here can't get to a health weight when eating gluten. Once off gluten the body starts to function properly again and you can gain or lose the weight necessary. Weight loss can be very hard when you're still eating gluten.

If you're the type who likes to eat large, yummy meals with the local cuisine, let yourself do it once a day, but make the other two meals lighter. Plan out what you want to eat for the day. If you know where you're going for dinner, take a look at the menu before you go and pick your entree before you get there and are starving and want to eat everything off the menu. Get some exercise in - hiking or biking or swimming at whatever vacation destination you're at. There's got to be somewhere pretty to wander around.

The biggest problem was the volunteer rescue squad didn't know what celiac was and gave me an epi-pen thinking it was an allergic reaction.

Does getting an epi-pen without an allergic reaction cause any harmful effects?

I've also had mono, and it's not a fun time. I guess the good news is there's not much a doctor can do for you so not having insurance isn't super critical. You have to just ride it out. Get lots of rest and don't overexert yourself. Get the kids to help with chores. Take naps to allow yourself to do some work. Google "coping with fibromyalgia" - there will be some good tips on getting through the day with fatigue, luckily yours is just temporary.

I don't understand. Are you gluten-free or not? From what you've been eating you're not gluten-free at all. If you need to be gluten-free, then that's the much more pressing issue here than the few extra pounds you want to lose.

It sounds like with the amount of effort you go to to help the kitchen staff provide gluten-free meals, you might as well just make each meal yourself. If I had a kid, I do not think I'd trust the kitchen staff to provide safe meals. Yes, you can ask them to do in in the form of a 504, but I think the risk of CC is just too high.

There should be some legal repercussions of not sticking to a 504 plan - that's why people put them together. I'm not sure what they are, though, and for school lunches I don't think it's worth dealing with. If it were something you couldn't easily fix like other kids using playdoh and contaminating tables then I might go the legal route, but it sounds like this would be easiest to fix by you providing his lunch everyday.

How long have you been gluten free? If it's long enough for you to have fully healed, I don't think you'd need to do anything in addition to what a non-celiac would do.

Hang in there! A little more time is hopefully all you need. I also felt immediately better after going gluten-free, but had bad days here and there for the next few months. Your body's been through a lot with the celiac and will need some time to get back in tip-top shape.

Cafe Agri just opened in Minneapolis a few months ago at 4300 Bryant Avenue S. I tried it out last weekend, and it was delicious! The menu is 100% gluten free, and nearly 100% vegan (there's one trout entree) which should make it casein free, too. They use all fresh, local food. And it was one of the best meals I've had in a long time. All you Minneapolis-area people should check it out.

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I *might* have to make an unscheduled trip to the grocery store to make that taco soup. Tacos are my favorite thing ever, and this is a great way to "disguise" the fact that I eat them several times a week!

The best part of the cookout!!! I fixed a gluten free taco soup and it was the hit of the cookout!!! Everyone raved about the soup and gave me an opportunity to give a little education of utensil use!!! EVERYONE was great!!!

Taco soup sounds delicious. Could you post the recipe?

A bee sting goes into the skin (and the blood stream???), not the digestive system, so I would think that even if a bee had wheat particles on it you wouldn't get glutened. Unless you had DH or tend to react to gluten on the skin. I'd guess it's like using lotions with gluten - if you don't digest it you'd be ok.

I've noted all the symptoms in the posts on all the topics are similar .......yet varies widely in severity.... thinking that it is in direct relation to us differing in our makeup . IE: someone recently made toast with breakfast.....stacking their toast on top of my Tapioca loaf toast...for me , no reaction, for others a crumb sends their body into a tailspin. I'm sure since I went gluten-free I've accidentally gotten cross contaminated foods....I even ate a patty melt made on grilled dark rye bread( intentionally)....no noticeable reaction .

so another question for the vets is : do the symptoms increase in severity as one ages being gluten-free or do they lessen ?? Can one expect new symptoms to appear after being gluten-free for years if you were accidentally glutened ?? Is there any RELIABLE documented medical research on celiac monitoring thru an extended period of years ??

Just because you don't feel sick when you eat some gluten, doesn't mean you're not damaging your body. If someone stacked their gluten toast on top of my gluten-free toast before I ate it, I probably wouldn't feel sick, either. But if someone did that to me everyday, by day four or five I would start to feel the same old fatigue, brain fog, joints hurting, getting colds because my immune system can't handle the overload, and I'd feel crappy for the next 3-6 weeks. I may not feel my symptoms on day one, but I know my immune system is being attacked. Maybe I'm lucky because my immune system's initial response isn't one that I can outwardly feel. Or maybe I'm unlucky because sometimes I don't always realize I'm glutening myself until it's too late. And I know that every bit of gluten I accidentally ingest is going to increase my probability of major health issues down the road - other autoimmune diseases or cancer.

I haven't read any research on whether symptoms increase, decrease or change over time after one goes gluten free. Everything I know is anecdotal evidence from this message board. Seems like it totally depends on the person. Symptoms could increase, decrease, stay the same or change after you go gluten-free. You never know.

he knows it can taste good, he just REFUSES to try being totally gluten free. he says he will "maybe cut back slowly" but never drop it. if he doesnt drop gluten, how can i ever convince him that his weird symptoms only happen when he eats gluten? and why on earth does anyone care THAT much about eating gluten?

Unfortunately and frustratingly, there's probably not a whole lot you can do. Sounds like you're done your best job to convince him and now the ball's in his court. For some people it takes getting REALLY sick to make the major life change of giving up gluten. Most of us here have been sick for a long time and spent years trying to figure out our health problems so cutting out gluten to get our health back was a much easier task than it would be for those who didn't spend years being sick.

The thing is I dont wanna potentially damage my stomach for 3 months and reverse all my hard work for the past year. regarding symptoms, I was severely constipated when i was on a regular gluten diet and once i went off i felt a better so thats incentive enough for me to remain gluten-free. i really dont wanna eat gluten for 3 months and be constipated again

If you keep eating gluten every now and then it's not much different than full-out eating gluten for three months. And if you're afraid of getting constipated again which went away when you went gluten-lite, sounds like you do have a diagnosis. Your two options are: eat tons of gluten again for a few months in the hopes of getting a positive result or go off all gluten completely. Or I guess you can eat gluten-lite, but then you might as well just eat gluten all the time.

Most pudding is gluten-free. At least the jello brand is. I would offer to take the ingredients to her house and make dinner there. She's probably dealt with new cutting boards, wooden spoons, pans, etc, so you wouldn't have as many CC issues to think about.

Oh my...I didn't even think about Thanksgiving!! It'll be my first too! I'm going to miss stuffing! Maybe I'll bring my cornish hen or maybe grandma will make a separate one just for me...

Stuffing is a perfect way to use up all that yucky tasting bread and failed home-baked bread so many of us have! I keep it in my freezer all year just for this occasion.