Celeste77
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Posts
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Celeste77's Achievements
About Me
Diagnosed March 2012
Marsh III Partial Destruction
HLA-DQ2 & HLA-DQ8Â
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Holy Cow, Holy Red Bull... The most bizarre thing... I’ve had a few commitments over the past handful of days. Desperate for energy and the ability to think/function, I grabbed Red Bull from the gas station. I know, terrible, but desperate. The first one (Saturday night) was helpful but no more helpful than a cup of coffee. But then I had one yesterday, ...
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ARCHIVED Fatigue!
Celeste77 replied to gwynanne4life's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Gwynanne, I completely relate and have had the same experience. For me, extreme fatigue and cognitive issues have been the most miserable and devastating. I was diagnosed 1 year ago. Right about 6 months gluten free, I was where you are right now. I was too exhausted to make myself food so many times I just didn't eat. And while the obvious reaction... -
Thank you for sharing your experience. How long did it take to get your brain back, so to speak? I was diagnosed 1 year ago today and while my GI symptoms are gone and biopsy pathology is back to normal, my brain & extreme fatigue remains unchanged. I still can't function on a daily basis. Did merely changing your diet work for you or were there other...
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Thank you everyone for taking the time to read my post and respond. This is very exciting as I've never spoken to someone with this disease before. Many people (friends/family) are irritated by me and "my disease" and others tolerate it, so I wouldn't say I have much of a support system. I'm so happy to have found this forum and incredibly grateful that people...
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Wow! What a wealth of information that website provides! This may explain my high blood pressure that I've had since my mid 20's, I'm in my mid 30's now and it seems to be getting worse with no explanation despite an absurd amount tests. Thank you for providing the link! So, so helpful!
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This is my first post. I guess I'm hoping that someone will read this and be able to offer some advice. Perhaps point me in the right direction.. I was diagnosed March 2013; biopsy showed partial destruction of intestinal villi (Marsh lll), blood test marginally positive. My symptoms did not go away on a gluten free diet, in fact I got so much worse that...
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ARCHIVED So Frustrated
Celeste77 replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with the person who mentioned the genetic testing; would be the only tests that won't be influenced by your current gluten-free diet. I have to say that the muffin challenge is the worst idea ever and a HUGE red flag to me. My jaw is still on the floor. It is not possible to draw a definitive or measurable conclusion from simply eating a muffin, gluten... -
ARCHIVED Probiotics Causing Issues?
Celeste77 replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had the same issue taking probiotics. I was diagnosed Celiac in March this year but kept getting worse on a gluten free diet. The rashes started about a month before diagnosis and were becoming more frequent after the diagnosis showing up on my wrists, chest, stomach, shins, calves. After A LOT of reading, I went to my GI and insisted on a hydrogen breath...
