floridanative
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Latest Celiac Disease News & Research:
Everything posted by floridanative
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	Atlanta Metro Celiacs is hosting a gluten free fair this Sat. at the Roswell, GA Doubletree Hotel. There will be over 70 vendors there. It's free for members and $3 (cash only) for non members but that gets a whole family in. In addition to gluten-free food companies from around the US, three of the gluten free breweries will be there. Some supplement companies...
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ARCHIVED Gluten Free Pan Muffins Gobbled Up
floridanative replied to floridanative's topic in Coping with Celiac Disease
It was just the 123 Gluten Free pan bar mix made in a mini muffin pan (plus another small rectangle baking pan as it makes a lot). I added the walnuts and a little extra cinnamon and cloves to bump up the spices. For the frosting I used cream cheese and some powdered sugar and coconut flakes but to make a glaze consistency, I added some agave syrup as well... - 
	
ARCHIVED Gluten Free Pan Muffins Gobbled Up
floridanative posted a topic in Coping with Celiac Disease
We had our first ever block party for our street on Sat. and everyone gathered in the cul-de-sac in front of our house. I knew I would not be able to eat anything anyone brought because I would not be able to check the labels, blah, blah. So I take apple spice/walnut mini muffins with cream cheese coconut frosting. I had to stop my DH from eating them all... - 
	
ARCHIVED Target Is Working On gluten-free List
floridanative posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Target is finally working on compiling a list fo gluten free products they carry in their stores, at least for their own line called Archer Farms. Their toll free # is on their website (www.target.com) and I think the more of us that call and ask for such a list, the faster they will get it ready. I noticed they have weird ways of marking items gluten... - 
	
ARCHIVED Gluten Guy From Tallahassee Fl
floridanative replied to CeliacMe's topic in Introduce Yourself / Share Stuff
Hi KG - as far as I know there still is not a group in Tall. The woman who ran one previously apparently moved. Very few people in town are dx'd with Celiac as far as we can tell. We rarely eat out when in Tall. but if we do, we go to Bonefish or Carrabas which at least offer decent gluten-free menus. Sorry not t be of more help but since you're in Destin... - 
	I've been to both locals and they each have very knoweldgeable Chefs reagarding gluten free food prep. They prefer to let them know in advance you require a gluten free meal when making reservations. It's Asian Fusion cuisine and my meals including salad, dinner/side and dessert needed no modifications whatsoever. However, many of their sauces contain reg...
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	Open Original Shared Link Good article and I found a low end Asian resto in ATL that has a gluten free and gluten light (lol) menu. Guess the latter is for those reducing their gluten for a trendy diet or something.
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ARCHIVED Gluten Free Article In Atlanta Paper Today
floridanative replied to floridanative's topic in Publications & Publicity
In the article it says 1 in 133 have Celiac. It's actually 1 in 100. The NIH site is usually not that up to date...they get changes and it literally takes months for them to be keyed in. This is what someone who works for the government told me anyway. Anyway, this woman (who is a nutritionist after all) is trying to learn and for that I'm thankful. Carla... - 
	
ARCHIVED Gluten Free Article In Atlanta Paper Today
floridanative posted a topic in Publications & Publicity
I was interviewed for this piece, the woman spelled my name wrong (everyone does..lol) but overall she did a decent job. She got the medical info from the NIH, which unfortunately doesn't have the current stats but it's still great exposure for our cause. In the actual paper they have colors photos of the salmon, steak sandwich, choc. cake and Redbridge beer... - 
	
ARCHIVED Doritos
floridanative replied to TinkerbellSwt's topic in Gluten-Free Foods, Products, Shopping & Medications
On The View's (abc.com) home page lists all the great gluten-free foods they had on their Celiac segment last week. I posted that link on publicity thread about that show. The white nacho cheese Doritos are on that list. I don't do msg anymore so I gave up all Doritos regardless of gluten content. - 
	It's hard to find but finally I pulled up this page on the View's home page. It gives the contact info for Dr. Green and the NFCA, Alice Basts' organization. The foods shown in the segment are also listed. Open Original Shared Link
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	Think it was a technical glitch with the video link. It's working on the NFCA site now...still not up on ABC. I tried to e-mail both Bill and Elisabeth to thank them for the awesome segment. Neither would go through. Anyone else try and if so, did your note go through? I was able to go to another contact address for ABC and send them a note so I asked...
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	I agree! Dr. Green doesn't have the most energetic speaking manner so for him this was a wonderful effort! He touched on many important points in a short time. Infertility will get the attn. of many I'm sure as will the term IBS since we know so many out there with that label of IBS really have Celiac. The food table looked great as well and it showed we...
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ARCHIVED Mimi's Restaurant In San Jose, California
floridanative replied to CalicoSue's topic in Gluten-Free Restaurants
It just proves it depends on which location you go to when it comes to gluten free knowledge. The managment of Mimi's in Atlanta is woefully undereducated about gluten. The server we had didn't seem to know the word gluten so I was not at all surprised when 2 of our 8 dinners had to be recooked. When my food arrived it was good but I could barely enjoy it... - 
	Okay - so my one year anniversary of being gluten-free was at the end of January. My six month blood work was surprisingly great and the year check up was even better. My vitamin levels were way up (B's, folic acid, etc) but my iron stores is only at 50 so the doc said I had to stay on the iron therapy. My iron level was high (not dangerous) but she said...
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	Back to the View segment, I have a suggestion for us all just in case it doesn't turn out the way we'd like it to. Certainly I hope it's the best Celiac segment we've ever seen but just in case it's not, I hope we'll come here to vent our frustrations and not slam the show directly. The way to further our cause is to court those in power. After the piece...
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	I'm in charge of inviting doctors in the Atlanta area to participate in the NFCA's Gluten Free Cooking Spree which is October 27th, 2007. The only hospital I need help with so far is Grady Memorial downtown. Does anyone know a doc from there I should invite? It does not need to be a GI, better really if not because we are trying to raise awareness outside...
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	Back when I first started eating out again after my dx, we found a great Sushi place that told me there were five dishes (not sushi) on their menu I could have. I liked two of them so we went every few weeks. The last time we went (months ago) my food came out with a watery type sauce and the server explained it didn't have cornstarch since it now had wheat...
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ARCHIVED Online Shopping
floridanative replied to newman's topic in Gluten-Free Foods, Products, Shopping & Medications
I've ordered from the following sites: *www.glutensolutions.com - has some of everything *www.gfnaturals.com - contains soy but has the best gluten-free pancake, cookie and yellow cake mixes *www.123glutenfree.com - fave biscuit, pan bar and brownie mixes *www.amazon .com - go to grocery section and then search 'gluten free'. This site is great... - 
	Someone posted this on listserv - I just found this TV segment and thought I would share. If anyone would = like to see it, it's in 2 parts and you can watch the video of the = article if you click on the link with the little video camera icon. = Every little bit helps to get the public informed. Enjoy! Open Original Shared Link Open Original...
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ARCHIVED Shelley Case Coming To Atlanta
floridanative posted a topic in Introduce Yourself / Share Stuff
For those of you in, around or near Atlanta, GA the Atlanta Metro Celiacs group is hosting Shelley Case for our April meeting. Check out the website for details (www.atlantametroceliacs.com). There is no charge to attend the meeting. Also, in May we are hosting a Gluten Free Vendor Fair. Come try before you buy - vendors will be sampling their wares. It... - 
	That totally sucks Rusla. I'm so sorry to hear this news....why didn't the guy at least say he was leaving? How odd - maybe he was fired. I'll be thinking good thoughts that you find an even better doctor but I know how frustrating the search can be. Good luck and keep up posted on your progress.
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ARCHIVED Gluten Free Bagel Better Than The Regular Kind
floridanative posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Please moderators move this to the correct topic. I know there is one but I can't locate it now. I got bagels from www.gfgreatbakes.com and they are not to be believed! English muffins also very good but the bagels are better than 'real' bagels to me. I always found bagels to be a little too heavy for me. These are dense like a bagel but not too much so.... - 
	
ARCHIVED Could This Be Celiac?
floridanative replied to floridanative's topic in Related Issues & Disorders
Thanks for the replies and info. I think it's worth this woman getting tested for Celiac if she has not been. I met her briefly and don't know how to contact her but my instructor will make sure and tell her that it's important she at least rule Celiac out. I have a feeling that no doc has thought of this but maybe they will in NYC. She is either just back...