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YankeeDB

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Everything posted by YankeeDB

  1. YankeeDB
    Cornygirl, your situation sounds difficult and complex and I'm sorry you're having such a hard time. It may be you have multiple conditions and celiac disease may be (probably is) one of them. One thought that came to mind when I read your post is additional food allergies. Perhaps take 2 weeks and resolve not to go out at all but stay in and eat the mildest...
  2. YankeeDB
    Hello! I bought some of this bulk (yes, I know--cross contamination issues--but it came from one of those dispensers that pour down rather than the kind that you scoop out) and don't know how to microwave it. I have a stove-top recipe but prefer to mw it. Anyone? Thanks so much!
  3. YankeeDB
    Hi TT, I have enjoyed your many informative posts throughout the site. You have certainly had an interesting life and I envy your extensive travel experiences. What I was wondering about specifically is how you handle explaining to hotels/motels why are you cooking in your room? Also, aside from the multi-fuel stove you mentioned, do you like...
  4. YankeeDB
    Angel, welcome to the site and thanks for sharing your story. It is frustrating that diagnosis is delayed for so many people. That's why I take every opportunity (without, I hope, being obnoxious!) to talk about celiac disease and how it manifests in weird ways. So many people are horrified at the thought of giving up wheat that they are in denial about...
  5. YankeeDB
    I always recommend coconut oil for those who are healing and want to gain weight. It is an easily absorbed fat and easy to acquire a taste for.
  6. YankeeDB
    Just for completeness, I wanted to mention using a gluten-free dining card. These are preprinted cards that you can give to the waitperson to show the chef what you can/can't eat. I've had (mostly) good success using these. Do a search on "gluten free dining card" to find several sources, or just make your own and laminate them (cheaper!).
  7. YankeeDB
    I recommend coconut oil for those trying to gain weight while their intestines heal. It is absorbed differently and more easily than most fats. An internet search will explain more about it and where to buy it. (I gained 10 pounds in 2-3 months eating this, although to be honest, I didn't want to--I was only trying to get more energy! Still, this may...
  8. YankeeDB
    Thank you all for your input! I had another setback last Friday night. INCREDIBLE lower back pain, cramps, and diarrhea. I tried to eat to alleviate the weak feeling but that was a mistake--I ended up vomiting as my body simply did not want to deal with food, no way, no how! The worst of it is, I don't know what caused it. I'm going to get back to...
  9. YankeeDB
    Envelopes, stamps, communion wafers? (Just to be thorough!)
  10. YankeeDB
    One additional test to consider is total serum IGA. If you have an IGA deficiency, any IGA test will come up negative no matter what. Even without symptoms, gluten can slowly be causing damage. An ounce of prevention is always a good idea. My brother's situation is similar to yours: positive on AGA IGG and negative on AGA IGA. However he is also...
  11. YankeeDB
    Mat4mel, regarding the blood tests, they usually come back quickly. For example, my blood was drawn Thursday and the results were available by Monday. Rather than wait for an appointment to learn the results, I went to the office and requested a copy from their computers--no problem! A clerk can handle this. You have a right to see these results. If...
  12. YankeeDB
    Hi elf! Welcome. I've been gluten-free for 3.5 months and can say that the first 3 months are the "period of adjustment" and it gets easier! I'm glad you found a good doctor to work with you. There's so much to learn and I suggest looking for and joining a local support group as well as checking in here regularly. Best wishes to you!
  13. YankeeDB
    Envelopes? Stamps? Communion wafers?
  14. YankeeDB
    Another thought is to do a stool test via enterolab. (www.enterolab.com) They claim to detect gluten sensitivity even after a period of being gluten-free as the anti-bodies linger in the stool longer than in the blood. There is also something called a "rectal challenge" but that might not be something you want to put your little one through!
  15. YankeeDB
    Wwebby, this is a great topic! I'm still working on this one myself. I now shop every week at a health food co-op. It's a small store so it doesn't feel arduous to walk through it once a week. This way, I can stock up when there are specials. Also, the store gives a discount of 20% when you buy a case of something.
  16. YankeeDB
    Laurie, I was so sad when I read about your difficulties! You might consider getting tested by Enterolab which some think is a more sensitive and accurate test. www.enterolab.com Also, labs DO make mistakes! And, if these were read to you over the phone, I'd want to see a prinout of the actual results from the lab. Regarding endoscopies, sometimes...
  17. YankeeDB
    Tally, if you weren't diagnosed with a biopsy, then you don't OFFICIALLY have celiac disease. Just wanted to mention this in this discussion for completeness. In my opinion, this is one good reason NOT to have a biopsy (although there are reason TO have one as well so it's not an easy call at all.)
  18. YankeeDB

    ARCHIVED Disbelieving Doctor

    YankeeDB replied to a topic in Doctors

    I heard from three gi doctors in the Pittsburgh area that IBS is a bogus diagnosis. One of them said she thought it stood for "I be stumped!"
  19. YankeeDB
    OK, I've been (theoretically) gluten-free for 3 months but on Easter I went to a buffet with some friends and something zapped me but good (I suspect the very delicious ham). I'm sure I've had gluten exposures before but they were mild compared to this! I've learned firsthand that after being gluten-free for a while, an accidental ingestion can be a nightmare...
  20. YankeeDB
    I asked a gi doctor who has Celiac Disease himself this same question. He said it can take a long time to heal so you need to be patient. I wonder myself about other sensitivities--yeast, eggs, dairy, corn, maybe others. He told me not to worry about these things but I've found that keeping a food diary with a record of how I feel seems to help me make...
  21. YankeeDB
    I really like the Cause You're Special Sandwich Bread mix. Super good!
  22. YankeeDB
    Calisherbear, you can have your pharmacist call their source for the medication directly and confirm that their formulation is gluten-free and if not, have them use one that is. Pharmacists are a great resource in situations like this. Good luck to you!
  23. YankeeDB
    Here something pertinent from: Open Original Shared Link
  24. YankeeDB
    Flurrywurrie, who is doing your candida test? Many doctors are skeptical about this which is not to say that it does not exist. I suspect other grains besides gluten may cause fatigue--the book Dangerous Grains is interesting on this point. I assume you've had a full workup--thyroid (full panel, not just TSH), Iron, Folate, B12, other deficiencies...
  25. YankeeDB
    I spent a lot of money initially buying gluten-free "convenience" goods (from online gluten-free stores) but I'm gradually learning how to shop more economically although I still indulge in the "goodies" somewhat. Point being, the first month gluten-free may be the most expensive as you learn the diet and try to adjust by mapping your old habits to the new...
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