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snowmom

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Latest Celiac Disease News & Research:

Everything posted by snowmom

  1. snowmom
    My Target carries these. They're not quite as delicious as the original (and a little too puffy), but my kids like them pretty well!
  2. snowmom
    This is what we do. 4 yr old daughter is celiac, 2 yr old son tested negative and has no symptoms. Our home is entirely gluten-free (except for the occasional beer for us parents ). Outside the home, our son consumes whatever he likes, which includes a fair amount of gluten through his daycare lunch program. We will continue testing him periodically. ...
  3. snowmom
    I do think it's worth investigating. Here's our experience: We have a 4 yo celiac daughter. Right after her celiac diagnosis, her then-20-month-old little brother started experiencing chronic diarrhea that went on for weeks and weeks and frequently got him sent home from daycare. He was occasionally on antibiotics also for ear infections, but not all...
  4. snowmom
    Thanks, that seems like it's worth a shot. maybe we'll get someone who can give us a little more info (though I do take your point, Stephanie,about clueless hospital folks!) We're going to a big Children's hospital. After my post it also occurred to me that we can ask someone on the GI staff to help us track down this info from their colleagues....
  5. snowmom
    Really, I'm just posting this because I need to vent, i don't really have a question. My 4 year old daughter is having an adenotonsillectomy in a few weeks. After surgery, she will be on juices and soft frozen foods, and she will need to show that she can hold down liquids before they will discharge her. I'm pretty sure all she will accept in this scenario...
  6. snowmom
    Thanks for everyone's recommendations, and especially for this one!! I hadn't heard of Go Picnic before I read your post. I just headed to Target, and cleaned out their selection of gluten free Go Picnic boxes, and it looks to me like they will be the perfect solution -- healthy gluten-free choices, good portion sizes, well packaged for travel. If they...
  7. snowmom
    Thanks so much to all of you! These are all great tips. I like the idea about trying to board last, since priority boarding has never helped that much with a high-energy toddler who doesn't need to sit still for an extra 20 minutes while all the other passengers boards. The diabetes doesn't severely limit her food choices in the same way that celiac...
  8. snowmom
    Thanks for the tip about the Schar crackers! I didn't know about those and will try to track them down. And good point about the PB packets. This is still feeling pretty new to us (even 3 months in), so we don't have a great line-up of on-the-go foods yet.
  9. snowmom
    I'm flying solo this weekend with my celiac 4-yr-old and her 2-yr-old little brother (which seems like a very bad idea as I type those words!) We'll be at the airport during the kids' morning snack time and on the plane during their regular lunch time. My 4-year-old also has type 1 diabetes, so keeping her fed on a regular schedule is even more important...
  10. snowmom
    I had a similar issue with my non-celiac younger child. Around the time his sister was dx-ed celiac last fall, he was experiencing chronic diarrhea. His height and weight and behavior were right on track, though. The pediatrician was a little skeptical that he had anything more than "toddler diarrhea" (whatever that is!), and she said that the testing...
  11. snowmom
    Thanks to you both for responding! This is really good information to have. I have to go back and pull the 2d panel they did after the low IgA result, but I do recall that when I posted about it on this board, a few of the veteran celiac moms here said the testing sounded incomplete. As for other symptoms: last fall, around the time of sister's dx, he...
  12. snowmom
    This is interesting, thanks for posting. I have a question about your signature. I noticed that you mentioned your 2d child has enamel issues on his baby teeth? Is that significant for celiac or autoimmune issues? After my daughter was dx-ed with celiac, we had a blood panel done on her 2-year-old little brother. He had low Iga, which led to further...
  13. snowmom
    I'm pretty new here (dd just dx-ed in December). Maybe one of the veteran moms can chime in and offer some suggestions about private labs, their reliability, and which blood panels to seek.
  14. snowmom
    Yes, if you want a firm answer on whether they have celiac, you will have to reintroduce gluten and do some testing. Can you go to another pediatrician for advice on this, including how much gluten and how long to do the gluten challenge? I don't know how reliable the private lab tests are; the gold standard is a blood antibody test, typically followed by...
  15. snowmom
    On the pickiness question, maybe our experience will provide some comfort: My DD is extremely picky, and she basically refused all food at many meals in the weeks before diagnosis without ever explaining why. We were on the total wrong track in trying to get the bottom of her food refusal, but fortunately her celiac was diagnosed through a routine screening...
  16. snowmom
    As to how long it took my DD to start feeling better: She is 4, so I sometimes have to guess what is going on inside her head. She didn't have major GI issues prior to diagnosis, and we only caught the diagnosis through routine celiac screening because she has another autoimmune disease (type 1 diabetes). However, for months before diagnosis, she occasionally...
  17. snowmom
    my3yo, I'm talking way out of my expertise here, but on the urinary frequency issue, you might check out these two articles. Some very reputable doctors have speculated that there's an association between constipation and bedwetting and wetting accidents: Open Original Shared Link Open Original Shared Link Of course, in some kids, constipation...
  18. snowmom
    Once you eliminate gluten, it's very difficult to test for celiac down the road. As pps said, if it is truly celiac, a formal diagnosis is important for school accommodation. But it could also help ensure that your DS adheres to the diet as he grows up and makes his own food decisions. We have a relative who decided that her toddler had problems with gluten...
  19. snowmom
    I feel for you! It's so hard to see your kid with no energy and no appetite. Have you called the pediatrician or GI? I'm so very new to celiac that I really don't know how long it takes to clear gluten, but after 6 months, maybe you are right that it is worth investigating other food issues, other autoimmune issues that run with celiac, and other totally...
  20. snowmom
    Thanks for the thoughts. I agree with a lot of what other posters have said. But I guess I didn't ask the question right. The school wasn't asking for a product list, but an ingredient list. All those un-pronounce-able mystery ingredients that you see on processed food boxes. The Carr book I mentioned does include a very long list like that, and it seems...
  21. snowmom
    Thank you!! And I didn't know about puffed Goldfish! What a find! My daughter was really sad when I put our family-sized container of Goldfish in the giveaway box a few weeks ago.
  22. snowmom
    Can anyone recommend a good list of safe/unsafe ingredients for celiacs? I'm looking for an easy-to-use reference to provide to my child's preschool (this is something the school requested I find for them). We purchased a list by Jacqui Carr on Amazon. It's pretty thorough, BUT it includes confusing statements about whether rice and corn contain gluten...
  23. snowmom
    Burndee, I feel like I could have written this, and your follow-up questions! My 3 year old daughter is also at preschool, and we are trying to navigate these waters. We got the biopsy confirmation while the preschool was shut down for the holidays, and today is her second day back. My husband and I also wondered whether one of us should try to stay home...
  24. snowmom
    Wow, thanks for this wealth of information, and for the follow-up questions. Mayasmum, he was and is ingesting a pretty normal load of gluten. At the time of his blood anti-body test, we were sticking to our prior diet, because we were still waiting to do my daughter's biopsy and the GI told us not to alter our diet until formal diagnosis. My son still...
  25. snowmom
    Thanks for to all posters for this input! These are very helpful comments. For now, our plan is to completely de-gluten and then assess in a month or so whether there's anyway to safely have any gluten-containing products in the kitchen (other than the occasional beer for us grownups!) It sounds like it might not be worth the hassle, as some of you pointed...
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