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ArPlasma

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Everything posted by ArPlasma

  1. ArPlasma
    I am really sorry to hear that about your daughter. Our son was diagnosed in January as well and we are still cleaning up everything around us. He got contaminated two weeks ago at school by supposedly gluten-free cookies but baked on a cookie sheet sprayed with canola oil spray which contained glutened. From the lentils to stoneware, gluten keeps creeping...
  2. ArPlasma
    Hang in there! My son's blood results were comparable to your daughter and the doctor said the same thing to us after the biopsy "everything looked normal" but when the results came back I was told that there was a lot of villii damage. It was pretty stressful for me to hear too but we went gluten free right after the biopsy and got confirmation a couple...
  3. ArPlasma
    This makes me wonder about my other son again. He is on a gluten free diet right now because our home is gluten free and he is not in school yet. His teeth have started some discoloration( like oDS1 who is diagnosed Celiac), he's had chronic urticaria for 8 months now and tested right below the positive cutoff for Celiac. The doctor said that his teeth discoloration...
  4. ArPlasma
    Ha! I had the same question. Thanks for the answer!
  5. ArPlasma
    Nope don't mind, everything was positive: tTG- IgG:46, tTG-IgA >100, EMA 1:160
  6. ArPlasma
    I had some similar thoughts. I don't want him to get sick but something is obviously not right already and he is not getting( enough?) outside signs of it. I think he might come along. We went to a work seminar last week, he had some gluten filled food and spent 2 days with severe stomach cramps and in the bathroom. I had to have him excuse from talks. he...
  7. ArPlasma
    Thanks GFinDC! Yikes! I have given my DH many anecdotical accounts as well as some studies. I passed him the links above, including the review paper I found yesterday, it is up to him at this point. His biopsy returned negative yesterday, again I think by now he knows the stats, talked to his GI( who thinks if not Celiac 'yet' it is highly probable to be...
  8. ArPlasma
    Just wanted to say hang in there! We dealt with unexplained stomach pain and headaches for a while too. 3.5 years without gaining a pound is a bit scary. Has his pediatrician started anything( tests) about it? Did he go through Celiac blood panel yet? If not, as others have mentioned he needs to stay on gluten diet until after biopsy for all of it to be valid...
  9. ArPlasma
    My son had a lot of GI issues as a baby( projectile vomit, diarrhea), plus skin rashes and was a very colicky baby. I wish I had pushed the issue a bit more. He was finally diagnosed this past month after almost missing it again( I had a hint in June last year and after being told it was highly unliely he ad Celiac, then given the wrong tests, then finally...
  10. ArPlasma
    Something that might be of interest to others as well. A review of the different existing studies on complications of Celiac. Open Original Shared Link
  11. ArPlasma
    I have told him all of this. Anyway, his biopsy came back negative today( don't get me started on that either) but he takes it as he is off the hook. I found a couple of papers that I passed on to him. It is his choice. Our house is gluten free though( i cleaned everything after our son's diagnosis). He did mention today that he is starting noticing that...
  12. ArPlasma
    Yes scientific papers are the way to this heart. Give him a sample description, control group, test duration, standard deviations, etc. and he will be happy( yes, evenings are fun in our household). I'm trying to find a summary of this, or may just end writing one myself if necessary.J/K( sort of?) Thanks for the link, I have read it before but looking for...
  13. ArPlasma
    Hello all, I was wondering whether you might have some ref papers about the consequences of untreated Celiac( with data, description of samples, etc.). My DH, awaiting for his biopsy results, is starting to doubt whether since he is 'asymptomatic'( according to him...), he should go on a strict gluten-free diet if he is diagnosed. His GI said, he would...
  14. ArPlasma
    Eers03 if you ever find the ref for this it would be great. I am looking for numbers/ studies for asymptomatic diagnosed Celiac who go untreated. My DH just went through his biopsy and under the guide of some family members ( who have IBS and all sort of crazy GI issues btw but 'don't think they have anything') is backtracking on the gluten-free diet. Our...
  15. ArPlasma
    Hi Theresa, My DS had his endoscopy last month and got a confirmed diagnostic almost 2 weeks ago now. It went very quickly. The procedure itself( not counting, anesthesia, waking up period) lasted 20 min and he was not in pain at all afterwards. To us it was worth it because now everyone is enforcing it at school in particular.
  16. ArPlasma
    We did. DD tested negative on all. DS2 tested negative on all as well( very close to positive on TTG- IgA and has a skin rash similar to what DS1 at the same age), DH tested positive on ttgs and just had his endo, waiting for results. His GI told him that given blood tests and family history, even if the biopsy is negative for him it most likely means that...
  17. ArPlasma
    Thanks everyone! The school has been great so far, they had already passed a note to the teachers before diagnostic but now the nurse made it known to everyone that it is official. We are still writing the 504. We took a break this week- end, I finally gottorelax a bit and of course I got sick. I always catch something( cold), after being stressed out for...
  18. ArPlasma
    Thanks everyone! Next on the list is working on the 504 plan for school.
  19. ArPlasma
    After the longest wait, we have the results of the biopsy for DS1 and it is positive and confirmed the Celiac diagnosis. We got a note from the doctor for the school which hopefully is going to help us keep him a bit safer from gluten at school. It's been almost 4 weeks since the biopsy and he has been already feeling much better( started the gluten-free...
  20. ArPlasma
    Thanks Cara! Yes, My main concern at this point is the enforcement of his diet at school and wish we can get an 'official' statement of gluten intolerance to make things easier at school and everywhere else. I had to chuckle at your mention of m& ms preference vs. cupcake because I had this discussion today with DS. There was a party at school( again...
  21. ArPlasma
    We are waiting for the results of the biopsy but given his blood tests results and family history chances are pretty high. he's been gluten free for almost 4 weeks now( right after biopsy) and has not had a tummy ache since which was a daily thing. He's also only had one episode of headache since( he used to have 3 episodes a week average). I think his behavior...
  22. ArPlasma
    Hi Diana! I am new here so probably not of much help but DS1 has had a pot belly and super skinny body everywhere else otherwise( about 25 percentile difference between height and weight). I used to point it out to the docs too as worrisome to me and kept thinking it was not right but kept being told that everyone in the family is tall and on the thinner...
  23. ArPlasma
    Hey icelandgirl, have you tried the Pamela's pancake mix? It passed the kids' test in our home. We found that a lot of our regular store brand products were gluten-free including their breakfast sausages and breakfast meats and sausages in general. Hang in there, we're new in this too, we 'shall conquer this!' I don't have celiac disease but made the house...
  24. ArPlasma
    Our appointment was cancelled by GI's office at last minute(1 h 30 before!) and rescheduled for next week. so still no results. However the doctor asked that we see the nutritionist right after seeing him. This is taking for- ever. Anyway, DS is still doing great off gluten, no tummy ache in 3 weeks now! Woohoo! And he is asking what has gluten. He told...
  25. ArPlasma
    I agree with Bartfull, if you are with her it might be a good learning opportunity.
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