Jump to content

rcheltrvel

Advanced Members
 View Profile  See their activity

  • Posts

    32

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rcheltrvel

  1. rcheltrvel
    I have 20 years of gluten symptoms, have a history of Fibromylagia and CFS. I went to a new doctor, a nurse practitioner actually. She wasn't satisfied with just a Fibro/CFS diagnosis and decided to test me for Celiac and I tested positive on a TTG-IGA antibody test. My NP diagnosed me with Celiacs without any further testing and told me if I want to live...
  2. rcheltrvel
    No way, stay on my thread, I love a good argument! I don't have to think about me and my problems for a minute!!!
  3. rcheltrvel
    gene test and biopsy both negative and my uncle is a good pathologist in new york city and I had my slides sent to him for a second opinion, he said the GI took enough samples and everything looked fine.
  4. rcheltrvel
    So far I have elevated TtG antibodies and nothing else wrong. What happens then? What if every test under the sun comes back negative besides TTG-IGA?
  5. rcheltrvel
    Maybe that is it Lisa, I hope so.
  6. rcheltrvel
    Who knows, it could be the sulfides effecting me but then why would vodka bother me?
  7. rcheltrvel
    I have read that article and many others. Some people react to stuff that is below the lower limit of gluten, right? I seem to be that one that has reactions to things with gluten in it under 20 parts per million.
  8. rcheltrvel
    And no to the cracker thing. I brought all my own gluten free crackers and never touched anything else with wheat.
  9. rcheltrvel
    I happen to live on the eastern end of Long Island, NY, gateway to the Long Island wineries (we have over 70). It's a big thing here and my husband and I go all the time, especially when visitors from out of town come to visit. This past weekend we went and at every winery, I asked about the glue/wheat thing. Most people said they didn't know but a few knowledgable...
  10. rcheltrvel
    Well, all my tests are in. Positive TTg-IGA, negative biopsy, negative genetic markers. After being gluten free for over 3 weeks now, some of my neck inflammation and pain has subsided, although pain still there, migraines are under control, a little less tire (only a little), a little more energy (not that much) and can think a little clearer (but not that...
  11. rcheltrvel
    Hi Lisa, How do you know from what I wrote that there were only two samples taken from my small intestines? When I was going in for the procedure, right before I went under, I asked the GI if he could please make sure he takes 6-8 samples. He says, don't worry, I take plenty. When I first read the report today, I also thought he only took 2. But then...
  12. rcheltrvel
    Hi, Well 10 days later, I got my Upper Endoscopy report, so confused at this point and disappointed. GI said my Villi look fine, I do have Gastritis with bleeding, as I mentioned. He said probably from years of anti inflams. He said because I have the positive iGG-iGA test, symptoms and a negative biopsy, he now wants me to take the genetic blood test ...
  13. rcheltrvel
    Actually, my GI doctor did not confirm Celiacs at all. My regular doctor did based on my 20 year history of symptoms, some deficiencies, raised liver and cholesterol. etc.. plus a positive Celiac blood test. The GI doctor did the endoscopy and said I have a large amount of inflammation and bleeding and he said it could be worsened by possible Celiacs but...
  14. rcheltrvel
    Made it through my endoscopy today, it was a nice sleep! I was relieved yet crying when I woke up. I have been having so much upper stomach pain since this two weeks of torture started, I thought I could have an ulcer. No ulcer but I do have an inflamed stomach (Gastritis) with a lot of bleeding. The Gastro said its from the anti-inflamitories I have been...
  15. rcheltrvel
    Well, tomorrow I get my endoscope. Finally. I can't believe I'm saying this but I pray I am Celiac and can finally put closure to my search for answers. Yes, I feel like dying today, but I got to binge on Girl Scout cookies today! For my last time ever, no matter the outcome. I did discover on this gluten challenge that when I eat gluten at night, I wake...
  16. rcheltrvel
    Thanks. I will try eating it only at night, I am going to try tonight. But I have this horrible neck issue that is worst upon waking and I am starting to suspect that my old late night gluten/carb snacks could be making me much worse in the morning, I will try it once and if it's not good, I will try for lunch only. This way I can maybe get some work done...
  17. rcheltrvel
    I think I will pick one little piece of my favorite food for each day. If I am going down, it's going to taste good!!!
  18. rcheltrvel
    Thank you Lisa, will do. Our stories sound so similar. Were you diagnosed with Fibromylagia after your Celiac confirmation?
  19. rcheltrvel
    Thanks for the advice, I will tell my doctor and gastro about this. I actually was diagnosed by my regular doctor already with Celiacs based on all my blood tests and years of symptoms. But for my own piece of mind, I have to have this test. I have a five year old daughter and a mother with similar symptoms. I have been told so many things by so many doctors...
  20. rcheltrvel
    Oh yeah, I wanted to add, I went to see a Psyotrist the other day for my chronic neck pain, headaches and stiffness who is part of a large neuro surgery group at a prominent hospital here where I live. He said despite my minor two herniations and minor arthritis, he thinks all of my pain or most of it is being caused by malnutrition/vitamin deficiencies...
  21. rcheltrvel
    Since my addition of gluten since I was told I had to go back on gluten for two weeks before my endoscopy, it's been horrible. I have more stomach issues now then I've ever had and my blaring headaches, chills, brain fog and extreme fatigue are worse then they have been in 20 years. Could this be simply a worse reaction by adding gluten back in? I lasted...
  22. rcheltrvel
    Thanks. Sorry, I should have worded it better. I know there is no cure but unlike many other autoimmune, there is at least a way to repair to some degree and feel better. You can't do that with let’s say Rheumatoid Arthritis or Fibromyalgia. With those there is no real end, no relief that actually fixes something, only band-aids. As I understand it, removing g...
  23. rcheltrvel
    Just curious of how it feels to get your life back after being sick and undiagonosed with Celiacs, long term? How does it feel to get healthy again?
  24. rcheltrvel
    By the way, the best concealer I have found is "Boil-ing" by Benifit. It seriously covers, I can no longer leave the house without it.
  25. rcheltrvel
    I have had symptoms of Celiacs for over 20 years but am not yet diagnosed. I had a positive Celiac panel and am waiting for my endoscopy. I have had progressively worsing black circles under my eyes over the past 3 or 4 years. I recently took gluten 100% out of my body and five days later was forced to add gluten back in, for testing purposes. Since going...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.