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Patti J

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Patti J

  1. WE have good news...in Heaven we will not have to worry about gluten or anything else...understand and believe it is a disease free zone!
  2. What great information. Thank you so much for this.
  3. This will be my first gluten free Thanksgiving as was just diagnosed about 5 months ago. What I have been doing is saving, in the freezer, the ends of my gluten free bread. Last week I took out the pieces and put them in the food processor and made my bread crumbs. I thought I would just follow my regular recipe minus the regular "bread"..and yes, I plan...
  4. I can relate to your frustration of meal planning. I too suffer from that and find myself eating the same old things! I have lost weight I can't afford over these past almost 2 months. I have seen some interesting dishes suggested in these forums, just some things I can't eat for other health related ideas. Give these folks time, they will offer suggestions...
  5. I live in FL. I am not sure where you are. But a friend of mine just had a gluten free cake baked for me. The lady that did it lives in Ft Walton Beach FL. She does all kinds of allergy free baking and knows all about it. She is " Different Kinds of Cake...850-496-5308. If you would like to call her, perhaps she can answer your questions.
  6. Food not too appealing today, so I am having a Wendy's vanilla frosty! Putting a chuck roast in the crock pot for tomorrow. I am allergic to cooking on Sunday. Actually, between church and having to travel an hour each way, and then another meeting in town at 4:00, I don't have the time. Our church has food after service but with this new eating deal, that...
  7. Thank you for the info on the book. I have it on my order list! I, too, have always had an interest, in research, medicine and thinking outside the box of the natural when possible..if the 2 forces would join, we could really get a lot accomplished in the cures. From my childhood background...medicine and sense were taught to me. Thanks again. P
  8. You have had a time with this. I am glad the spleen thing worked for you. I have been reading that it did not have as high a % of success as they had hoped. Can't remember where I read that..have read so much over the last 2 1/2 years..I am glad you are keeping those numbers up. Thank you for the articles...Shared with my doctor yesterday.
  9. Wow ..you could be in one of the medical journals. There is so much info coming out almost on a daily basis, I hate to get irritated with docs not keeping up, I believe, if you want a job..you need to do the job. Keeping in mind also, just because a study is performed, does not make it true/valid. It must be redone over and over..this is why it takes us...
  10. Thank you Irish Heart...is never ceases to amaze me at how much we can learn when we read literature from other countries. They are so far advanced perhaps because they do not have the amount of government inclusion. I have, over the years, had the need to research many medical things. This has always been the case, in my experience. Thanks for these..was...
  11. What great information you provided. You are really on top of this stuff!!! Thanks.
  12. I was wondering if anyone else out there has been diagnosed with ITP..low blood platelets and has there been a confirmed correlation between Celiac and ITP. I have a doctor who believes there is and I read an article that briefly suggested it on the PDSA newsletter.
  13. Gee, I think I gained 10 lbs just reading your post! I do the Ensure plus..that is a good 350 calories right there..Liberte yogurt is also a high calorie one, if you can tolerate. I had 2 pieces of bacon with my lunch on the sandwich. I think you may have everyone on here doing a bacon run!! Thanks for your input. P
  14. You are on the treasure coast, I on the emerald coast. We are just coasting along! Keep up the good food ideas and I can feel like we are having dinner.
  15. well, so much for that idea, I am up in the panhandle.
  16. thank you Laura..I hope everything continues to go well for you, man girl you have your hurdles..I am going to add you to my prayer list if that is ok with you!
  17. what a hoot...I am from NY ( Long Island) ...many years ago came to Fl to attend college. I am still a FL gal
  18. Sherry Lynn was mentioned in another post...she must be quite the lady!! I need her!
  19. Maybe I need to borrow Sherry Lynn for about 6 weeks!
  20. No, we do not have one. I think the closest thing I may find with be at Fresh Market. So I am using the frozen UDI bagels, with are not and and the UDI bread..not fond of the texture of that. There is a Fresh Market about 45 miles from me. Am planning a trip over soon. You must live in a nice sized place to have a gluten-free bakery. That is awesome.
  21. I had a few days of felling just like that..all I was doing was eating! Keeping track of everything I eat and have been doing that for 2 years. There are a lot of things I can't eat as I have ITP (low blood platelets) and many foods naturally lower ones platelets, plus I can't taste or smell..so eating is more of a pain in the butt than a joy it was many...
  22. Again some wonderful ideas! Protein smoothies I do ...when I think about it...but must really watch the time of the day or it can kill meals! Thank you..I do Liberte yogurt that is the highest calorie one out there that I have found. Found that about 2 1/2 years ago. My weight was staying at about 111..then I started having GI problems again and the decline...
  23. Thank you so much for your input. I will certainly take your advise. Last week, I was eating every 2 hours and felt well but found I was eating all the time. I know some people would not consider that a curse. Re the spices, I was reading that many spices have adds ons in them and this can be a problem for some people. Also read about cross contamination...
  24. I have read about many people gaining weight on Celiac diets. I find I am losing too much and I do not have the weight to lose. Can anyone suggest foods that are higher in calorie intake? Often I am dealing with a very full feeling and nauseated sometimes...so this does inhibit the food intake. I am sticking to this Celiac plan to the T, including all the...
  25. Laura, I noticed you mentioned IVIG. I am new to this Celiac forum so there is much I do not know about this disease. I hope I am not being too personal but is the IVIG ever used for Celiac or is this another disorder. I also have ITP and my hematologist has suggested that IVIG may be in my future. Would love to hear your experience with it. Thanks Patti...
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