Sunshine Sassie

Hi Mrlkandee, I'm sorry to hear about the rough time you've been having! I can't imagine how challenging it must be to have Celiac without having symptoms that let you know that your body is reacting to gluten. As much as I hate having symptoms, I can always tell when I've ate something with gluten and then can avoid it to prevent pain/damage/havoc in...

Hey there littleburgy, I've been playing the "chase the diagnosis" game as well recently! I just had an endoscopy with a negative biopsy and my blood work couldn't confirm or rule out Celiac due to my IGA deficiency. I possibly could have Celiac or NCGS but I know my reaction is negative towards gluten. I understand how frustrating and confusing it can...

Hey Casy, I'm in the chronic constipation club as well so I thought I'd say hi. We share a lot of symptoms (constipation with mucus, gas, bloating, rash, problems with menstrel cycle, I even have those cracks at my mouth!) I just finished up with a lot of testing and my conclusion so far is that I am either Non Celiac Gluten Sensitive or early stages of Celiac...

Hey firsttimemama2014, I was just checking the forum to see if you had received your results; I wasn't even aware that inconclusive could be a result and that is even more frustrating than my results! After being told I most likely had it my biopsy came back negative and I was more confused than ever. I started a new topic titled, Can I Officially Rule...

murphy203 I am so happy you received some answers! But I am also sorry that you do have the disease that can cause you damage. I know we're both in the same mind-set when you say you need more assurance because of how much involvement is required to live the rest of you life gluten free! It's daunting how much work ahead it would be avoiding cross-contamination...

Murphy203 I can't imagine how much more frustrated I'd be if I had tested positive and still did not receive a diagnosis! I'm glad you're having more tests done and I know it's in a month and a half but I hope you'll post what you're results turn out to be. And Triticum Toxicum, you're describe exactly how I feel...I've constantly questioned myself too...

Sorry to hear that murphy203, what were your results? And thank you BlessedMommy I've read in your posts that you could not finish the gluten challenge to get tested because of your high sensitivity to gluten I guess all that matters is we feel better. I think I'm most upset about not having a reason for the cause of my chronic constipation. I thought...

Hi out there, I recently posted about my fears of having an endoscopy/colonoscopy done; I completed both last week and afterwards the doctor told me she thought I had Celiac because of how my small intestine looked (mucusol changes, suspect celiac is what the report said). The results came back negative. I'm confused why she told me she thought I had it and...

Hi LeahRuth, I am sorry you are feeling so unwell and it sounds like you are in tough situation since all of these tests are so expensive. I am also in my early twenties and have spent years without insurance until recently; it is very frustrating I have been following this board for almost a year and I hope it can help you like it has helped me. I...

Thank you to jddh and Gemini for giving me some feedback about the possible outcomes of my biopsy. I'm still in the mind-set of "I don't want anything to be wrong, but I want to find something so I can have a solution" lol Firsttimemama2014, what are the odds we had our endoscopy done on the same day! I certainly want to know how your results come back...

Hello and a big thank you to everyone who replied to this post! I apologize for posting so late; shortly after I started this topic my state was hit with a huge ice/snow storm that left my parents and grandparents without power for almost a week! Everyone is now with power and the snow has melted for now Every one of you who posted made me feel more...

Hi everyone, I'm scheduled to have my first colonoscopy (for chronic constipation/abdomen pain) and endoscopy (for Celiac testing, low IGA) in March. I've been waiting to have these tests for almost three years (finally have insurance) but now I am so scared and nervous. I'm 26 and have only been put to sleep once to have my wisdom teeth removed. I think...

Thank you so much for taking the time to help me Squirmingitch. I really appreciate it, you've been very helpful and I'm going to read through these posts to learn more about D H and if I can identify with it or not.

I'm sorry to hear you both suffer from D H What I meant by "does it lose it's itch" was does the rash ever come to a point where it's still physically there but no longer itches? I know that sounds strange but mine has kind ve become crusty and has completely stopped itching. I'm relieved the uncontrollable itch has subsided but I can't figure out why it...

I apologize I spelled you name wrong in my last post (Squirmingitch). Do you have D H ? If you do does yours lose it's itch?