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Sunshine Sassie

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Everything posted by Sunshine Sassie

  1. Sunshine Sassie
    Hi Mrlkandee, I'm sorry to hear about the rough time you've been having! I can't imagine how challenging it must be to have Celiac without having symptoms that let you know that your body is reacting to gluten. As much as I hate having symptoms, I can always tell when I've ate something with gluten and then can avoid it to prevent pain/damage/havoc in...
  2. Sunshine Sassie
    Hey there littleburgy, I've been playing the "chase the diagnosis" game as well recently! I just had an endoscopy with a negative biopsy and my blood work couldn't confirm or rule out Celiac due to my IGA deficiency. I possibly could have Celiac or NCGS but I know my reaction is negative towards gluten. I understand how frustrating and confusing it can...
  3. Sunshine Sassie
    Hey Casy, I'm in the chronic constipation club as well so I thought I'd say hi. We share a lot of symptoms (constipation with mucus, gas, bloating, rash, problems with menstrel cycle, I even have those cracks at my mouth!) I just finished up with a lot of testing and my conclusion so far is that I am either Non Celiac Gluten Sensitive or early stages of Celiac...
  4. Sunshine Sassie
    Hey firsttimemama2014, I was just checking the forum to see if you had received your results; I wasn't even aware that inconclusive could be a result and that is even more frustrating than my results! After being told I most likely had it my biopsy came back negative and I was more confused than ever. I started a new topic titled, Can I Officially Rule...
  5. Sunshine Sassie
    murphy203 I am so happy you received some answers! But I am also sorry that you do have the disease that can cause you damage. I know we're both in the same mind-set when you say you need more assurance because of how much involvement is required to live the rest of you life gluten free! It's daunting how much work ahead it would be avoiding cross-contamination...
  6. Sunshine Sassie
    Murphy203 I can't imagine how much more frustrated I'd be if I had tested positive and still did not receive a diagnosis! I'm glad you're having more tests done and I know it's in a month and a half but I hope you'll post what you're results turn out to be. And Triticum Toxicum, you're describe exactly how I feel...I've constantly questioned myself too...
  7. Sunshine Sassie
    Sorry to hear that murphy203, what were your results? And thank you BlessedMommy I've read in your posts that you could not finish the gluten challenge to get tested because of your high sensitivity to gluten I guess all that matters is we feel better. I think I'm most upset about not having a reason for the cause of my chronic constipation. I thought...
  8. Sunshine Sassie
    Hi out there, I recently posted about my fears of having an endoscopy/colonoscopy done; I completed both last week and afterwards the doctor told me she thought I had Celiac because of how my small intestine looked (mucusol changes, suspect celiac is what the report said). The results came back negative. I'm confused why she told me she thought I had it and...
  9. Sunshine Sassie
    Hi LeahRuth, I am sorry you are feeling so unwell and it sounds like you are in tough situation since all of these tests are so expensive. I am also in my early twenties and have spent years without insurance until recently; it is very frustrating I have been following this board for almost a year and I hope it can help you like it has helped me. I...
  10. Sunshine Sassie
    Thank you to jddh and Gemini for giving me some feedback about the possible outcomes of my biopsy. I'm still in the mind-set of "I don't want anything to be wrong, but I want to find something so I can have a solution" lol Firsttimemama2014, what are the odds we had our endoscopy done on the same day! I certainly want to know how your results come back...
  11. Sunshine Sassie
    Hello and a big thank you to everyone who replied to this post! I apologize for posting so late; shortly after I started this topic my state was hit with a huge ice/snow storm that left my parents and grandparents without power for almost a week! Everyone is now with power and the snow has melted for now Every one of you who posted made me feel more...
  12. Sunshine Sassie
    Hi everyone, I'm scheduled to have my first colonoscopy (for chronic constipation/abdomen pain) and endoscopy (for Celiac testing, low IGA) in March. I've been waiting to have these tests for almost three years (finally have insurance) but now I am so scared and nervous. I'm 26 and have only been put to sleep once to have my wisdom teeth removed. I think...
  13. Sunshine Sassie
    Thank you so much for taking the time to help me Squirmingitch. I really appreciate it, you've been very helpful and I'm going to read through these posts to learn more about D H and if I can identify with it or not.
  14. Sunshine Sassie
    I'm sorry to hear you both suffer from D H What I meant by "does it lose it's itch" was does the rash ever come to a point where it's still physically there but no longer itches? I know that sounds strange but mine has kind ve become crusty and has completely stopped itching. I'm relieved the uncontrollable itch has subsided but I can't figure out why it...
  15. Sunshine Sassie
    I apologize I spelled you name wrong in my last post (Squirmingitch). Do you have D H ? If you do does yours lose it's itch?
  16. Sunshine Sassie
    Thank you for the quick response Suirmingitch! and thank you for the great advice! I did not know the lack of gluten consumption and the steroid shot would interfere with the diagnosis. I'm sure glad you replied you saved me and my insurance some money on a wasted dermatologist appointment. I wish it was easier to rule out/get a diagnosis of Celiac!
  17. Sunshine Sassie
    Hi everyone, I've returned after a few months seeking some more helpful advice. I learned a great deal of knowledge from here and I must say this is a top-notch forum! I am currently diagnosed with IBS-C and have been following some other forums but I must say this is by far my favorite! Everyone who responded to me in the past were more than supportive...
  18. Sunshine Sassie
    Hi everyone, I had my first GI appointment today (for colonoscopy) but the GI seemed to think my case wasn't severe enough to do a colonoscopy; or any other tests. I am pleased to hear that information (was not looking forward to a colonoscopy) but disappointed that he would not run any other test (x-ray, etc.) I feel like I am in too much pain for it...
  19. Sunshine Sassie
    Hi Lorrie, I can relate to a lot of your symptoms (chronic constipation, intestines feeling like steel, boating).I do not know if I have Celiac disease, Non-Celiac gluten sensitivity or just IBS (my first G I appointment is next week). But I can relate strongly to the overwhelming feeling and crying at the dinner table You are not alone! I get so discouraged...
  20. Sunshine Sassie
    Hello again I went to the doctor today to get my print out of blood work results and it did help me understand them better but unfortunately I became confused once again. Celiac Panel 10 RESULTS ABNORMAL CLASS IgA 68 mg/dL LOW (Reference Range 69-380) Endomysial Screen ...
  21. Sunshine Sassie
    Thank you nvsmom for more advice on what to do next I called the doctor today and asked what specific blood tests I had done. She started going through the list and when I asked her about the Celiac she said that it came back abnormal so they ran more tests to see if I had Hepatitis; which was negative. When I asked what it meant for the Celiac test to be...
  22. Sunshine Sassie
    Thank you so much to nvsmom and NatureChick for taking time to give me some insight for my symptoms. Your advice really brightened my day and it is very helpful to hear the opinions of other's who are more advanced on this topic than myself. I have continued to eat gluten free and feel like a new person. I do not feel like a person who has anything wrong...
  23. Sunshine Sassie
    Thank you for your response! It is nice to find someone who has noticed this. I am not sure if mine is this or not (currently being tested for Celiac) but it's nice to know it's a possibility and not just in my head. I have had an uneven small bulge in the middle of my stomach for sometime now and it has grown in size. Nothing dramatic enough for anyone to...
  24. Sunshine Sassie
    Hi guys I am still new to learning about Celiac disease. I don't understand what it means for the intestine to become inflamed? What physically happens to it? Does it swell up or just become irritated? Can it swell up to the point where you can notice it from the outside of your body?
  25. Sunshine Sassie
    Hi guys, I am excited to post on this forum and talk to people who are feeling like I do! To make a (long) story short I'll give the rundown of my symptoms. I've always had difficulty with constipation (never will get the urge) but in the last two years it progressively has gotten so bad it has controlled my life. I have been able to get it somewhat under...
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