klemmen

Hi Klemmen--Sorry you feel so sick! If it were me, I would stop the fiber supplement. It is clearly not helping the situation. What is your diet like? For D, banana, cooked veggies, lean meat and poultry, applesauce, Cream of Rice are good choices to calm you system down and slow things a bit. Be sure to drink water to replace the fluids you are losing. Tea is also soothing. Are you on an iron supplement? Those can also be hard on the stomach. Hope you feel better soon

Hey Jerseyangel, thanks for replying. Yea my diet is pretty basic, been having problems for ages and cut out all dairy, so been eating natural foods, like nuts,quinoa, rice, vegetables etc. The dr said the fibre thing would help urgh, nevermind. He gave me iron tablets yesterday but i haven't started to take them yet because i wanted my body to get used to this fibre supplement. Maybe it is best to stop it.

Thanks

Hey

I was hoping someone on here might have some advice, i'm guessing a lot of people have taken fibre supplements. the dr gave me fibogel to take and it is causing so much pain. I have the worst gas ever and am bloated so much more than normal lol and my stomach is hurting soooo much. I feel like i am going to be sick, maybe thats just because it tatses so gross lol Has any had this problem? he gave it to me because i have loose bowel movements and it hasn't stopped the problem, i've only taken it for a few days, but wondered if i should just stop?? it's made it all worse not better, always running to the bathroom. The dr was so annoying my iron level came back at 6, and he said it is because i must still be eating gluten and doesn't believe i'm not. it's so frustrating.

do you think you just needs to get used to taking it??

hey

we have a little gluten-free food directory so i looked them up it that for you...

the birds custard powder is gluten-free, the crunchie is, in the quality street it only lists the big green triangle and the big toffee finger which i think are sold separately not in the assorted tubs...

and the heinz sauces listed are Carb check: bolognese pasta sauce, creamy tomato sauce, tomato and basil pasta sauce, Planet cook: spanish chicken cooking sauce 300g, squashed tomato pasta sauce 300g, tikka meal simplifier 300g, tomato and chilli pasta sauce 300g, tomato and pesto sauce 300g, tomato and sweet pepper pasta sauce 300g.

I couldn't find the ribena listed but i couldn't fins any drinks listed, so i'm afraid i don't no that one. Are the products shipped in from the UK? just cos they use different ingrediants for the same products in different countries sometimes. If you want to know anymore gluten-free english food i can look it up in the book thing for you, cos i'm not sure which products are widely available to you.

oh i just googled it and it says that ribena is suitable for coeliacs

enjoy the food : )

thanks for al the suggestions I feel more positive now knowing I can do more..quinoa, tofu, cocunut etc, i got some quinoa, thanks for all the different ways to do foods! will definately try them, i need to learn to do more food things and will try quinoa instead of rice for a while and see if that works, and i bought an advocado (i'm so uneducated i had to google search what one would even look like lol )

I had been keeping a food journal but a really basic one but thanks for the way you lay yours out ms_sillyak_screwed, i think i might do it more that way to get an idea, i'm sure the people i live with will appreciate the extra info hehe

I'm quite sure i don't get cc from anywhere, cook separately etc It really isn't so easy to change dr's in the uk where i live, i'm with an NHS Dr and it's the only surgery for ages, my sister said go to a private one to just find out what's wrong but i would imagine that would be so expensive. I think i will look in to digestive enzymes, keep a good food journal, try these foods and hope i get better.

really thanks for your help

thanks for your replies

I'm glad you said nini you can still be a vegetarian because I've been worrying that might be my only option. I don't eat any processed foods and have been keeping a food diary but since cutting out dairy there is no real indicator of what it is. My weight hasn't gone down significantly, problems started again in February and since then I have lost about a stone..err not sure what that is in kilos but only 14lbs or so.

At the moment I just eat fruit and veggie wise, broccoli, green beans, peas, cucumber, bananas, and sometimes peppers. For some reason peanuts, carrots,sweetcorn, onion and leek all react badly with my stomach lol. I've been cooking all the vegetables really well. I don't mind keeping things simple for seven months or so I just want to be able to actually leave the house, especially without the constant worrying.

where do you get rice protein powder from, I haven't heard of it before?ooo smoothies would add something with taste lol What's Quinoa? and I hadn't thought of eating coconut...I didn't realise you could buy them : / We just have a Holland and Barret health food shop where i live (UK), it's so expensive, i can't find another health food store : / but i think i will go take a better look in H&B

Most of you mentioned nuts and seeds, like any nuts or seeds? I always assumed nuts would make things looser? so thats why i didn't eat them, the same reason for advacados. Maybe i should think less about the effect a food might have on me, perhaps thats part of the problem : /

Lorka150, did you feel better after seven months? What are nut butters?

I don't no what to eat anymore without getting D or feeling ill! I cut out all dairy and realised that that was definately a huge problem but it's been a while since i've had any dairy and when i eat I still get D, not all the time but a lot of the time. It is getting frustrating because most of the time its at the point where i can't leave the house, and i need to work and study! I've been to the Dr and he keeps insisting that i'm still eating gluten or that i must be getting gluten from somewhere, which I am definately not. He won't test me for any other intolerances and when i told him how i react to dairy he said no it has to be from gluten. I am a vegetarian and I have tried to eat meat again but i can't do it, and I know if i ate meat or fish I would have a lot more options but i reaaally have tried to eat it and can't bring myself to lol. The Dr keeps telling me to come back in two weeks if symptoms carry on, and I have been back but he looks and speaks to me like i am an idiot wanting attention, it is so frustrating! He tested my stool for bacteria and there wasn't any there. All i am eating is basic foods, some fruit, mostly vegetables and rice, potatoes. I know I eat too many carbs but if i cut them out it leaves me with fruit and veggies so now i don't no what to do, I am so tired all the time but i think its lack of a balanced diet lol the dr tested my iron levels and he said their fine, so i really want to sort out my diet so i feel better and can leave the house lol It's at the stage where if I know I have to be out the house I won't eat the whole day so I know there won't be a problem, hmm i don't know. Maybe there are more foods thank i realise without dairy, eggs, meat and gluten???

this is a really interesting post.

i think mine got 'triggered' when i got pleurisy, before getting that ther only times i'd ever been ot the dr was for vaccinations, mum used to just call me the carrier because everyone else would get ill and i was always so healthy. That was when i was 19, a year ago, and since then i've never been healthy again lol. I guess my bodys making up for the overdose of good health i got

i don't have any advice lol but i get them in the stomach too, well just under my right breast..soooo annoying lol hope eating the bananas works for you

hey, as far as i know gelatine is just from animals and is made from the boiled bones, skins and tendons. umm nice. thats why i'm a veggie lol so just something to look for if u r a veggie not a celiac.

Congratulations! i'm very happy for u

yep on the very rare occassions i do walk away feeling quite uplifted it doesn't take much to make my day a good day if it starts off with a good BM!

hello,i am sorry you are having a rough time. I don't know how useful this is but as i never thought i would have celiacs disease, i just assumed i had picked up some infection that just wouldn't go away and they could give me something and it would clear up, and when they said celiacs, i have never been so relieved, just give a name to everything after feeling so ill, and as it took so long to get an appointment for an endoscopy (about 8 months and even then it was a few moths before my intial date scheduled) i just cut out a large amount of gluten as it really made me feel ill, so when the celiacs was confirmed, the change in my diet wasn't so big for me, and i remember just being extra happy i knew what was wrong. Sometimes it bugs me that i seem to be able to eat less and less food as less agrees with me but my mums a nurse and i remember her telling me about a lady who hadn't been allowed to eat for years and she was only allowed to suck icecubes..and i think of that and realise how lucky i am to be able to eat even if it does go right threw me

Maybe your emotions are just finally a release of everything now that you finally have a diagnosis, I think trying to prove you have celiacs to a Dr must be draining, as you said you have a lot of medical expensive and you feel unsupported by people, as well as adjusting to a new diet, which i would say would be pretty tough on the emotions. Regarding symptom change it has only been five days, and it takes a while for things to heal so don't worry about that, just see how it goes, and i'm sure you will start feeling better. Perhaps while you adjust to the diet, you could limit eating in restaurants or if out with friends take a lunch with you, and that would ease off you having to explain your diet, if like you said you are worried about that at the moment, and then when you get more used to what you can eat and you're feeling better you can eat out?

I know my doctor just did the bone density scan for routine value, considering our absorption is greatly decreased, and mine did show bone thinning, as i'm in my teens i guess thats not good, but don't let it worry you, as perhaps its routine also..i'm not from the US, so i don't no if these are done just to see after your diagnosis. I don't think it's irrational to think about not being able to eat other food, but as with gluten and dairy or casein or foods that you've found you can't eat, you adjust...before i was diagnosed a main part of my diet was bread...and now i don't even miss it, or want to eat it....however not eating chocolate..wellll

maybe just take things one bit at a time, and see how they go, i'm sure as your body adjusts and you start feeling healthier, you will feel more high spirited, and i don't know if it would help as i don't know your family but maybe expain to them how hard things are as they might not realise. Sometimes i know for me, i assume when something is bothering me my friends or family should know but unless you tell them i guess how are they meant to, to someone who doesn't have to cut all the foods out of their diet or incur huge medical expenses...it might not seem obvious that it would be a problem. I don't no, i have never been good at explaning but i hope you start to feel better soon

Hum, well after going gluten free I don't feel much better but .... what i do like about being gluten free and not feeling much better is that after ages of never having enough time to read, i now find me and the bathroom have become quite well aquainted with many books... .sooo maybe it's made me more intelligent . No erm it's made me more aware of the foods i eat...always thought i ate quite healthy on a veggie diet but when i started reading the labels tut tut all the extra rubbish inside....and it has given me an opportunity to learn to cook..not that i have taken up that one yet

and i found this board and therefore would never have been able to read such an interesting thread such as Sex and Celiac tooooo funny

it was me..lol might have to steal the phrase bubblehead for future use with people lol its got a nice ring to it.

Yea it didn't bother me i couldn't eat any of the food, not really, just the are you sure you can't eat a little bit part...lol They did indeeeed get the reference and said couldn't i have said that after they had eaten it..hehehe...but then what would the fun in that be!? at least with that food they know that there is not much in the way of digesting involoved blurgh

Lillyth i hope you can eat your little eggs..maybe if you have eaten a few and you are okay..they are okay?? I hope your phonecall to hersheys ended with u being to eat them..ummmm yum chocolate

i have to say i wasn't visited by the easter bunny of any sort, but my friend did give me some teabags he didn't like, and they arn't staring at me. We all had an easter lunch too, and there was this gluten filled chocolate cake they bought staring at me, and then they ate it.."oooh this is so sweet i dont no if i can eat it all"...and one of them left a little bit on their plate...and grrr who leaves chocolate cake if u can eat it!!! especially when it's staring at me. I was offered croissants too and this disgusting black kinda liquid bread stuff you have with icecream..and someone said to me can't u just eat a little bit so you know what it tastes like..and after politiely saying no i forget how many times to all the gluten food...someone said to me just have a little bit what harm can it do..and i pointed at the black liquid bread and said.."that". (Open Original Shared Link) I wasn't offered anymore food.

soo funny...the page on Fart facts...how to muffle the sound of a fart...too funny.

haha i LOVE that sound clip

ahh thankyou Robix, great way to brighten up a day

lol my mum just told me off for playing that sound clip, and said i should be grown up enough not to find 'flatulence' funny... i don't understand how people don't find it funny lol

wow that is awful that it took so long to diagnose your husband, and i can only imagine how stressful it must be for you and him both. Although as you said he finds it very hard to adjust to a new diet now, on the positive side he will regain so much health you would hope. perhaps you can find an alternative to oatmeal that has a similar consistency..i don't know if anyone knows of one here? was never an oatmeal fan Although the diet may seem daungting (sp?!) there really is a lot og gluten-free products available, and a lot of information, most of which i can thank the people on this board for

I hope your husband starts to feel better soon and happy spring! (finally!)

that is so cute there is gluten free in it

Hey Taylor

coool your off to edinburgh, i lived there for the last three years, i've never eaten in these restaurants so i can't say how good the food is, but they serve gluten free...I googled it for you to find a few....so maybe they aren't so good, but I hope it is off some help.

1. David Bann 56-58 St Mary's Street which is just off the Royal Mile and the Cowgate...vegan and vegetarian and they tell you which ones are gluten free. i've walked past this soooo many times and it look quite good...lol

2. Henderson's of Edinburgh, 94 Hanover Street which is off Prince's Street....vegan and vegetarian and also some gluten free food

3.Fishers, 58 Thistle Street, said to have really friendly staff and don't make a fuss when you ask for gluten free food, prepare everything from fresh...

4.La Tasca Tapas Bar, Omni Centre...a great one...clearly m arked gluten-free and DF on menu with ingrediants listed....not hard to find in Edinburgh, quite central

5.Browns, 131-133 Georges St. Says friendly to gluten free diet, but no suitable desserts avaialble.

6.Always Sunday is at 170 High Street on the Royal Mile says "The café caters particularly for vegetarians and wheat, gluten and dairy- free diets." sounds good! and is really central on the tourist bit...well all of edinburgh is the tourist bit it's so small lol

7.L'Amore D'Italia, 97/101 Fountainbridge...italian restaurant, gluten free pizza and pasta...maybe a wee bit out of edinburgh...not too far, get there on a bus or if u like walking

which hotel are you staying at? maybe you could phone ahead and ask the restaurant there if they could cater a gluten-free diet?

maybe google some more if these arn't so good. Some places i've been in edinburgh are so bad at gluten free food, i went to TGI's and they gave me mash..just a scoop of mash while my friend ate a whole plate of nice food There are a lot of restaurants in Edinburgh, and i think the veggie ones will probably have some gluten free food, so i hope you find something. I ate in a really good restaurant but i forgot the name, they made it all from scratch...i'll ask my friend and post it.

and your right, soooo many places sell gluten free food, it is really easy to get hold off and is clearly labelled, and now the new labelling law has come in

have a great time! and go up Arthurs seat! soo pretty

Hey

I'm in Finland for a while and I was wondering if any Finns here know if Snickers are glutenfree ?? or which normal chocolate is?? Everyone keeps telling me how great Fazer is, which i'm sure it is but it says might contain traces of wheat

would be great for any info

thankyouuuuuuuuu

Their tulips and toilet roll!

i live in essex too...in basildon lol i'm on a student exchange at the moment and am really really missing how easy it is too get gluten-free food in the uk..practically nothing is labelled and it is sooo expensive! i really love the dietary specials (or something in a purple and yellow box) chocolate gluten-free cake mix.. umm cannot wait to eat it again

i stopped eating rice and rice cakes and ate a more varied diet and things improved. I stopped drinking peppermint tea because i thought maybe it could have barley malt in and it not be listed, and today i went into the shop to buy some rice cakes to see how things would go and they have gluten listed!!!!!! They never did before..how can they just decided to list it!!! I stood in the shop looking stupid, half laughing...this whole time since september i have gradually been eating gluten...unless they just started putting guten in it?? ??

so now i'm half relieved and half really really annoyed at myself. They previoulsy had gluten free written on them..i dont no why they decided to change it, maybe they got more honest or do u think they changed the ingrediants???

i cant believe ive been eating gluten this whole time!!!!!!!!!

ohhh i love swedish fish, had a mild obssession with them when i was in the states this summer...u cant get them over here and oh gluten free gelatine free sedish fish yuuuum

wow, thankyou for all the replies! i never thought eating what i was eating could be the cause of the problem...hum thankyou for making me think about it. yep i'm a vegetarian and sometimes i think meat would be a great choice, i even went and bought a can of tuna a couple of weeks ago but couldnt bring myself to eat it yep rice cakes are labelled gluten free, and i don't drink any caffiene just peppermint tea lol

yep i have had an endoscopy but only to diagnose celiacs after the blood test. I went to the dr a few weeks ago and he always just tells me to go back in 2 weeks if symptoms carry on, and he did a stool test and found no bacteria infection and just tested my liver which was fine too. when i suggested maybe another food allergy to him, he was one of those roll your eye dr's and said of course it isn't humm lol

You're all right i do need to get some variety, i think i'll try vegetables like some of you said without so much carbohydrate : / i just hope they don't make the loose BM worse like before

have a lot of you had good results when you went to see an allergy person? no i didnt consult the dr about an elimination diet as he didnt think it was food related, and i've been keeping a food/symptom diary but nothing stands out. No i'm not taking and meds or supplements, the dr gave me Primperan (metochlorid hydrochlorid) but it didnt stop any D and just made me really tired lol. I saw a dietician six months after i was diagnosed and she just checked i was following a gluten free diet and told me to go back in six months because i was still having syptoms and it must be from either not following the diet or cc.

when i first went gluten free after a couple of months i had a slight improvement for about four months, felt really great, good bm lol and had a good gluten-free diet, then just within one week everything went bad with my stomach and its been the same since, so thats why i thought it must be food related...

thankyou for giving me some suggestions, i havent heard of this book before i think i'll check it out on amazon. i think i should go and buy some vegetables and fruit and see if it makes a difference

hey

i've been gluten free for just over a year, and for the last month i took my diet down to just rice, rice cakes and applesauce and sometimes boiled potatoes because everything i ate seem to give me loose BM or D. i thought it was dairy but when i had soya milk i was still having bad bm's. now i don't no what to do because my diet is pretty much just rice and rice crackers because everything is upsetting my stomach...even vegetables : / i've lost a lot of weight, yea probably due to what i'm eating, but i don't no what else to do. I got D today and all i ate were gluten-free rice cakes and boiled potatoes. i no i'm not getting gluten from anywhere else so now i don't no what to try : / it's really stopping me leaving the house recently grrr. has anyone else had such bad response going gluten-free? i'm beginning to think maybe it will just always stay like this

apart from my moan, i walked on a frozen river covered in snow today...i was quite proud of myself lol always thought it would be scary...i'm tip toeing on the river n this kid on one of those scooter bike things just roars past me...and i was worried i'd break the ice

Hey,

Maybe you already have these but i thought if not they are quite useful if you can't eat dairy too..

Open Original Shared Link

some of the cakes look sooooooooo good