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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hi, MisterSeth and Cycling Lady, I googled this, too, and I found these.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6741376/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ The scientists have found a link between CHS and Thiamine deficiency! They don't know which comes first, like the chicken and the egg. But...
  2. knitty kitty
    Japan pioneered microbial transglutaminase production and use it in fish paste and imitation shark fin (ugh) and lots of other things. European countries banned microbial transglutaminase in 2010. Here's one article I found that mentions products and some restaurants... https://www.healthline.com/nutrition/transglutaminase#should-you-avoid...
  3. knitty kitty
    Microbial transglutaminase acts the same as the Tissue transglutaminase (Ttg) tested for in Celiac Disease. Microbial transglutaminase elicits the same reaction in the body, intestinal permeability and damage. Here are some articles that might be helpful. I'm fairly sure food manufacturers want to keep their recipes private, so a list might not...
  4. knitty kitty
    Namaste We both want to help. My experience involves severe vitamin deficiencies. I live in a poor, rural, uneducated area. The doctors I saw were intent on writing prescriptions to make money, not in finding out what was happening to me. They did not seem capable of thinking outside the box. I had been given the gift of a university...
  5. knitty kitty
    But now there is a clue..... https://pubmed.ncbi.nlm.nih.gov/31799322/?from_term=Microbial+transglutaminase+celiac&from_pos=3 And... https://pubmed.ncbi.nlm.nih.gov/30320664/ Microbial transglutaminase acts the same as tissue transglutaminase.
  6. knitty kitty
    Cycling Lady, Oh, Cycling Lady, You say your Celiac Disease was diagnosed because you jumped on the bandwagon with your friends who were all having age fifty colonoscopies. And, surprisingly (because you had no overt symptoms), you were diagnosed with Celiac. You're an accidental Celiac! Oh, yes, you did have a bit of a stretch after the...
  7. knitty kitty
    Simon, thank you for this your link to such wonderful information from Dr. Lonsdale! I am a big fan of his! I do hope you will drop in again from time to time. Knitty Kitty
  8. knitty kitty
    Hi, Corinne, Brave girl! Cheers to you! Thanks for trying my suggestion. For a week then, no Vitamin C. Everything else keep the same. The RDA for Vitamin C is between 75 and 120 mg per day, depending on age and sex. So, while still not a large amount, it's still more than required and you've been taking it a while. Let's see what happens...
  9. knitty kitty
    Corinne, Histamine causes the adrenal glands to release adrenaline, it's the same adrenaline that's released in the fight or flight response. Adrenaline counters the histamine. Eventually the adrenal glands can't keep up and become fatigued, and then things go downhill from there. I rather doubt you'll get scurvy in three days. Not taking...
  10. knitty kitty
    Corinne, I apologize for overlooking the obvious. Are you still taking that Vitamin C? Could you stop taking it for several days and see if your symptoms improve? Excess Vitamin C can cause gastrointestinal problems. https://ods.od.nih.gov/factsheets/VitaminC-HealthProfessional/#h8 "Vitamin C has low toxicity and is not believed to...
  11. knitty kitty
    One last article about what may happen when you start taking thiamine. https://www.hormonesmatter.com/refeeding-syndrome-thiamine-deficiency/ When I started taking thiamine, I thought I was having a reaction. I felt tingling and buzzing along my arms and legs and body...it's very difficult to describe. I stopped and started with different brands...
  12. knitty kitty
    Further down the rabbit hole..... Thiamine deficiency causes mast cells to degranulate releasing histamine. https://www.ncbi.nlm.nih.gov/pubmed/9184654 "while in thiamine deficiency, increased histamine levels have been reported in the rat thalamus (79) and are associated with cell death and proliferation as well as mast cell degranulation...
  13. knitty kitty
    Corrine D., Well, then, I'm going back to my original theory, that you may have a thiamine deficiency presenting as Gastrointestinal Beriberi. You've stated "I only get digestive symptoms (pain, diarrhea) when I eat a very small amount of anything else but beef" and you cannot tolerate fillers in supplements. Those fillers are usually some sort...
  14. knitty kitty
    CCD, I found a few articles for you. Vitamin D deficiency in urticaria https://ctajournal.biomedcentral.com/articles/10.1186/s13601-018-0234-7 And... https://www.ncbi.nlm.nih.gov/pubmed/25780889 Vitamin D and Sunlight https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897598/ I can't take cod liver oil because of...
  15. knitty kitty
    Hi, Corrine D., Sorry to hear you're not improving. I've been doing some research and I wondered if any of these might help you. Some Celiacs develop a sensitivity to sulfur, sulfites in foods... https://www.doctorauer.com/paleo-diet-not-working-exploring-sulfur-intolerance-as-a-possible-connection/ You said earlier you could not...
  16. knitty kitty
    Celiac Disease causes malabsorption which results in malnutrition. Malnutrition is vitamin and mineral deficiencies. Newly diagnosed Celiacs may have nutritional deficiencies.Some can have subclinical deficiencies for years. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/ Thiamine deficiency in ALS https://www.ncbi.nlm.nih.gov...
  17. knitty kitty
    You should get tested before supplementing with Cobalamine (Vitamin B12). You need to get a baseline. MMA and homocysteine levels should be measured, as well as ferretin, folate and iron. Once you start supplementing, the test results will be artificial higher and will skew the real levels. Better to wait without supplementation in order to get an accurate...
  18. knitty kitty
    High caloric malnutrition causes obesity. The vitamins used to enrich your gluten products are often synthetic and have reduced bioavailability. There's questions as to the quantity of vitamins added. The RDA's are set too low. Subclinical nutritional deficiencies can occur. Especially thiamine deficiency. Thiamine deficiency and obesity: https...
  19. knitty kitty
    Found some more articles on Vitamin D. Vitamin D needs magnesium to work well... https://www.ncbi.nlm.nih.gov/pubmed/29480918 And Vitamin D and sunlight.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897598/ Hope this helps!
  20. knitty kitty
    Here's the study about high dose Vitamin D supplementation. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4128480/#!po=24.4681 I definitely took more than 10,000 out a day. My health began to improve almost immediately. My level has been measured as in the eighties. I try to keep it there. Being so low, it took several months to rebuild my...
  21. knitty kitty
    Yes, I was severely deficient in Vitamin D. My doctor was shocked at how low it was. He prescribed D2, which is synthetic. My body didn't like it. I got the natural form, D3. My body liked those. I craved those little capsules. I ate them like m&m's. It was crazy. However, recent research confirmed that high dose supplementation is the best way...
  22. knitty kitty
    I experienced swallowing difficulty and excessive salivation before my celiac disease diagnosis. It was due to thiamine deficiency. My dentist frequently commented on how much saliva I produced, but no explanation was given. I couldn't understand why I had such trouble swallowing if I had that much saliva. Nevertheless, everything I ate stuck in...
  23. knitty kitty
    AdmiralP, Did you have nitrous oxide (laughing gas or anesthesia)? Nitrous oxide can deplete your stores of Vitamin B12. The nitrogen in the gas binds permanently to the cobalt in Vitamin B12 and your body can't use the vitamin anymore. If you are low in B12, a dose of nitrous oxide can deplete B12 so severely you start having deficiency symptoms...
  24. knitty kitty
    I've found several articles that explains that thiamine deficiency can manifest as vomiting and gastrointestinal symptoms, especially when there's a heavy carbohydrate load. Here's one... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/#!po=70.0000 And diabetes is connected to thiamine deficiency...... http://www.hormonesmatter.com/diabetes...
  25. knitty kitty
    Wheatwacked, So glad you've taken up the Celiac Guinea Pig challenge. ? I hope you will keep us posted on your results. Might I suggest a food/mood/poo'd journal to keep track of results? And to Ldncrad, Many Celiacs have vitamin deficiencies at the time of diagnosis. Sometimes that's been the only symptom, but it's just the tip of the...
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