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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hello. Sorry you're so worried about your daughter. You're a good mom to search for answers. Hope you're ready to read some articles..... B12 deficiency can cause abdominal pain... https://www.livestrong.com/article/478308-can-abdominal-pain-be-caused-by-a-vitamin-or-mineral-deficiency/ Symptoms of B12 deficiency... https://www.medicalnewstoday...
  2. knitty kitty
    Corinne, Could you tell us which eight vegetables and the types of fish you were eating? Which fish are you eating now? How is it prepared? Still hoping to help.
  3. knitty kitty
    Hello, Corinne, welcome to the forum. You are suffering and my heart goes out to you. I suggest you talk to your doctor about "refeeding syndrome". Here's an article about it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2440847/ Basically, refeeding syndrome occurs when a person tries to go back to eating carbohydrates after a period where...
  4. knitty kitty
    Larann, Different breeds of wheat have different amounts of gluten in them. Hard wheat varieties have lots of long stringy gluten molecules, which bind together with kneading, making the dough elastic. This type of dough is good for pizza crust and crusty breads. Soft wheat varieties have fewer gluten molecules which are balled up on itself and less...
  5. knitty kitty
    There's an itchy rash associated with Celiac called Dermatitis Herpetiformis (DH). You could have the rash you mentioned biopsied by a dermatologist who is familiar with diagnosing DH. A confirmed DH diagnosis is confirmed Celiac Disease. https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/ Also, have you had...
  6. knitty kitty
    You may want to ask your doctor to check for a thiamine deficiency and B12 deficiency. Thiamine deficiency can cause fever, mouth sores and swollen ankles and legs, and heart/breathing problems. B12 deficiency can cause similar symptoms. Many Celiacs have vitamin deficiencies before diagnosis due to diarrhea and malabsorption. No, you're not trying...
  7. knitty kitty
    John Spoolman, Tannins bind with the B vitamin called thiamine (B1). Without thiamine, certain neurotransmitters can not be made to function. Without these neurotransmitters (some of which help your brain to chill out), you can experience insomnia. Chronic thiamine deficiency has been proven to be a factor in hypo and hyperthyroidism, and diabetes...
  8. knitty kitty
    Mushrooms, egg yolk, and liver are good sources of vitamin D. So is cod liver oil supplements. Here's a helpful page.... https://www.vitamindcouncil.org/about-vitamin-d/how-do-i-get-the-vitamin-d-my-body-needs/#.XXXBLt9Ompc Hope this helps!
  9. knitty kitty
    Sounds like Mast Cell Activation Syndrome to me. All the foods listed in the article are known mast cell degranulation triggers (those foods cause mast cells to release histamine). Mast Cell Activation Syndrome can cause elevated IgG and IgE readings.
  10. knitty kitty
    https://www.ncbi.nlm.nih.gov/medgen/14368 https://www.ncbi.nlm.nih.gov/pubmed/30390734 https://www.ncbi.nlm.nih.gov/pubmed/10844495 https://www.ncbi.nlm.nih.gov/pubmed/8445075 https://www.ncbi.nlm.nih.gov/pubmed/15412276 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3418983/ https://jamanetwork.com/journals/jamadermatology/article...
  11. knitty kitty
    The OP always includes " this is not medical advice" in his closings. Some of us are intelligent enough to connect the dots even though we don't have medical initials after our names. There is a strong correlation between loss of niacin and worsening of Celiac symptoms. It might not be cause and effect. It might be "which came first the chicken...
  12. knitty kitty
    Here's an article on some of niacin's effects on health.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5966847/ Perhaps niacin deficiency just goes by other names now...... https://www.ncbi.nlm.nih.gov/pubmed/7920332 Just like Celiac Disease used to be only diagnosed in thin, "wasting away" people and now includes people who are normal...
  13. knitty kitty
    Rhyo9, Sorry to hear about your daughter's illness. She tested positive for Celiac Disease. Many Celiacs have vitamin and mineral deficiencies when first diagnosed because Celiac Disease causes malabsorption which results in malnutrition. Intractable vomiting can be a symptom of a vitamin deficiency. Thiamine (vitamin B1) deficiency, niacin...
  14. knitty kitty
    TrailWalker, Welcome to the forum. You've found a good place to get good advice. I agree with GFinDC. Get to a doctor who has experience with Celiac Disease. Celiac Disease is not an allergy. You do not need to be seen by an allergist! Your symptoms sound similar to the ones I had before my diagnosis. I had Sulfite/Sulfate Hypersensitivity...
  15. knitty kitty
    Yes, I think you should have an endoscopy, not to diagnose Celiac Disease, but to examine the amount of damage done to your intestines and to look for other possible problems like atrophic gastritis. Cycling Lady's atrophic gastritis was only diagnosed with an endoscopy. Atrophic gastritis contributes to anemia. And anemia is related to thyroid dysfunctions...
  16. knitty kitty
    Yeah, WheatlessAdventures! I'm so happy you're feeling better on the AIP diet! So happy, in fact, I'm putting down my knitting and dancing! Won't you join me? Knitty Kitty
  17. knitty kitty
    WheatlessAdventures, So happy to be of help! Yes, the AIP diet does seem to be a bit restrictive, but I adopted the mantra "eat to live, not live to eat" and reminded myself often I was healing on the inside. I couldn't see it but I could feel it. I found eating small frequent meals the norm at first. As you heal, you'll absorb more nutrients...
  18. knitty kitty
    And no dairy
  19. knitty kitty
    "Also, any suggestions for healing myself. I'm severely fatigued with headaches and cracks in the corners of my mouth, severe stomach pains and bloating (especially after eating anything), and horrible depression. " WheatlessAdventures, welcome to the forum! Many newly diagnosed Celiacs have vitamin and mineral deficiencies. Talk to you...
  20. knitty kitty
    Low Vitamin D levels will cause menstrual cycle irregularities, amenorrhea, long or short periods, and infertility. Please get your Vitamin D level checked!
  21. knitty kitty
    Anesthesia used during endoscopy, surgery or dental procedures contains nitrous oxide. Nitrous oxide combines with the cobalt in B12 (Cobalamin) in a way that's irreversible. The nitrous oxide combines permanently, leaving you deficient in B12. If you have low stores of B12, deficiency symptoms may not appear for days to weeks later when the B12 stores...
  22. knitty kitty
    Oh, and stay dairy free for a while!
  23. knitty kitty
    Here's an article that explains the gluten - gut - microbiome connection thoroughly. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/ And here's a study done on the connection between low vitamin B12 and OCD. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3271502/ And B12 deficiency and hypothyroidism: https://www.ncbi.nlm.nih...
  24. knitty kitty
    Hello, sorry to hear you're having ongoing challenges. Some Celiacs do take longer to heal and because you're having problems with mast cell activation syndrome, you may not be recovering as quickly as you would like. Correcting your vitamin D deficiency will help stabilize those pesky mast cells. Do get your vitamin D level up to 75 nmol/l or...
  25. knitty kitty
    I think it's related to a deficiency of Essential Fatty Acids (EFA's). Celiacs often have trouble absorbing essential nutrients, especially fat based nutrients like EFA's, vitamins A, D, E and K. You might try adding healthy fats to your diet like cod liver oil, flaxseed oil, olive oil, or hemp oil (not CBD oil although that has benefits, too). ...
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