Jump to content

fetchfelix

Advanced Members
 View Profile  See their activity

  • Posts

    31

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by fetchfelix

  1. fetchfelix
    I run / walk most days, Im not taking iron and orange juice is REALLY bad for blood sugar! I do take probiotics too but maybe I'll try another brand. Thanks. Felix
  2. fetchfelix
    I tried searching this here but couldn't find much and what did come up wouldn't load. Anyway, diagnosed Celiac 1 year ago, been gluten-free since Jan, also diabetic so I've found this very difficult to cope with. I work irregular hours and am on the rd a lot and have little ability to keep food safely with me so its very challenging. I was never symptomatic...
  3. fetchfelix
    I will soon be traveling to NC and have to drive back and forth a couple of times over 1000miles round trip. I usually eat at Dennys and places like that.........just wondering if there's a site that lists places on routes etc, or if anyone can recommend particular fast food places that are useful? Felix
  4. fetchfelix
    Thanks yawl
  5. fetchfelix
    Newly confirmed Celiac with Type II Diabetes and Barretts disease. Having to radically changed everything we cook - any suggestions for a really good cooking book or source for gluten-free food, especially for crock pot type stuff? Thanks Felix
  6. fetchfelix
    Thanks for all the replies - I saw my Celiac specialist for the first time y'day and he doesn't want me going gluten free yet anyway until I have my endoscopy next month, so that makes the whole travel thing easier anyway! Felix
  7. fetchfelix
    Not sure.......I was recommended to take some, Im asking how easy it is to buy stuff there, but I find this most unappetizing to say the least. So long as I can easily buy fruit there Im not bothered but idk yet how easy that will be. Thanks for the response Felix
  8. fetchfelix
    pot noodle type stuff that only needs hot water has been recommended to me for my trip to China coming up. I don't usually eat this stuff anyway so I wouldn't have a clue where to get it, but can anyone give me suggestions where the best stores are that might sell gluten free type will be available? Someone suggested Thai Kitchen stuff. Im not a fan of noodles...
  9. fetchfelix
    Thanks y'all, most appreciate it.
  10. fetchfelix
    Ok thats what I thought although not familiar with Red Robin and I thought I read that McDs were not gluten free, so thats good to hear. We ate out last night at Pizzeria Uno because I read it was one of the better places, although their gluten free selection was very limited.........and you couldn't have fries so its difficult to explain to an autistic...
  11. fetchfelix
    Im barely 2 weeks into my diagnosis and I;ve read a couple of times that you should avoid french fries, or at least restaurant french fries. Why is this & is there any fast food place that has gluten free fries? Im not so bothered for me but for my 7yr old with Down Syndrome who barely eats & one of the few things he loves in McDs FF, & I know...
  12. fetchfelix
    It would probably be a lot easier if I felt ill eating gluten, but as I don't notice any difference its difficult to get used to. Every hour Im thinking of more and more things I can't eat. Yes its easy to say focus on the things you can, and I know those desires and cravings will go away but its still a loss........places we can't go anymore, favorite treats...
  13. fetchfelix
    I certainly don't plan on cheating, I never did..........I just wanted to understand the options. I know my diabetes very well and as someone else said I "eat to my meter" as conventional diabetic wisdom is weak in my opinion. What can we expect from a Govt that has fundamentally gotten nutrition wrong for 30 years. Im looking forward to seeing the movie...
  14. fetchfelix
    Any iPhone Apps people have found really helpful handling this disease?\ Feiix
  15. fetchfelix
    I posted my labs earlier, my understanding is that this is pretty definitive already. The only purpose of the endoscopy is to confirm the diagnosis and see what damage has been done. I just know that due to my work schedule, and about to travel to China for 3 weeks I won't be able to get an endoscopy for a while anyway. I really don't want to bother seeing...
  16. fetchfelix
    So it looks like I have celiac disease. This is an autoimmune disease. My brother has RA, my son has CVID and celiac disease. My Mom had her thyroid removed when I was 6 weeks old (no idea why and she is iong dead). Who should I see? a GI Dr, Immunologist, or a Rhumatologist? Or all three? I read somewhere, don't change your diet until you've been tested...
  17. fetchfelix
    Thanks for the links. I already do mostly follow a whole food diet anyway, switching entirely to gluten free probably won't be too difficult. However I've learned a great deal about nutrition the last few years and I take issue with simplistic responses like "you choose what to eat and whether to be ill or not". If it really was THAT simple this nation wouldn...
  18. fetchfelix
    The hardest thing for me is going to be Catholic Mass............I already read what I need to do, but I don't like the idea of being so bloody conspicuous...................
  19. fetchfelix
    You are being helpful, and the whole reason I am here is I know pt forums are far better for getting information than most medical sites. LauraTX - my son has CVID also and gets IVIG every 2 weeks. We are certain hoping his autism & behavior issues will improve going gluten free. He is mostly non-verbal but we know he feels awful at a lot of the time...
  20. fetchfelix
    So.........for years I recorded everything I ate trying to fix my diet, & stave off diabetes, and lose weight & failed miserably, In the end I did lose 25lbs & 6" and pretty much maintained that. I haven't followed my diet in that manner for a couple of years. Just wondering if there are any APPs that help track your diet, help ID gluten products...
  21. fetchfelix
    Yeah, that would work...............I only just discovered Five Guys last year after 20 years in the USA.........its not like I go there much. I really don't eat much bread or really anything with gluten anyway, so the burgers were the 1st thing I thought of......LOL. I feel bad for my son, he doesn't eat well to begin with and pretty much everything he...
  22. fetchfelix
    I wonder if they would use your own bun if you brought it in and asked.........?
  23. fetchfelix
    What is LCHF diet? have researched diabetes and I was not impressed about the ADA recommendations. There is a lot of controversy regarding diabetic care. It is confusing for most patients.<<<<< Yes, exactly my point. I eat to my meter & know exactly how to control my sugars. For me at least the whole glycemic index is BS, my body...
  24. fetchfelix
    Here's what I was told "Your blood tests are consistent with Celiac disease. I do recommend upper endoscopy with plan for small bowel biopsy to confirm the extent of this, but regardless of findings, lifelong wheat gluten avoidance is recommended." My actual results - INTERPRETATION: SEE NOTE Serological evidence for...
  25. fetchfelix
    My Dr has told me that based on my blood tests I have celiac disease, but as I understand it this can't be 100% confirmed until biopsy through an endoscopy. I can't do that for a couple of months. I have 2 brothers, who I have little contact with. I know I should make them aware but is this something I should make them aware of now, or only after having it...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.