SurreyGirl

With you all the way AliB! The various conditions are probably a result of genetic variability. I am trying currently to understand what turns malabsorption into autoimmune diseases and so far leaky gut is one of the possibilities. And leaky gut can be caused by serious immune assault (the trigger, like serious illnes, vaccines or similar). But...

Here is my take on it, we are currently awg results of elastase and I am hoping that we have intercepted too much damage by going on the diet. It can be asymptomatic..(last paragraph). Open Original Shared Link

Hi from the UK!! When I put my son (age 15) on gluten free 2.5 years ago I knew no one in person either, we did it solely to see if his neuro symptom would respond (they did) and with no celiac disease diagnosis. Still the same now, but we know that he is is DQ1 (gluten sensitive) and I am now also gluten free to make it easier. The more I read, the...

I believe it all starts with gluten damage - and it doesn't have to be diagnosed celiac. My son is gluten sensitive (with neuro symptoms that have almost all disappeared now, 2 years + on the diet). We have recently discovered that he has low functioning pancreas and some of liver enzymes are also low. As far as I can see from observing him and from results...

if I remember correctly, the book Dangerous Grains mentions the link of celiac & lymphoma

no, there was a drug trial in UK that went badly wrong in 2006 Open Original Shared Link

thank you all, it helps to know just that little bit more, I will come back to report

My son (age 15), gluten sensitive is due to have a mole removed on the face and after much debating the docs decided to use gas. We are due to have a pre-op meeting in the next 2 weeks and op at the e/Jan. Does anyone have any experience of this? Will he be affected more (I think he might be) - or less? Of course I will be asking the docs in case...

From experience with my son I know that gluten damage can affect digestive enzymes, let alone cause multiple deficiencies. He is about to have tests for pancreatic enzymes as he has a symptom of deficiency, I also know that he has low stomach acid and quite possibly some low liver enzymes. You could maybe get some tests to check those? Or you could try...

thank you for mentioning this, spunky, I should have thought of it sooner!!

That is MOST interesting.. 2 year gluten-free and my son's test recently are still showing high billirubin and high blood urea... (explains the tan?). I have just been reading a book on nutrition and the author (Jan de Vries) talks about benefits of sweating when it comes to removing toxins, aiding liver and kidneys. Oh yes, and my son also has deficient...

Hi Meg I know this thread is quite old now, but I would like to add my recent discovery on this subject. My son (age 15, gluten sensittive with neurological symptoms that have receded in the last 2 years of being gluten free) had some bloods done recently to check how his deficiencies have improved. Some have, but we discovered that his free copper is...

I personally think that vaccines have a lot to do with triggering this in people who are genetically susceptible. Just like a severe illness, they overload immune system. After the trigger happens, it's impossible to go reverse it. Also, my dad used to work in the grain storage industry in Europe and recalls that when imported wheat was first marketed...

Sophie, great post! I would like to add that a few months ago I went to see Dr Hadjivassiliou with my son (due to ataxia). By then I had read many of his papers and other research, including from these pages. I had tears in my eyes when we met and I will be forever grateful to him for researching this subject and giving us his time. Before I found...

you say? Have you considered probiotics? The reason being that if you suffered some digestive disturbance in your gluten days, then almost certainly you disturbed healthy flora and might have overgrowths of unwelcome bacteria (there are many candidates; in my family members I have had experience of klebsiella (still ongoing) and h pylori and I suspect clostridia...