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katerinvon

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by katerinvon

  1. katerinvon
    One thing I didn't ask last night. Does he have normal BM's or loose stools? That would make a big difference in his controll ability. If his diet is out of wack and he's having loose stools, get that under control first. Then low stress poty training should work. Again, good luck! Karen S.
  2. katerinvon
    Could be he's just not ready yet. I have a friend of mine whose daughter, # 4 of six kids, was slow to train. No celiac disease in her family, but some of the kids are lactose intolerant. Anyway, she finally gave up diapers right around her fourth birthday. Her mother was begining to think she'd be in diapers forever! Maybe it's time just to relax...
  3. katerinvon
    I just read a short article on non-celiac gluten intolerance. The article stated that celiac disease is only a small part of the larger picture that is gluten intolerance. My daughter, now two, has never really shown the clasic symptoms of celiac, illness, weight loss, distended abdomen, etc. But she did have loose stools and horrible diaper rash. ...
  4. katerinvon
    Yesterday was my daughter's second birthday. I made gluten free cupcakes and took them to our evening Bible study to share. When we got there, the pastor's wife had a table set up with popcorn, rice cracker snacks, and chocolate kisses. The one small plate of regular cookies was pushed to the back of the table where little fingers couldn't help themselves...
  5. katerinvon
    I think pancakes are everyone's first effort at gluten free bread substitute. The can be made easily without gluten or dairy, and make great finger food sandwiches. Rice crispy treats can be gluten free. My daughter (age 2 today!) really likes rasins, papaya spears, crasins, rice crackers, rice based graham crackers, frozen peas, popcorn, bananas, chocolate...
  6. katerinvon
    One thing I have wondered is why people think a gluten free diet is so restrictive? People don't jump up and down about how restrictive a lactose free diet is or even think twice about giving up dairy products if they have an alergy. I don't see cooking gluten free as restrictive, just different. Our diet is probably more healthy in general because we...
  7. katerinvon
    I have a daughter age 2 on the fourth. Her Dr has said things like: It's just a virus. No even though she has sores on the outside, there won't be any damage on the inside. Everything will be fine once she is potty trained. She hasn't had any weight loss. We put her on a gluten free diet on the recomendation of the clerk at the health food store...
  8. katerinvon
    With my daughter's last major gluten exposure she had a low grade temp with lethergy, diarhea, loss of appitite, and bleeding rash. The pediatritian said intestional virus. Just before Christmas, we had stomach flue in the family. She had vomiting, diarhea, temp, no rash. On Christmass day, she got crumbs from a cookie left on the kitchen table...
  9. katerinvon
    I'm not a GI specialist, either. Ask me about wounds, I'll tell you about wounds! (My daughter's rash ulcers looked like stage II-III decubetis ulcers!) I agree, too, that we should not give up on our Drs, just not take everything they have to say as gosple. At least research what he tells you so you understand what is going on. Education is...
  10. katerinvon
    These are the same questions I have been asking, and not really finding any answers. Our daughter reacted to whole wheat bread close to her first birthday, and we stopped giving her wheat right away. We also started researching, and took her off gluten soon after. So far her only symptoms have been loose stools and bad diaper rash. Because of limited...
  11. katerinvon
    Congrats, and good for you to be willing to try something else. I've been a nurse for ten years, and I know that doctors don't have all the answers. No one could possibly be educated in every detail of everything that can go wrong with the human body. And, like everyone else, some are more open to suggestion than others. My daughter is undiagnosed...
  12. katerinvon
    My daughter started with loose stools and bleeding rash as soon as we started feeding her bread as a finger food at about 10 months. Otherwise, she has been a very normal kid. In fact, durring her worst breakout, we had a pediatircian (her regular Dr's partner) reject the idea of celiac disease because she has had no weight loss. Other than the loose stool...
  13. katerinvon
    Brigid has had the grainy stools in combination with the open bleeding rash. I really don't know for sure if it's connected with the gluten or not. She has never seemed to have a milk problem, but we primarily drink fresh goat's milk. (from our own goats) She also had the same reaction with amaranth, except wityhout the open sores. Cross contamination...
  14. katerinvon
    I've found one of the simpelest ways to make sandwhches is to use pancakes for the bread. I have found lots of gluten free pancake recipies. They are easy to make from several types of flour from simple rice and buckwheat to the more exotic quinoa and amaranth. You can make them up fresh each day, or put a bunch in the fridge for convenience. My daughter...
  15. katerinvon
    One thing we can all remember, diet does not require a prescription. My daughter has no diagnosis either, but the diet works, so we keep using it. I would like to echo the caution on soy. The estrogen-like properties may be helpfull (?) for post menopausal women, but they arn't so good for developing girls and premenopausal women. Karen
  16. katerinvon
    Love the laugh signs! I can't seem to get them to work on my computer. Seriously, though, mesquite is native out here. Might as well use what we've got lots of. Just checked out the prices on that mesquite flour. Maybe I should open a business! Karen
  17. katerinvon
    Do you grow and grind it yourself, or does someone actually sell it? I have nearly a fifty gallon drum full of pods. I'm thinking of planting them around the parimeter of the ranch as a windbreak. If we can use them as a food, that would be great. I already know the goats like them. Karen
  18. katerinvon
    Anyone out here from the Southwest who has experimented with mesquite flour? I have recipies in a Native American cookbook using mesquite meal, but haven't tried them yet. I do have access to the beans. The meal is supposed to be sweet and nutritious. Karen
  19. katerinvon
    Can vegetable oil be used in place of butter in some recipies?I'm cooking for a potluck tonight at church, where we have two lactose intolerant families. I have herbed potatoes in the crock pot with vegetable oil instead of butter. I'm guessing it should work out. Is this the general practice? Karen
  20. katerinvon
    Read the biography of Mustang Annie, the one who started the legislation to protect the wild horses. Her father was saved from starvation in the deasert because his parents fed him mare's milk. Karen
  21. katerinvon
    I milk the goats myself most of the time. Sometimes my husband or older kids help. And our infrequent guests usually like to give it a try. I started with goats just as a hobby. I wanted my little ranch to produce something, and milk and eggs were easier than a garden here in the AZ deasert. I have found myself turning into a supplier of fresh...
  22. katerinvon
    Made my first full gluten free meal today: crock pot stroganoff with Ms Haggman's cream soup base over rice noodles from this site, with chocolate pudding from this site for desert. Beverage of the evening was milk from our own goats. The two older girls turned up their noses at the noodles, but the baby (the one with the suspected gluten intolerance) loved...
  23. katerinvon
    I was a bit frustrated with Mom"s response. I'm partly afraid that she is only trying this to humor me, especially since her Dr doesn't seem to think celiac disease could be an issue with her. I hope she sticks with it. My gut instinct is that it will help. We haven't seen dramatic changes with my daughter Brigid either, but it looks like we stumbled...
  24. katerinvon
    Enlarged lymph nodes are part of the imune responce. I know this happens with other illnesses, have experieced it with colds and such. An enlarged thyroid, called a goiter, could be a possibility. (I can't remember if this is hyperthyroid or hypothyroid) Usually this is caused by an iodine deficiency. We don't see it much in the US because we mostly use...
  25. katerinvon
    These are the types of things I don't want Brigid to have to go through. But when your a parent of a kid with an undiagnosed problem, most people around you seem to go into denial. Then you are labled as paranoid or interfering or worse. Some of you (probably most of you) may have experianced this.
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