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kerrygirl15

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  • shiffy k
  • Celiac Ninja

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  • Gender
    Female
  • Location
    Ireland

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About Me

Just turned 22 years old.Live at home with my mum(also celiac),dad and sisters(one of my sisters also celiac)

2010(Age17)-Non-Hodgkins lymphoma(chemo,radiation)

2011(Age 18)-Bone marrow transplant

2014(Age 21)-Diagnosed with Multiple sclerosis after mri and l.p.

2015(Age 22)-Diagnosed with celiac disease after bloods and biopsy,secondary acute myeloid leukemia and small intestine myeloid sarcoma

  1. Hope you start to feel better soon now that you know what is wrong.You must be glad all the testing is over now..
  2. I'm really sorry about your cat bartfull...x
  3. I hope it gets easier for you....I'm sure it will in time...You should make a homemade gluten free pizza...
  4. Hello Mari&me, You sound like my mum and dad-worried...x Just wanted to say I'm thinking of your daughter and hope she feels better soon.Hopefully the doctors will figure out what's causing the anemia soon.I'll pray that it's nothing serious.
  5. Hi Kbart, Sorry to hear about your daughter.A few years ago I was tested for celiac disease my bloods were positive and biopsy negative i was diagnosed with NHL lymphoma.I was tested a few months ago again and this time both my bloods and biopsy were positive for celiac,also an intestinal myeloid sarcoma was found and leukemia in bone marrow and spinal...
  6. I hope you find a doctor who can help you soon.I know how you feel about living in fear,I'm kind of like that right now I'm really scared too.Sorry I'm not of much help but just wanted to reply to you.Dont give up.Hope you feel better soon.
  7. Thanks everyone for your detailed answers.As it turns out I am having high dose chemo at the moment so I have lost 90% of my hair again .In a day or too it'll all be gone.Hopefully other people will benefit for your answers.Thanks again.
  8. Ok,thanks Christiana.Hopefully when my bloods improve my hair will too.It's not the most important thing right now anyway.Thanks again
  9. I know this is only a small issue but I was just wondering if anyone else has experienced hair loss with celiac disease and if so does it improve with the gluten-free diet?I had really long hair down to my waist until I was 17.Had chemo,radiation etc at 17,18 so lost it all.At 19 it finally started growing back after treatment.I'm 22 now and it's nearly down...
  10. I am also anemic.I have been getting weekly vitamin B12 injections and iv iron infusions.My levels are going up slowly but surely.I have also been trying to eat raw liver which is really yuck but I just want to feel well again so I'll do whatever it takes and it's working which is great.I hope your daughter gets the iv infusions soon.The oral iron supplements...
  11. Hi, I was tested for celiac disease when I was 17.My bloods were positive but my biopsy was negative.It turned out to be non hodgkins lymphoma. I am 22 now and just out of hospital after septicemia.While in hospital they re tested me for celiac my bloods and biopsy were positive this time. If you tested positive for celiac disease at 11 then I'm pretty...
  12. Hi, I was diagnosed a few weeks ago too.I'm finding it ok so far.I'd do anything at all to not be sick all the time so going gluten free isn't too much trouble for me. I was in hospital for septicemia when they tested me for celiac disease.I had had a blood test when I was 17 for celiac which was positive ,when they did the biopsy that time it was negative...
  13. Hello Christine0125, Just wanted to say that I have both ms and celiac disease too.I was diagnosed with ms last year at 21 after mri and l.p. and celiac disease just a few weeks ago after bloods and biopsy.Hoping that the gluten-free diet will improve both ms and celiac disease.My mum is 49 she was diagnosed with ms at 39.She's not so good.She has been in...
  14. Hi kittyforever1, Just wanted to say I hope you find out what's causing your problems soon.I have both M.S. and celiac disease.Diagnosed with M.S.last year at 21 and celiac a few weeks ago.Anyway,good luck!
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