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ChiaChick

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  1. ChiaChick
    Wonderful news to hear that he has finally had his testing done, and can go gluten free. I understand that he is afraid of needles. Most children are. It is great that the hospital have acknowledged his and your family's suffering. Hopefully now they will give him the A1 treatment that he deserves. I am really looking forward to hearing of his improvement...
  2. ChiaChick
    Yum. Looks delicious. Thank you for posting. We are going to give this a whirl. We don't have Chex in Australia, so I will substitute gluten free cornflakes or rice puffs perhaps, but should still get a good result. Having lived in South Carolina for two years, I have eaten Chex, so I have some idea of what to aim for. No prizes for guessing what...
  3. ChiaChick
    @cyclinglady, this is the thread I referred to in the post about my husband's test results. I think I will call hubby ChiaChap from now on, as I think he will need to be eating some Chia soon too. lol When/if you have some time, I would be very interested in your thoughts on my situation. I have read a whole bunch of threads that you have commented on...
  4. ChiaChick
    @cyclinglady, Thank you for the super speedy reply. We are definitely continuing the gluten for him. (until a biopsy is performed) We have been trying to learn as it seems that hubby and I are both having gluten issues (see my post about my Thrombocytopenia that I started a few days ago). My children (not hubby's biological children - but still...
  5. ChiaChick
    Hi all, My husbands test results have come back as follows: Husband's Result Reference Range Deamidated Gliadin IgA 144 <15 Deamidated Gliadin IgG ...
  6. ChiaChick
    I have some of the results of our testing... The boys test results for Celiac Screening came back negative. We are still waiting on the genetic testing for Celiac and some other genetic testing. My eldest son's glucose levels came back quite low, (2.7) and he had eaten a good breakfast not too long prior. His urea was also high (7.3). We are seeing the...
  7. ChiaChick
    I see that I have not been very clear in what I wrote... (I will blame that on my brain fog...) My understanding is as follows: The array 3 is a comprehensive test for Celiac. Sometimes not all the tests are ordered by doctors, and Celiac can be missed in some cases. The array 3 is said to be more comprehensive. What I meant to say is that if you know you...
  8. ChiaChick
    @Midwitch, Hello, Just checking in to ask how your son and you are doing. I have been thinking about you both, and willing the time away before his test. I am so heartbroken for your boy. It is Monday night here in Australia, so I am guessing more like Monday morning for you. I am thinking that his procedure is Tuesday, and if correct, this is the...
  9. ChiaChick
    How soon after you became unwell? It can take time to show in the bloodwork, and can need a second test. Just trying to tick all the other possibility boxes... Interestingly, I started to become unwell sometime after my trip to Turkey... Not sure if there is any correlation though. I think I have been unwell from birth to be honest.
  10. ChiaChick
    I have been researching NCGS for weeks, (which makes me still very much a beginner - I fully acknowledge that), and from what I have seen in the scientific reports and studies, it can be very debilitating. Celiac disease is an Immune Reaction to prolamins: gliadin (wheat), secalin (rye), and hordein (barley). In Non-Celiac Gluten Intolerance, it is said that...
  11. ChiaChick
    @krikrogus Hi and welcome. I am new too. Sorry to hear you are experiencing these things. The good news is that there are a bunch of nice folks here who are kind of spirit and spend time helping people, so you have come to a good place. A couple of things: The more experienced here often ask for blood results to be posted, so it may help to...
  12. ChiaChick
    @Gemini, Thank you for the time taken to help me. Much appreciated. I would be very interested in knowing the name of the medication your colleague is taking for the increase in production of platelets. I had hoped that they were planning on weaning me off the Prednisone. I have not yet looked at the link you provided, but I will later today...
  13. ChiaChick
    I deleted much of your post to avoid scrolling for others, but wanted to comment on these things in particular. My heart goes out to you both. What a terrible time. I can only imagine how completely and utterly furious you must have been at the hospital. To your son: I know it is tough. Hang in there buddy. Two more days, and then you will be on your way...
  14. ChiaChick
    @sademerkki, Thank you very much for the information. I have just read both studies you linked for me. Yoghurt is awesome, and I eat a plain/natural yoghurt with no sugar most days. (It is only a shop bought one though) I am very open to us making our own, and will look into this. Prednisone in my case has not made my symptoms worse. I have seen...
  15. ChiaChick
    Same as above. Stay with the gluten. Bring on the two weeks and the biopsy. What an awful time for you all. Please keep us informed. Brighter days ahead. xoxo
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