Justpeachy

I was recently diagnosed with celiac disease/dermatitis herpetiformis. I have been gluten free for approximately 3 months. About 6 to 8 months ago, I noticed painless,swollen lymph nodes in my neck and then the groin area. I kept an eye on them but they did not shrink in size. I had an ultrasound which showed them as swollen, both sides of groin, and cbc...

I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told...

Thank you so much for all the info! I have been off and on gluten the past few months because i couldn't figure out if i needed to be on it for testing. Most recently i have been off for a week. You are absolutely right about me...i like a definite diagnose, though part of that may be due to being teased incessantly about being a hypochondriac. Do you or...

I think it's safe to say that everyone here has been on a roller coaster ride seeking a diagnosis. My ride started right before easter, when I started to itch intensely around the...gosh this is embarrassing...anal area. I, naturally, freaked out and thought everything from hemorrhoids to parasites, that is until the itchiness (and i mean, tear my skin...

I tested negative as well, but several months later broke out in what has been diagnosed (pending skin biopsy), as dermatitis herpetiformis, which is a manifestation of celiac. The bloodwork is helpful in a diagnosis but a negative result is not definitive.

Mimssa, I am curious to know how you were diagnosed with DH. Reason being, true DH is not caused by histamines or a histamine intolerance and therefore should not respond to a low histamine diet. Dermatitis herpetiformis is a manifestation of celiac disease which is an autoimmune disease. An autoimmune reaction is different from an allergic reaction. There...