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elfkin

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Latest Celiac Disease News & Research:

Everything posted by elfkin

  1. elfkin
    Hi! Wow, I can relate! My toddler is celiac, we also carry an epipen for a peanut allergy, and he is lactose intolerant. It is a shame that so many gluten-free products also have nuts or are processed on shared equipement with peanuts. He is also not supposed to have tree nuts and fish. They will test him soon (at our next visit), but the doc didn't...
  2. elfkin
    Just FYI, My son was exclusively breastfed. When we tried to introduce solids @ 6-9 months, he didn't want them. Some said that he was too dependent on the breast and we should take him off and he would eat. We didn't listen. By 12 months, he still refused almost all solid foods and any attempt to get him to eat. The Doctor said that he had never seen...
  3. elfkin
    In response to the question about animal kingdom and magic kingdom: Open Original Shared Link has a whole section of info. on the gluten free Disney experience I cannot remember exactly where it was, somewhere under dining. It had phone numbers for chef's and other tips. Here is some info. that I still had on it: Animal Kingdom Restaurantosaurus...
  4. elfkin
    I am glad you all liked my roll story! We (my husband and I) did cry! We were sitting there wiping our eyes and smiling like fools! I should probably tell you that he spent a good portion of the meal just taking them in and out of the basket! It was too cute! I didn't mention this before, but, as a side note, he even swam in the pool with no ill effect...
  5. elfkin
    I knew you would have great ideas! Can't wait to try it out! I would like to know how you made the lip balm. My daughter would love that. Thanks for all of the positive input.
  6. elfkin
    Thanks so much for your encouraging words! I was feeling kind of burned out last night! I do feel better just throwing it all on paper (computer screen!). Today was a better day. My husband was out of bed and functioning - even went into work. Things could be so much worse. I am so grateful for the health food places around here. They are helpful and...
  7. elfkin
    I keep telling myself that I have nothing to complain about and that millions of people have much harder lives, but bear with me for just a small pity party! My daughter has kidney problems, daily medication, one surgery, chronic UTI's, allergies, chronic sinus infections, gets tired and develops infections easy. She is the easy one. My son has celiac...
  8. elfkin
    I thought I would send this question out to all of you experts! Any great finds on gluten-free shampoo that would also be gentle for a child with eczma? Toothpaste for kids that taste good and is safe? Cream for dry skin that is allergy safe and gluten-free? and gluten-free wipes? I didn't realize till recently that any wipes had gluten?! Found out yesterday...
  9. elfkin
    Thank you so much, all of you! We are already seeing improvement! We had a few wooden kitchen items and gluten traps that we didn't realize were a problem. (I feel very stupid for not thinking of it! I had worked hard at taking out things a long time ago!) We have also taken him off of lactose for awhile. He has allergies and we have done a major allergy...
  10. elfkin
    Thank you for all of your input. This community has been an amazing help to me!
  11. elfkin
    They key to this was prior planning! WOW! This was a VACATION! We never eat out much with our celiac son, so I was very nervous about going to WDW for a week. We stayed at the Pop Century resort on location. We did do our homework. We checked out menus before leaving home. We packed gluten-free snacks (just in case), and we purchased the meal plan at...
  12. elfkin
    Thank you so much for responding. That is very helpful. I know he is getting gluten contamination with the frequency of his runny diapers. I was frustrated trying to figure out what we were doing wrong. I now have a few places to start! Thanks for the other response too. We haven't had him in nursery or anything for awhile. I tried staying with him a...
  13. elfkin
    I have spent a lot of time reading these posts and I am so grateful for the info., but I have new questions. My 2 yr old has celiac, my 6 yr old had a neg. blood test. Does she need periodic new testing? Am I to understand that it can develope at any time? My husband has on-going IBS and viseral (sp?) hypersensitivity that causes us a lot of grief. He...
  14. elfkin
    Hi! We just got a computer for Christmas and when I found you tonight, I honestly cried in relief. I have felt so ALONE! My two and a half year old was diagnosed with celiac disease at 15 months. He did not grow at all (height, weight, or head circum.) from 9 months to 18 months. He projectile vomited from 12 months to 15 months of age, sometimes 12 times...
  15. elfkin
    My son is only 2 and a half. He has never slept well. He was diagnosed at 15 months. He woke up every hour or two and sometimes less for the entire first two year of his life. Some nights were better than others. I honestly thought my life was over. He is doing better in the past few months, but still not the best sleeper and doesn't nap. He wakes up...
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