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trents

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  1. trents
    trents's post in Pathology report positive but bloodwork negative - help interpreting was marked as the answer   
    Yes, that is possible. But I'm not sure what further testing can be done to distinguish between celiac disease and some other food intolerance. There are food sensitivity tests out there like ELISA and AlCAT but they are less than definitive...
  2. trents
    trents's post in Help me read my results was marked as the answer   
    Welcome to the forum, jennmb!
    Celiac Ab tTG DGP TIgA
    Immunoglobulin A, Qn, Serum01 363 High mg/dL
    This one is the only "high" value from your testing. It is not a test to diagnose celiac disease per se but is a measure...
  3. trents
    trents's post in Am I wrong about my symptoms being Celiac? was marked as the answer   
    Welcome to the forum, tygerlily!
    Your symptoms scream of celiac disease but you could also have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. There is no reliable test for NCGS. Celiac disease must...
  4. trents
    trents's post in New to this was marked as the answer   
    One of the defining characteristics of dermatitis herpetiformis ("DH") is little blisters. Since you've already been diagnosed with celiac disease, there's not much point in getting a skin biopsy to confirm DH but having DH is considered...
  5. trents
    trents's post in Question about child's results was marked as the answer   
    She probably has celiac disease, judging from the significantly positive tTG-IGA and IgG. One thing to be aware of is that children often don't show damage to the small bowel villi when biopsied even though they do have celiac disease...
  6. trents
    trents's post in Ciliacs and long covid was marked as the answer   
    Yes, that's an option. The Mayo Clinic guidelines for doing that, the pretesting "gluten challenge" as they call it, is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the antibody...
  7. trents
    trents's post in Diagnosis in children was marked as the answer   
    Welcome to the forum, nattalie!
    Seldom do people with celiac disease test positive on all tests that can be run for detection. That is normal. Some tests are more specific for celiac disease than others and some are more sensitive...
  8. trents
    trents's post in Getting tested was marked as the answer   
    It is absolutely possible to develop celiac disease later in life. celiac disease requires the genes but it also requires a triggering stress event, such as a viral infection, to turn the genes on.
  9. trents
    trents's post in Help understanding bloodwork was marked as the answer   
    I would add to what Russ H said, some of the test results, but not all of them, indicate possible celiac disease. The positive ones are not particularly specific for celiac disease and could be the result of another disease process. The...
  10. trents
    trents's post in help interpreting results? was marked as the answer   
    Two out of the three antibody tests are positive and you have one gene indicating the potential to develop celiac disease. Yes, I would seek further testing for confirmation but since you have already had the antibody testing done the...
  11. trents
    trents's post in Would you ask for further testing? was marked as the answer   
    The total IGA is technically with normal range but at the very low end of normal. It is a potential problem.
  12. trents
    trents's post in Investigated for hypothyroidism also wondering if I have celiac disease. was marked as the answer   
    Where in the world do you live? Does your medical system allow you to request tests beyond the bare bones testing that is normally done for celiac disease? Some medical systems, such as that in the UK, are very rigid in that sense. The...
  13. trents
    trents's post in Extreme fatigue and brain fog was marked as the answer   
    Welcome to the forum, Elbee!
    Sorry, but I don't know of anything that will alleviate your symptoms while remaining on gluten. But the following information might be valuable to you:
    The Mayo Clinic guidelines for a pretest...
  14. trents
    trents's post in Dietician? was marked as the answer   
    No, I never saw a nutritionalist. I really don't see a need for that for most celiacs. This might be just as helpful:
    And taking some gluten free supplements to address the nutritional deficiencies in vitamins and minerals (especially...
  15. trents
    trents's post in New to Gluten was marked as the answer   
    Welcome to the forum, Di Roddis!
    I assume you are asking about tips for achieving gluten free eating. Here is a primer that might help you get started:
    Eliminating major sources of gluten is easy but actually eliminating...
  16. trents
    trents's post in Busy Mom of 3 - Tired of This Disease was marked as the answer   
    Yes, it sounds like you may need to declare your house a gluten free zone. Let the other nonceliac members of the family get their gluten elsewhere.
  17. trents
    trents's post in Waiting on food sensitivity test results….. was marked as the answer   
    Got it! Your rational is sound. This might help you get off to a good start in truly achieving gluten free status:
     
  18. trents
    trents's post in First Dr. Visit on the 8th was marked as the answer   
    Your symptoms scream celiac disease. Make sure you present your catalog of symptoms to the doctor at the appointment and say, "I strongly suspect I have celiac disease. Would you be willing to order celiac antibody blood testing?" Since...
  19. trents
    trents's post in 21 years old, diagnosed with non celiac gluten sensitivity was marked as the answer   
    That's fine but it will be no substitute for you taking responsibility yourself to learn how gluten is hidden in the food supply, reading labels, etc. Your naturopath cannot be with you everytime you buy groceries or eat out. And you...
  20. trents
    trents's post in Daughters test results looking for clarity was marked as the answer   
    Well, if the biopsy is inconclusive, and we do get reports on this forum of people with positive antibody tests but negative biopsies (go figure?), you might look into genetic testing for the possession of celiac genes. There are two...
  21. trents
    trents's post in Is it possible to do a foreign exchange trip with celiac? was marked as the answer   
    Lucy, your best bet would be to request a host home that is gluten free. There is a chance there would be such a family available as hosts. But other than that, you are asking for trouble and if you get sick from being glutened the host...
  22. trents
    trents's post in Ice cream was marked as the answer   
    Unless you have a dairy intolerance or an intolerance to some other ingredient in that brand of ice cream, I would assume it is safe for you.
  23. trents
    trents's post in 24 /48 hour fever, vomitting and sweating galore was marked as the answer   
    Do some research on the best formulations of B12, the ones that are assimilated the best. Not all B12 supplements are created equal: https://perniciousanemia.org/b12/forms/
  24. trents
    trents's post in Traveling after a celiac diagnosis was marked as the answer   
    A buffet would have it's risks from cross contamination, especially if you are a sensitive celiac.
  25. trents
    trents's post in Next steps towards well being was marked as the answer   
    30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.
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