trents
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trents's post in Would you ask for further testing? was marked as the answer
The total IGA is technically with normal range but at the very low end of normal. It is a potential problem.
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trents's post in Investigated for hypothyroidism also wondering if I have celiac disease. was marked as the answer
Where in the world do you live? Does your medical system allow you to request tests beyond the bare bones testing that is normally done for celiac disease? Some medical systems, such as that in the UK, are very rigid in that sense. The... -
trents's post in Extreme fatigue and brain fog was marked as the answer
Welcome to the forum, Elbee!
Sorry, but I don't know of anything that will alleviate your symptoms while remaining on gluten. But the following information might be valuable to you:
The Mayo Clinic guidelines for a pretest... -
trents's post in Dietician? was marked as the answer
No, I never saw a nutritionalist. I really don't see a need for that for most celiacs. This might be just as helpful:
And taking some gluten free supplements to address the nutritional deficiencies in vitamins and minerals (especially... -
trents's post in New to Gluten was marked as the answer
Welcome to the forum, Di Roddis!
I assume you are asking about tips for achieving gluten free eating. Here is a primer that might help you get started:
Eliminating major sources of gluten is easy but actually eliminating... -
trents's post in Busy Mom of 3 - Tired of This Disease was marked as the answer
Yes, it sounds like you may need to declare your house a gluten free zone. Let the other nonceliac members of the family get their gluten elsewhere.
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trents's post in Waiting on food sensitivity test results….. was marked as the answer
Got it! Your rational is sound. This might help you get off to a good start in truly achieving gluten free status:
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trents's post in First Dr. Visit on the 8th was marked as the answer
Your symptoms scream celiac disease. Make sure you present your catalog of symptoms to the doctor at the appointment and say, "I strongly suspect I have celiac disease. Would you be willing to order celiac antibody blood testing?" Since... -
trents's post in 21 years old, diagnosed with non celiac gluten sensitivity was marked as the answer
That's fine but it will be no substitute for you taking responsibility yourself to learn how gluten is hidden in the food supply, reading labels, etc. Your naturopath cannot be with you everytime you buy groceries or eat out. And you... -
trents's post in Daughters test results looking for clarity was marked as the answer
Well, if the biopsy is inconclusive, and we do get reports on this forum of people with positive antibody tests but negative biopsies (go figure?), you might look into genetic testing for the possession of celiac genes. There are two... -
trents's post in Is it possible to do a foreign exchange trip with celiac? was marked as the answer
Lucy, your best bet would be to request a host home that is gluten free. There is a chance there would be such a family available as hosts. But other than that, you are asking for trouble and if you get sick from being glutened the host... -
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trents's post in 24 /48 hour fever, vomitting and sweating galore was marked as the answer
Do some research on the best formulations of B12, the ones that are assimilated the best. Not all B12 supplements are created equal: https://perniciousanemia.org/b12/forms/
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trents's post in Traveling after a celiac diagnosis was marked as the answer
A buffet would have it's risks from cross contamination, especially if you are a sensitive celiac.
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trents's post in Next steps towards well being was marked as the answer
30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.
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trents's post in No increased intraepithelial lymphocytes was marked as the answer
Welcome to the forum, Lu Sims!
The lack of IELs makes sense to me if you had been on a gluten free diet for a month. Once you withdraw gluten, the inflammation of the small bowel lining stops and the villi begin to recover. The... -
trents's post in I don't understand my blood test results was marked as the answer
Different celic antibody tests vary in their "sensitivity" and their "specificity". The Endomysial IGA is very specific for celiac disease which means a positive for that one all but eliminates other disease possibilities. It is also... -
trents's post in I don't want to eat gluten to get tested was marked as the answer
Welcome to the forum, Lynne Marie! In your first post you indicated you had a question but you never actually stated what it was. What is your question?
So, you have the genetic potential for celiac disease and you have classic... -
trents's post in EGD results was marked as the answer
Welcome to the forum, GfreeOH!
"Sections show pieces of duodenal mucosa. These show some areas with villous flattening." This indicates possible celiac disease, as the report noted. The "flattening" is patchy, however, which is... -
trents's post in Feeling Overwhelmed was marked as the answer
No! If you intend to get a biopsy, do not start the gluten-free diet immediately. She gave you a bum steer. Most doctors are woefully behind the knowledge curve when it comes to gluten disorders. Think about it. What if substantial healing... -
trents's post in Celiac or Hashimoto? was marked as the answer
Welcome to the forum, Glutton33!
Celiac doesn't cause Hashimoto's but there is a statistical correlation as there is between celiac disease and some other autoimmune diseases as well. Autoimmune diseases tend to cluster and my... -
trents's post in Question Regarding Celiac Comprehensive Test was marked as the answer
You might find this interesting: https://www.verywellhealth.com/celiac-disease-and-liver-diseases-562618
Ideally, your next diagnostic step would be to have an endoscopy with biopsy done to check for damage to the villi that line... -
trents's post in Please help us decide: does our 3 year old little need an endoscopy? was marked as the answer
My understanding is that the EMA is the most specific antibody test for celiac disease but also the least sensitive. Which means, when that one is positive it's pretty definitive for celiac disease. If it were my kid, I wold skip the... -
trents's post in So confused about everything was marked as the answer
The tTG-IGA is the most important test of the ones your physician ordered that needs your attention. The tTG-IGA is the most common antibody test ordered by physicians. The reason is that it is considered to do the best job of combining... -
trents's post in Diet help with celiac disease and newly diagnosed diverticulitis was marked as the answer
Welcome to the forum, NancyK!
First, the doctor who told you that you don't have to be strictly gluten free because you don't have GI symptoms at your age gave you very incorrect and dangerous advice. This is another example of...