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miamia

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Everything posted by miamia

  1. miamia
    today there has been a set back . I thought this new doc took my insurance but he doesen't and is super expensive.I don;t know what to do. I put in a call to my regular doctor and I am hoping he can talk to him and we can work something out. Fingers crossed. Oh god now all this talk about peanut butter has made me really want it!!! I might have to try...
  2. miamia
    ok so today has been a very weird day- it was my last of the antibiotic shots. Its werid but very emotional for some reason. My doctor had been checking into Gherelin for me it is the hormone that controls- gives you- an appetitie- something I am lacking. SO the one doctor who deals with it is the one he has dealt with before He specielizes in kinestheology...
  3. miamia
    Rachel- thank you so much- one for the update on bioset and 2 for your concern for my situation. I definitly agree with everything you said about one doctor not neccesarily being enough. There is an acupuncturist my doc really wants me to see he specializes in motility issues -which are a huge problem for me. I would write more about my tuesday appt. But...
  4. miamia
    Thanks rachel- i look forward to your update
  5. miamia
  6. miamia
    Rachel- how long have you been doing the bioset now? Do you notice any changes? differences in reactions or your ability to tolerate things, etc.?
  7. miamia
    Rachel and Andrea- thank you both for your comments. i have been doing alot of thinking. So today I see my doctor and I am really going to talk to him. I do know he has dealt with a lot of lyme cases and is contact with alot of LLMD's so he definitly has experience. I seem to be a really strange case- I know I don;t always post everything so I can completly...
  8. miamia
    Rachel- I do get symptoms like this. I always say one of the worst things about this illness is that it has not only stolen my ability to feel good or enjoy food but it has stole my BRAIN!!! High stress situations are so bad for me and crowds absolutley kill me. I definitly take a while to recover from any build up of stress or emotions. Even when its not...
  9. miamia
    I have major constipation problems and cannot handle milk of magnesia at all a few things you could try one is -oxy powder- i think you have to order it though and more benign is triphala- a supplement a lot of companies make this I prefer one I think its planetary sources but I am not postiitve I have to check. Miamia
  10. miamia
    this is weird lately I really have a craving for yogurt and granola. I was not a huge yogurt eater but I do love Frozen yogurt- just soft serve ice cream of any kind. Rachel- no I know art itself is not based on supplements I think he was saying most of his patients who have done it end up with long supplement lists. I know I ma not explaining this...
  11. miamia
    Sometimes I think the cruelest think about this illness is that it has to involve food!!! I mean something that we can't and shoulden't have to avoid. I jst wish it was simple. Avoid DAiry or avoid gluten. My body is so moody it is always telling me to avoid everything- but I LOVE FOOD!!!! The funny thing is most of what Ir eally want is gluten and dairy...
  12. miamia
    Rachel- I do take an ultra flora and three lac and I am ok with these. My doc thinks I am ok witht the three lac because it is designed to kill bad bactreria where as the VSL is designed to put good bacteria in. My body just won't take the good bacteria but I guess attleast it will take something to kill all the baddies ( all though they still seem to...
  13. miamia
    Oh Andrea I would love to come visit you I love cooking for other people . Lately every sunday I cook brunch for my sister and my little kiddies(neice and nephew) even though its all stuff I can't eat. Now 2 of our good friends come over and I cook for them too. I also cook for alot of my friends and their friends who have food allergies. Unfortuantly...
  14. miamia
    Donna- I have always wanted a lymphatic drainage massage- have you ever had one?
  15. miamia
    So yesturday was officially my last day on the VSL !! And let me just say one of the owrst days I can remember having it jsut seemed to make me sicker and sicker and yesturday it just was full on terror!! I was so ill! I cannot handle it right now . I talked to my doc about it and we both agree it is not for me right now my body just does not want good bacteria...
  16. miamia
    Food makes me feel horrible -all food- but I still LOVE it!! I blame my body not the food. I have always loved eating. I just wish it loved me back. Unfortunatly food rules my life in a way the I wish it didn't, but I still take alot of time to prepare my meals and make sure they taste yummy. My doctor always thinks its so funny how creative I get with how...
  17. miamia
    ahh. to eat and not get sick- that sounds like a party to me!!! You guys will have to pull me forcebly from the buffet table though if you want me to stop eating
  18. miamia
    Rachel- yeah I decided to wait on the Histadine. I see my doc again on tuesday and I am going to write out alist of all the supplements I am taking and go over it woth him. I want to give my body a bit longer to get used to the new probiotic before I add anything additional. My doc said a while ago he didn't think i would react well to cats claw but I might...
  19. miamia
    Rachel- it sounds like the increase in NDF Was to much for you- just remember - take it slow !! (this is so much easier said then done). I hate the idea of taking baby steps with something that might be helpful but I know for me it is always the right thing to do and I think you are just as sensitive as I am. I am so excited for your appointment. I can...
  20. miamia
    i thougtht about starting with 1/2 a pack but i have been doing a full one for 2 days I have not been feeling great and am wondering if its too much i am going to talk to my doctor tomorrow
  21. miamia
    andrea i know you have all these fake cheese recipes and I alwaysd want to try them but I already feel like all i do is cook. Have you ever tried the roads end chreese products?
  22. miamia
    Carla I am starting and probably staying on 1 packet per day. I got the unflavored kind. I am also on threelac and Metagenix ultra flora IB (this i have been on forever). It sounds like the VSL is really great stuff so I hope I can tolerate it. Have you noticed any improvement or effects of it. Laura- I am so sorry to hear you are having such a rough...
  23. miamia
    Thanks again everyone for the nice messages. Here is a quick update- Ok so Last week i had gone on this 3 day medication for parasites- it did not go well- it could have been a die off tyoe thing or possibly just a bad reaction to the meds but I was very ill. So there is one more anti parasite thing my doc wants to try me on but first we are going to give...
  24. miamia
    Thank you everyone so much for the sweet messages. They really mean so much to me!!!
  25. miamia

    Happy Birthday Miamia!

    I hope you are having a great day!

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