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miamia

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Everything posted by miamia

  1. miamia
    Donna- I love this pic. I know you think you can work and so you should not necessarily go on disability- but sleep is such a crucial part of healing I think you owe it to yourself to take some time and really nurse your self and see if it can help to make a difference. Maybe rest and relaxation is a big piece of what you need to get better!!
  2. miamia
    I have never been a heel girl I am all about comfort - jeans and sneakers!!( summer sneakers change to flip flops) although now I am so thin its mostly sweat pants and sneakers- no jeans fit me.
  3. miamia
    We could never be bored with you!!!!! but I do know how you feel. Lately I feel like I go in circles- with different diagnoses - trying different things- supplements, meds foods, tests, doctors and nothing changes - I end up in the same place. Its is frustrating and yes BORING!! I never thought the most exciting thing in my life would be that I made pizza...
  4. miamia
    There are alot but I vote for Bistango on 29th street and 3rd avenue. They have great food and are soooo...... nice. They also have great gluten free biscotti for desert
  5. miamia
    Susan I love that analogy- I watch the food network all the time- and yes I guess it is the equivelant of porn -its also kind of masachistic. I have always wanted to do epsom salt baths but never do - I goota get on the boat. I did buy this stuff I think it is called masters miracle it is like a low intesity detox bath I actually thik it was good...
  6. miamia
    Rachel- the kefir can definitly be causing die off especially in a system as sensitive as yours. I know this is weird but have you talked to your docs about any kind of cleanse sometimes they are necessary to get ris of the die off. Yeast is very hard to excrete it can be very binding. Ok my turn- 1000- 1) fresh hot seseme bagels 2) jars of peanut...
  7. miamia
    happy 1000 pages to us!! Ok no peas for me - but i did eat sunflower seeds(though I think how ever many i ate was shy of 1000)
  8. miamia
    I have a box of sea cure in my cabinent too I am hoping pne day i will be able to take it but I kow when i tried it I also got sicker. So I am with rachel - be careful.
  9. miamia
    Rachel- #1 this is the cutest picture !!! I can just see you sitting there smiling like an angel while all the while planning some sort of weird mischevous act. Ok #2 this is my weird chicken story- I really wanted to try to eat chicken again because for a while it was one of the few things I could eat. So I kept buying organic chicken cooking it up...
  10. miamia
    - I love everyones pictures!!
  11. miamia
    Somewhere in this post(Idon't reccomend trying to find it we might lose you forever!!) I posted scientificness about this , but I am highly against reflux drugs. I truly believe most of the digestive problems(and I have a ton of them) are due to nexium. I was on it for a long time and think it really really damaged my system. If i had to go back I would never...
  12. miamia
    My main problem is definitly with the cold!!! I thrive in warm weather but it seems as I have gooten sicker extremem temps either way affect me I still would take an 100 degree over a 30 degree one any day!! Rachel you probably could eat my pizza (ok it has more then your 5 ingredients) but it dosen't have much. I can't handle much as you know!! I wish...
  13. miamia
    Rinne- What is it that you make - I am so curious- Good luck with it. Carla- I love that you caught that bowel/ bowl slip it shows how much brain fog the rest of us have that no one else caught- maybe thats another positive sign that you are getting better!!!
  14. miamia
  15. miamia
    Rachel- I wonder if the throwing up could be due to the sauna- I have wanted to try a sauna but am hesitiant becasue I have low blood preesure and becasue I seem to be very effected by extreme temps. I never throw up either. I do horribly in the cold but I notice when it gets really hot my body does not react so well either I used to be fine no matter how...
  16. miamia
    Donna- 2 things First I bought a bumble bar today!! (I didn't eat it and I don't know when i will) but I thought of you!!! and 2 that yogurt thing is so funny- I bought yogurt today- but it was rice yogurt!!! It is the first time I have ever seen it - (can't do soy yogurt or dairy) Its by ricera- I tried to check out their website but its not up yet but...
  17. miamia
    Pie?.....Crust?............ 3 Pieces?.......... Rachel you are Crazy!!! I love it
  18. miamia
    lorka what do you use as an egg replacer
  19. miamia
    Noglugirl- Its so bad that you are in such a negative environment I have to believe that that has to cripple your ability to get better. Is there any way for you to live somewhere else? Didn't you say you had a brother? I know when i feel really negative or am around negative people it really effects the way i feel. Don't forget you ahve all of us- and we...
  20. miamia
    Donna- that was a really good explanation of BioSet- Thanks. Now that you have deiscovered the lyme what treatments do they want to put you on. Rachel- The LED sounds interesting- I like how nonevasive it is and how you don't have to take anything- I scanned noth links but I have to read them again- God I miss the days when i didn't have to read everything...
  21. miamia
    Hey all- First of all A happy Belated Birthday to Carla!!! (sorry so late) Ok quick update- everything is still kind of in flux with me I am waiting to hear from my doc on whether or not he was able to work out something with this new doctor he wants me to see about insurance issues. I did get a call earlier this week that he was working on it so I am...
  22. miamia
    I had to add this one : "but you can have white bread"
  23. miamia
    Rachel- I feel this way alot!!!! I wish sometimes someone could suck the knowledge out of me. I was always healthy before I got sick. I ate well but now I look at the ingredients and I know what everything means and I wonder if it is really "healthy" I am happy with some of the stuff of learned but I think I know alittle too much. It is hard not to become...
  24. miamia
    Rachel- this sounds like a good idea- I remember when we all started to realize more about MSG and there was so much info on everything it was in at the time I was trying to avoid so much I felt so overwhelmed with info I had to just step back becasue I felt like I was gonna go crazy!! God I am so jealous you spent time outside . It was so cold here it...
  25. miamia
    Andrea- yeah I am hoping that I can work something out. I dodn't speak to the doctor yesturday but I spoke to the women in his office and tried to explain how dire the situation was. She was going to talk tot he doctor for me. It seemed like once she heard who my doctor was she was reallly gonna try to help me so I am hoping that if she talks to him and...
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