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miamia

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Everything posted by miamia

  1. miamia
    Evie- so happy your back - everyone was very worried. Oh god Thanksgiving- what do we eat? I don;t think there is one thing my familys making I can eat- looks like I will ahve to be a busy baker bee today - any suggestions?
  2. miamia
    Since I didn't join in the love fest yesturaday... I just wanted to say how thankful I am to have found all of you. I have learned so much here. Being sick is so overwhelming and I know at times I feel like giving up - coming here though and seeing everyyone's strength and will to keep fighting makes me want to keep fighting too and I am eternally greatful...
  3. miamia
    rinnie- congrats on baby news andrea- happy birthday to seth laura- have a great thanksgiving!!
  4. miamia
    thanks julie- i am not getting my hopes up yet - I don't know anything for sure so I ma just gonna wait and see what my doctor says tomorrow about what he feels the next step should be and see if I agree. Igenix reccomends this other test that is much more accurate and much more sensitive so I am kind of leaning towards that. I posted about it earlier....
  5. miamia
    I never thought i would get to the point in my life where if I discovered i have lyme diseases it would be something to celebrate- but here i am and if I find out i have it- there were be celebration- i also never thought celebration would not include good food and liquor- but i guess corn tortillas and home made seed and vegee spread will have to suffice...
  6. miamia
    thanks Rinne- It is the same doc. He is usually really effcient but not in this case apparently- I just have to get through today- I want to talk to him right now!!!!
  7. miamia
    On the igenix site it said this for the next test after the test I already got- "The follow-up test for Lyme disease, if the above is negative, is the Lyme Dot Blot/PCR Panel - #875. This panel looks for pieces of the bacteria in urine as well as DNA of B. burgdorferi in the urine. Most physicians use an antibiotic challenge to make the test more sensitive...
  8. miamia
    Yes- I am on diflucan- and I am starting to feel it. I knew I would react to it, but I was suprised tthe first few days my major reaction was more brain fog than anything physical- but yesturday that change thats why I got off line so abbruptly I just coulden't sit up anymore- it was kind of mounting all day. I feel pretty crappy this morning I had weird...
  9. miamia
    Laura I just posted some of this before I read your post- I don't mind at all!!
  10. miamia
    Rachel- this is why I was so overwhelmed when I got them today. I immediatly got on line and posted - especially since on the results it says- "Diagnosis should not be based on lab tests alone. Results should be interpreted in conjunction with clinical symptoms and patient history" and something else about the low assay of this test and recommending further...
  11. miamia
    carla that would be great
  12. miamia
    thanks laura- you are so sweet. When do your eos results come in?
  13. miamia
    becasue there are no definite pos. does that mean its totally negative?
  14. miamia
    These are my results- there are no definite positives IgM Western Blot /my numbers for the IgG: 18 kDa. neg /18 kDa + 22 kDa. neg /22 kDa neg. **23-25 neg /**23-25 kDa IND 28 kDa. neg /28 kDa neg. 30 kDa. ++ /30 kDa neg. ** 31 kDa IND /**31 kDa IND. **34 kDa. Neg /**34 kDa IND. 37kDa Neg/Neg **39 kDa. IND /**39 kDa IND. **41 kDa. ++ /**41 kDa...
  15. miamia
    [Rachel- I need help I got my lyme results and I am so confused becasue it looks like a lot of the bands either have pluses or say indicative next to them Maimia
  16. miamia
    Andrea, Rinne , Rachel,Thank you everyone for your support!!! Rachel- I know fibro, ibs- doctors spout these out so easily- for that reason there "easy" and there are medications for them- TO me its like saying "I dunno" And believe me when the gastro gave me the results of the eos test I wanted to punch him becasue of the way he said it he was like ok...
  17. miamia
    Rachel- I looked for my results and coulden't find them. I save everything though so it seems strange but after reading everythign you guys have written I definitly want to check them out again. I did get my results on friday and I don't have eos. I am actually happy about this- as much as I want a diagnosis I don't need one more thing that does not really...
  18. miamia
    I can't eat yogurt- no dairy!! I wish though I always liked it when I was younger but I have not been able to eat it for along time. I never looked into doing the shots myself I ahveen't had one in a while. Miamia
  19. miamia
    Rachel- For a while my doc was giving me a shot of b12 that way is was straight b12 without anythign else. Could this be a possibility for you? Miamia
  20. miamia
    Andrea- They told me I have to call tomorrow that the results had not come in yet. I finally talked to my regular doctor though and I have an appt. Next weds. but I started today on the mediciene for the candida I ma nervous about the die off reaction and my reaction to the mediciene in general, but I have to really get rid of the yeast to find out what...
  21. miamia
    it dosen't look tht good- but there is a company that makes a brown rice pizza cust and that and one other thing are the only ingredients
  22. miamia
    Rachel- Great list i think i may print it out and hand it out to my friends and family I got a pm from laura yesturday today is her test she said shes actually been feeling ok- Which may not be a good thing for the eos test- but is still good to hear Miamia
  23. miamia
    Rachel- thanks for the info. I took nyastatin when the yeast first showed up on a test and I reacted really strongly to it. MY docotr had reasons he wanted me to try diflucan instead but I have to talk to him more about it. We wanted to do the eos test first so I think I am going to talk to him today. Thats so cool about the spots. I still go to one message...
  24. miamia
    CArla- thanks for the advice. I have suffered with candida for a while- I am not sure I ever have really gotten rid of it. I am always on a probiotic and onion and garlic are staples for me. Unfortunatly I cannot handle coconut oil which sucks because I don't even mind the taste of it or anything its just to much for my body. I know with candida the diet...
  25. miamia
    Andrea- I was tested at igenix for lyme- it was negative. Julie- I agree - this thread is amazing and we all do ahve so much in common- It is so nice to go some where and feel "normal" for all my differences. Did you tell me you once went on diflucan? If so how did you react to it? This may be what Ig o on for the candida and I am a little...
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