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miamia

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by miamia

  1. miamia
    if your body/ mind is telling you to do something- DO IT!!! I really think anytime my vody is telling me I need to do something or eat something it is more important than anything a doctor can tell me. Maybe your nervous about getting the removal becasu eyou are finally getting to the bottom of whats wrong and doing something about it - there is alot riding...
  2. miamia
    Laura- I think i will definitly ask my doctor about it- maybe even tomorrow and see what he knows about it. I read alittle about it today but before I go into crazy research mode which I am prone to do I am going to ask him what he thinks. I know I have leaky gut and malabsorbtion and that contributes /causes all the food reactions and inability to gain...
  3. miamia
  4. miamia
    Laura- oh god your appt sounds like mine at the celiac center in ny. I was reading form the site you posted about it sounds interesting I may call my doc and run it by him. I know how frustratd you must be I hate not having answers or some reason behind why I am so sick- its almost worse then the physical discomfort- ok not worse but it really stinks Miamia
  5. miamia
    Donna- with you on the emotional roller coaster. I just sent in a stool test today for yeast parasites and other buggers. Which one are you doing? I have done a spit test for adrenals - it was an all day thing very annoying is that what you have to do? Good luck with your elimination diet and hopefully next week will be more clam for you miamia ...
  6. miamia
    Julie- I have been wondering this same exact thing. I have had allergy tests done before but I have been wondering if Its worth getting another one done. I mean maybe I am consuming something that I ma very allergic to. I don't know I hate to waste money if I don't have to but if it could be helpful its worth it. I guess this is not helpful but I am in...
  7. miamia
    Donna- it sounds like you have been going to so many appointments lately that alone could be contributing to why you had a meltdown.!! I have been really on edge, emotional lately- maybe its the change of season and we are all being affected- who knows. Well I hope you are well today and your drs appts go well Miamia ok susan we do have alot...
  8. miamia
    oh susan- I am so sorry to hear how bad you are doing!!!! My god I wish I was there to give you a hug or at least sit by you- I am in the middle of a 3 day stool test and this morning I had to drink this really vial stuff I lay in bed after for an hour crying it made me so sick- think how we would have made such good company for eachother!!! I wish we lived...
  9. miamia
    Scott- anjelicas on 12th street between 1st and 2 nd has a gluten free list and in my opinion better food than candle. Rice - on 28th and lexington or mott street has a gluten free menu as well. Miamia
  10. miamia
    Yes I am just like you!! I get so cold below 60 for me is bad. I get such bad chills my whole body tenses up , I cannot layer enough. The only thing that helps me is a long hot bath. So in the winter I have to have at least one everyday. Miamia
  11. miamia
    don't apologize all of us are struggling and its hard!!! I think for me its more than just reacting to a food- but food- I mean defintly things like dairy, gluten and other things and I am sick for days but I think my system is so messed up that all food just sits bad. I agree its so crazy that there are so many of us- I sometimes want to print this whole...
  12. miamia
    Laura- Yeah I live in NY I went to the the top gastro doctor who ended up basically telling me good luck- no literally telling me that when he decided he coulden't help me . I went to the celiac center at colombia and the doc told me she coulden't figure out what was wrong and maybe I should go to this place - basically for eating disorders becaus eI probably...
  13. miamia
    ok you guys are convincing me - its time for me to start eating beef!!!
  14. miamia
    Laura- god your situation at the nhi sounds so familar I can't tell you how many doctors offices Ive been in where they just tried to tell me it was ibs or something else - so many doctors just want to have a diagnosis that is case book that thye forget that we are individual. At one point they tried to convince me I just had really bad GERD and wanted...
  15. miamia
    I was tested for lyme and it was negative. I have to get this stool test redone it is for parasites and candida it was reallly bad last time I took it so now that its been a while my doc wants to retest me plus some addons the test has I have to look over it I picked it up today. My doctors really great in terms of not giving up on me and understandindg my...
  16. miamia
    Julie- Biofeedback works on getting your brain waves- alpha beta etc to become more balanced so for me since I am n pain alot it is supposed to help with relieving some of it and getting my body and mind to relax and become more balanced. thats the rough explanation its more in depth. Miamia
  17. miamia
    does this mean they changed the recipe of their organic ketchup? It used to not be gluten free
  18. miamia
    Laura- happy to hear your first day at work went well. What exactly does your appt. at NHI entail? Miamia Julie I dont have nay appts. either- well biofeedback but I have that every week so I am not sure if that counts. How are you feeling? Miamia Miamia
  19. miamia
    Cranky dingo girl- oh i feel for you but on the other end I lost so much weight and then went gluten free but becaus eof it I developed all these other food intolerances and lost even more weight every once in ahile I think about eating gluten to see if I can calm the other intolerances and gain some weight back but I know from accidental glutenings its...
  20. miamia
    Oh god sounds like ewe have ahd he same diagnosies. I ahve been wondering awhile about my apartment and mold issues. Did moving help you? Why was it you felt you needed to move? Miamia
  21. miamia
    Laura- I completly know how you feel- I am the same age as you. I have not even finished school becaus eI just got to sick. I was a straight a student and never had to ask my parents or anyone for financial help, I worked I went out and now I am completly reliant on emotional and financial support from others for nearly everything. And ironically I just...
  22. miamia
    ever since I got sick I have become so affectionate. I love hugs- they are such good therapy
  23. miamia
    Rachel- this is one of my biggest problems I cannot seem to tolerate any of the supplements or meds that are supposed to help me heal. Even the most benign things seem to bother me. I ahve found a few things I can toleerate and I take them everyday but they don't seem to be enough to do that much. I also can't handle vitamin c even in the purest forms....
  24. miamia
    Rachel- I haven't been posting lately but I have been following. I am so happy for you to ahve gotten to the bottom of things hopefully- you give me hope that one day I will get to the bottom of what is wrong with me. For now I'm still struggling to figure it out Miamia
  25. miamia
    these are good I agree- I like them best with peanut butteror some nut butter but I also make them with pesto sauce and vegees Miamia
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