penguin

When I was at Starbucks today (not my usual one) I asked them to clean the blender before they made my frappucino, because the java chips have gluten. I said "I'm allergic to the java chips, please clean the blender". The teenager taking my order made me repeat three times, and didn't tell the person making it. I got the maker guy's attention and said that I would like for him to clean the blender first, and he said "well we rinse 'em". Great. I said that normally they sanitize one first (power washing and heat are my friend) and then he had the balls to say, "so are you like, really allergic?"

No, I just get a kick out of making things difficult. Since when does it MATTER. He was a manager. Dipstick.

ChelsE,

Was that east BFE or west BFE? Also did they ask you to supersize?

Tom

East, between Texarkana and Dallas. And no, no supersize, because the chick was so DUMBFOUNDED that she lost her words, and apparently, her grammar.

Cool! Is that something that can be done through my doc, or no? Also, do you think I should have my son tested? And if I do have him tested will it reveal whether he has the gene, even if it has not been "turned on"? He doesn't show any signs, but I'm afraid to get him tested at all, because his school does not accept anyone with any special diets - he really loves his school, and it took us a while to find it. The public schools where we are are awful, and all the other private schools are upwards of 12k a year, which tax write offs for food or no, we just can't afford!

(I feel silly for even saying this - the thought of having him tested occured to me yesterday, but then all I could think of is if he's positive, he can't keep going to his school.) Arg.

Lil

Unless he has any symptoms at all, he doesn't need to do the diet, even if he has the gene. It just means that he might get celiac "switched on" further down the line, and even then he might not. It's like having a gene that makes you more suceptible for rheumatiod arthritis (another autoimmune). You're fine as a bouncing child, but it gets switched on later in life. You don't take bextra your whole life just because you have a chance of getting RA at an older age. It's a crapshoot. No worries with the school right now.

Systemic reactions to skin tests happen, I'm allergic to freakin' everything BUT food and I was sneezing and stuffed up.

You had an allergic reation, not a Celiac reaction. Celiac isn't an allergy.

To have a Celiac reaction, the gluten actually has to make it to your intestines. Maybe you're just plain allergic to wheat, also.

Why can't we have a cool celebrity...like Angelina Jolie

Because Angelina is too busy adopting Ethiopia.

Clinique is under a huge umbrella of companies including MAC, Estee Lauder i think, and several others.

They always list gluten ingredients, and while it won't always be clear, it will always be listed. The only ingredients on a list that were gluten and didn't say "wheat" or "oats" is when they used the scientific name. I believe trictum vulgare is the scientific name for wheat. Make sure you look for that.

I found the post with the full listing of ingredients!

Open Original Shared Link

My guess about vaccinations being triggers for autoimmune diseases is because diseases work by injecting dead viruses in the body so that antibodies are created and the body is tricked into thinking it's had the disease.

Autoimmune diseases are usually triggered by a body trauma, like pregnancy, injury, and especially viruses. IMO, you're better off with the dead virus than the live virus. At lease the immune reaction is less, generally, with vaccinations.

To me, vaccinations are a lot like antibiotics. They are great for treating potentially life threatening diseases, but not for all people. Some people react to antibiotics, but that doesn't mean they aren't good for anybody. Theres the issue of overusage, but that's another argument.

If you are susceptible to autoimmune diseases to begin with, it's really just a matter of time. You're a time bomb. For me, it was mono. Huge assault on the immune system, but there was nothing that could be done.

You might try using gelatin in some of the rice milk to make it thicker. That may work...

Nope, they're all the same. Here's an article from medline plus (national institutes of health):

Open Original Shared Link

Look under alternative names, and you'll see all the synonyms....

Bleh, no wonder doctors are clueless

Being new I do not know what the difference between celiac and celiac sprue is, can someone tell me?

My dr. said I tested positive for celiac sprue. Thanks

They're the same. Celiac Disease, Celiac Sprue, Non-tropical Sprue, and Gluten enteropathy are all the same. The one that's not celiac is tropical sprue.

It's very confusing.

Tylenol and a hot bath are what I normally do to help ease the pain. Also, laying on his back propped up some may help, I find I hurt the least in that position.

I hope he feels better soon

I logged on yesterday and the layout of the treads had changed. It now shows the original post in full text, but the subsiquent posts are just listed on the bottom and you have to click them to read. I thought maybe Scott had changed the site layout, but when I logged on later on a different computer and it was the same as always. Does anybody know if their is a way to change computer #1 back to the original layout? I like it better....

OK, on the top right hand corner of the thread box, to the right of the title on the blue bar, there is an options tab. Click on that and go to "display modes" and click "switch to standard". It should go back to normal.

I've had it randomly switch on me, too.

Fingers crossed, Lynne!

Hopefully this is the answer you've been searching for! We can hope!

Goooooooooood luck!!!

Beverly -- my husband just did the same thing! He has been gluten-free with me (pretty much exclusively), has a little gluten now & then. He went to Buckheads for lunch today -- don't know what he ate, because he came in clammy & sweaty, with body aches. He said that, about an hour after lunch, he started with the big D that didn't stop. He's NOT celiac. I think it's pretty interesting that gluten can do that to him . .. . .

Lynne! Good to see you're on!!! Are you back yet, or just visiting?

Is the computer still sick?

What makes this better then the $19 one, ad what do you use a food processor for? I have never owned one in all my 31 years

In my case it was better than the $19 one because someone else bought it It was a wedding gift.

Let's see...I use the processor for veggies and fruits for either lazy chopping or pureeing. I also use it to make the dressing for potato salad/cole slaw. Chopping nuts (almonds and peanuts only, allergic to others). It's also very useful for cutting butter or shortening into whatever flour mix for pie crusts, though I still use a pastry blender for that.

There's also a shredding blade, though I've never used it.

Cuisinarts are up there with KitchenAid, they last forever and have a lot of power. I'd reccommend it!

I'll be up front and say that lately, I haven't been a great employee, too much crap going on. He's been really understanding, though. My primary talent at the moment is flirting with our board members so that they're more compelled to donate to our great oranization. That and updating spreadsheets.

Anyhoo, he told me earlier today that he had lunch with a friend yesterday and she was talking about the whole foods gluten-free cookies, from their bakehouse and he asked if I knew anything about them. It may have been sick curiosity on his part, but...

After the board meeting today, I guess he went to Jamba Juice inside a Whole Foods here, and decided to get some of the gluten-free bakehouse ginger molasses cookies. He's doing weight watchers, so maybe he just wanted a cookie. But he gave me the cookies!

They're good, actually. I've never tried the gluten-free bakehouse stuff. Kind of a taste-no-evil, buy-no-evil kind of thing.

The man bought me gluten-free cookies. Who's boss buys them gluten-free cookies? Man am I spoiled!

My boss is the bestest ever!

In other words, where are expertise and experience really important: in performing the procedure or interpreting the results? Or is it truly both?

Another question. Do I understand correctly that biopsy is the logical next step after the initial positive blood test? Or do I need to do a more comprehensive blood test first?

If you have positive bloodwork, you have Celiac disease, plain and simple. All an endoscopy would do would be to see the extent of the damage, and to have a baseline I suppose in case they want to check your progress later.

My dr told me not to do the endoscopy when seeing if the diet worked would yield the same diagnosis. Just my dr. though, she's all for minimally invasive.

If you do go to a gastro for an endo, both procedure and interpretation are important. Several samples need to be taken for a biopsy, and someone who knows what they are looking at need to see the results.

This is the one I have:

Open Original Shared Link

Combo blender/food processor. I swear by cuisinart, and it's served me well so far. It's also nice that I don't have a big honkin' processor and a big honkin' blender taking up space seperately in my cabinet. Makes a mean milkshake!

Sorry, but the whole thing looks pretty quacky to me.

Polio, anyone?

Nessa, I had my 30th birthday 2 weeks after I got my diagnosis, and my mother ordered me a gluten-free birthday cake from these guys: Open Original Shared Link

It was the BEST cake me or my husband (who is not gluten intolerant) had EVER eaten!! We couldn't get over how insanely delicious it was. It was a chocolate one. They do mail order and make a range of different cakes, you can speak to them and request whatever.

PS: Your Mother-In-Law is being selfish and ridiculous!

I second Wild Wood Art! They're based here in Austin and it's a whole cafe full of gluten-free stuff, if you ever get the chance to visit. They run an extensive mail order business. I've had their carrot cake, and it was really good! And their sugar cookies are probably better than gluten ones. It's a little spendy, but it's really good. I bet they could hook you up with a gluten-free wedding cake. Maybe they can ship it unfrosted and you can get someone local to decorate it!

You could find a gastro that's associated with Winthrop Hospital, since it's a teaching hospital, you might have better luck finding someone that's up to speed with Celiac. The program is reputible, since they're associated with SUNY Stonybrook.

Long Island Jewish has some good doctors there as well. I'm always wary of private hospitals, though.

You know what the moral of the story is here?

ALWAYS GO FOR THE ICE CREAM

Ran out this am to surprise my non-gluten-free fiance' with some donuts and oj...(he was thrilled) Go there often to get baskin robbins pistachio almond ice cream (yum!), but decided since it was am I would just get a regular coffee.

Was careful about touching donut bag, etc. washed hands, and didn't even take the lid off of my coffee....but had a BAD reaction.

Can't think of anything else it would be. Has anyone else had a problem before?

Dinner night before was gluten-free pizza from Jules Thin Crust -- and hadn't eaten anything else...........

Thanks!

Coffee in and of itself doesn't bother you, does it? Sometimes it irritates my stomach for no reason sometimes, a great diuretic

I am glad to try to answer what I know! I was diag. with FSGS with my first biopsy. This all started in Mar. 05. April was testing to get ready for transplant at the U of Arkansas Med. Sciences, May was testing and then diaylis. and the transplant was June 1, 05. The team there is wonderful. I couldn[''t ask for a better one.

Sorry, off subject, but UAMS!! Awesome!!! My grandfather is currently in the VA hospital next door and he had a valve replacement at UAMS. My mom and my mom-by-heart were both nurses there many years ago. My mom-by-heart teaches psychiatric nursing there. Come to think of it, she's all over the LR tennis scene, too.

Can you tell I'm homesick?

I hope you're getting taken care of!