gfp

I can understand it both ways, but we are the ones who have major difficulties to deal with and asking my family, friends and co-workers to sit there and eat without me having the opportunity to do the same is just not right. Most of us are not talking about walking into a resteraunt by ourselves and taking up a table without ordering food. Whenever I go out to eat my party more then pays for the table so if I bring a little food along then that should be more then acceptable (if I have a medical condition which requires me to do so). This is a disease and a medical condition that can have long term negative results if our diets are not appropriately regulated, so we should be allowed some breathing room on this one. All resteraunts have to be handycapped acceccible in today's day and age so that people with disabilities have the same opportunity to eat out as the rest of us, so why is Celiac not considered the same type of thing?

I'm really sorry you would be embarrassed if someone you were eating with pulled tupperwear out of their purse, but you have the choice not to eat with that person and still eat out, but you think Celiac patients should be asked to not only NOT eat out but if they chose to eat out to just sit there and eat nothing while everyone else gets to chow down. I know that is how resteraunts make their money but not eating resteraunt food that isn't guaranteed to be gluten free is how I save my life, and I should not be punished because resteraunts won't offer what is safe for me.

Please don't think that I'm coming down on you in any way because that's not what I'm trying to do here, so I apologize if this sounds in any way like I'm being snotty, or b*tchy, but I already have to give up 90% of the american diet and it's just not right to ask me to give up eating out too.

Well its a bit of both really ....

However "and it's just not right to ask me to give up eating out too" .. some people have to give up all sorts of things, being in direct sunlight or a whole multitude of other things.

It really isn't fair but that's life...

From the resto's POV they are in the business to make money... and their real problem is more their lack of understanding of what gluten-free really means than trying to be deliberately unfair to you.

From their POV people pulling out there own food looks bad... and you could say the same about a server who refused to hide a tattoo etc. or (why should they be able to discriminate against someone who has a tattoo working for them or long hair or ... )

At the same time it is our families and coworkers fault as well for expecting us to eat out and not really understanding...

Then we have ourselves collectively to blame for mixed messages ...

In other words its pretty complex and catch-22 ... while people in general don't understand we are the ones being inconvenienced, poisoned and ill.... certainly not fair but ...

If I buy a bowling ball or pool stick while I'm on vacation out of state should I not be able to take those to my local pool hall or bowling alley because I didn't buy them there? If I go to a waterpark should I not be able to swim there unless I buy my bathing suit there? They are in the business of selling pool sticks, bowling balls, and bathing suits, but you can still bring stuff in from outside if you want.

However if a bowling alley or pool wants to stick up a sign banning that then they have an equal right as not... if it turned out a set of pool stuff like inflatable balls made in some 3rd world country had a toxic paint then it might be quite sensible to say only inflatable balls bought at the waterpark can be used etc.

This could turn ridiculous, like why ban pets from the waterpark "can I take my 30' anaconda or gator" ... and it all depends on circumstance...if you don't like the resto don't go.. that's how a free market works... I would probably be with you on boycotting the resto and encouraging others to but blaming the resto isn't really fair either...

There are studies saying 20ppm is safe, personally as they are funded by the food industry I prefer to remain sceptical...

More directly I know I react to the 20ppm stuff... if not immediately as you say over time it seems to build up... and in some ways be worse than a big glutening because of the way it creeps up and by the time you put your finger on it your in such a bad shape it takes longer to recover.. just my 2c though

Happy whatever it is !!!

steve

Well it's not so easy..

The difficulties are two fold...

The simplest is that the 'normal' ranges are used and these have a wide range... your antibodies will drop off over time and this is pretty individual, not only for the person but also the time in your life and other health issues etc.

The results will be compared to this norm so a 'slightly elevated' might be significant given the amount of time you are gluten-free but MD's prefer nice categories.

Well, I got some chelated potassium and magnesium yesterday ...

Will report back on the results vis a vis cramps ....

You do not develop an intolerance or allergy simply by thinking it, that isn't possible! I am reading a good book right now called, "the Mood Cure". It talks a lot about how gluten has been an evil in our existance for a very long time now and it has nothing to do with celiac disease. It talks about "bad mood" foods and "good mood" foods and it does tell that it is not good to eat the same things all the time. It tells that variety is necessary. I have fallen into the same trap you have. I eat the same things all the time, because I have found a certain number of things that do not make me sick. The problem is, now I am not getting all of the different amino acids I need for the rest of my body, so now my adrenal glands are shutting fown and I am having other problems. I have been to a consultation with a certified health counselor, which she says she can help me get this all figured out, she too, is a celiac, but I am not sure I can afford the price. Now, I am in a "catch 22"! What have I let celiac disease do to me now? It was destroying my life before I knew I had it and now it is destroying it again. So, now I have got to start over again and rethink how to move on from here.

Try not to get where I am! Eating the same thing everyday will not make you develop new intolerances, you can't think yourself into new intolerances, but you can starve your body of what it needs, totally by accident. We do not do it on purpose. We only want to feel good, we only want to wake up and say, "Wow, I feel great!" I can't remember ever saying that! I want to say that one day! Read this book and see if you can find the answer too. The answer may be there for you too. I am so exhausted, it is taking me forever to get through the book!

I can't agree more with Deb.. Its so easy to fall into that trap, I did it myself too.

Well, maybe you should have some blood work done and see just what you are missing! That's a good start. Can you eat bananas for the leg cramps? My mom always swore by mineral water, she hates bananas. Are you drinking enough water?

I think the intial problem is effecting your performance, but your performance is not the intial problem, if that makes sense. What you are going through is a trickle effect. This happens, which effects that, and then that effects this, which effects that--I'm sure you understand what I am getting at. Our bodies are very complex and when one thing is out of wack, then others are too. Neurological problems are very difficult to pinpoint--start with your doctor and go from there, even though I know many of us have very little confidence in our doctors at times. Yet, they are a starting point! Good luck!

It all makes sense and I was wondering about potassium and magnesium ...

You simply are not in the right place at the right time with the right person. Bob

Um... well I guess I was beating about the bush a little...

What I mean is that when blood flow is diverted because of arousal then the cramps in my feet and calves just seem to trigger much more easily.

I think your correct about the place and time thing but only from the one side... that is it doesn't solve the cramping.

When the time and the person is right you will find that the past will stay in the past.

I guess the time and person isn't correct together.... hmm .. some of you might get a pm ...

Even then, it can't stay there forever. It's bound to get less and less as you cook in it and scrub it each time you use it.

True but the other half of the issue is knowing where you might be getting CC from....

From personal experience I find overkill useful in the elimination process..

That is even if you think it might be the pan and you're feeling your getting glutened somewhere it just adds to the possibilities...

Far better IMHO is to get 1-2 new but cheap pans.... once your SURE your not getting CC you can try the old pans....

For really effective cleaning on STEEL PANS (Do not do this on aluminum) Do not put oven cleaner on aluminum especially in the OVEN...

1/ Use the strongest over cleaner ... stick in the oven... let it do its thing then wash...

2/ Get one of the wirebrush/emery attachments for a drill and really attack the insides of the pan

3/ Repeat this 2-3 times....

The oven cleaner will degrade anything organic... but it can also cause a hard (protective) carbon shell... the wirebrush/emery breaks this back open to attack...

I'm not sure this is something easy to explain as much as experience....

Its like describing a piece of music or art work.. words only describe so much and the subtleties are lost ....

From my personal experience and what others tell me is perhaps a starting point...

One way I feel is like i'm in a strange in-body-outa body experience... I don't mean I'm looking down from the ceiling or anything but that I'm very detached and introverted to the point of being 'in another world'...

Things happen around me ... and I'm aware of them but they seem detatched, like watching it on a movie...

Often I say things i don't mean to say.... though they are often what I mean..(this is the adult perspective)...

For instance I once told my boss "I can't see the point trying to explain this technically because you will not understand it" ....

Now... I actually meant that.... and it was true but it is self evidently not the best way to put it and a somewhat career limiting statement..

The problem was I knew this..I just couldn't help it... its like trying to switch channels on the TV when the batteries on the remote are going... or the volume is on full and the damned thing won't turn down...

The thing is I often end up being mean but as a "LEAVE ME ALONE!!!!!!" (yes the caps are deliberate) ... its not that I WANT to be mean... I just don't have the patience .. one thing I really don't want when I feel like this is ATTENTION .... but its catch-22 "Are you OK??" "Is something wrong??"

"No please just leave me alone"

But ... the problem is :

"No please just leave me alone" tends to actually have the inverse effect!!! So don't get me wrong .. I do try... but I get tired of keeping trying and each "No please just leave me alone" just getting more questions wen the last thing I want to do is communicate with ANYONE....

OK,.. read on... you were warned.. and this is just a little embarrassing...

and seriously you have been warned...

So for those who don't know I guess it should be said I recently (a few months ago) split up a long term (5yr) relationship in a very messy and traumatic way... the relevant part of which my girlfriend was having an affair she denied even when I found out and worse I believed her even against overwhelming evidence for quite a while...

So for those who have no guessed ... the embarrassing subject is sexual performance...

On one part I know a great deal is psychological... I'm currently in a relationship of sorts ... and one recurring problem is that ... well I keep thinking of sex with my ex in the time she was having the affair and basically screwing the other guy and then coming home and screwing me... It's a pretty big immediate turn off ....

However ... on top of this I have been having other problems I feel are related... I have had really bad cramps .. my toes screwing up, calves knotting etc. and this is pretty much half the day if I do anything to provoke it... at one point it was getting worse and my left hand was doing the same cramping though this seems to have relaxed a little...

The link seems to be blood flow.. i.e. not to put to fine a point on it... when aroused ... and this is hard to tell if my lack of you know what is due to the bloodflow, the psychological issue or both (I suspect a bit of both)...

Anyone noticed anything similar??? It seems like a peripheral nerve or vascular problem? Otherwise healthwise I'm pretty good... working out and pretty trim... basically anyone seeing a photo of me on the beach is going to have me down as a poster case for a health magazine.. (sorry a bit big headed but better to be honest) ... I lost tons of weight in the break up and put it back on by working and eating very well ... but I feel its all just cosmetic to a large point ... I'm lifting weights pretty easily... but still have the cramps and also more frequent headaches and I don't think the problem is 100% psychological... yeah OK, I'm 40 in a few days... but prior to the break up and loosing a HUGE amount of weight (when I wasn't overweight to start out) I didn't have any real problems... it was hardly like I was 18 but I certainly didn't feel anxiety or performance probs...

My thoughts are the cramps are a dietary imbalance ?? Potassium ?? but I really don't know....

Yeah me too ... Its just the byproducts .. which as we all know are not great for us .. but hey gotta live.

Are you CERTAIN its a cold and not allergies?

I spent a long time thinking I had 'colds' that turned out tobe allergic reactions (hay fever, city fumes, budgies to name a few)

Symptoms are lots of phlegm ... and headaches and the constant phlegm causes me to cough and irritate my throat..

These disapeared almost completely when I went 100% gluten-free... and now return if I get the slightest hint of gluten.

I don't think it's down to our forefarthers home country or race,

I believe if you have the pre-disposition to Celiac it's not a matter of How but When!.

Pretty much true.... however Americans always seem to think there is such a thing as Irish or German etc. when most Europeans realise they are all mixed up.

I think it goes back to when their family emigrated and they presume they must have a 100% pure blood line prior to that date or something??? Most of the 'incidence' differences are just down to the fact once it becomes prevalent more people are tested and doctors become more aware. Italy has a fairly consistent 1:200 incidence despite the huge genetic differences between North and South. (the only real genetic link being the Scandanavian one from the Lomards and Normans)...

Its funny for us Eurpeans to think that someone with blond hair and blue eyes from Lombardy is genetically closer to someone with very dark skin and afro hair from Sicily... not to mention Italy didn't exist as a country until Garibaldi in 1878... or that a Hindi family living in Rome (perhaps for over 2000 yrs) are somehow closer than a Austrian to some Italian genotype???

If you still have gluten around the kitchen then they will not really be gluten-free anyway...

(really like blueeyedamanda said)

For the rest... I dunno, if kids were to eat what they liked then it would probably be a pretty poor diet!

The gluten-free bread is rubbish .. sometimes the homemade is OK but mostly i just avoid it!

You can make decent toast .. but really its never the same as fresh bread so the kids will keep being dissapointed...

However gluten-free cookies and cakes work better, specially ones like carrot cake or corn bread etc.

How about giving them a few treats instead of the bread??? Its a compromise but hey...

I'm not exactly sure who told who what and in what country, but maybe the issue is that the Hindu Association asked about the fries, McD's answered assuming (conveniently) they were talking about India. I agree with the lawsuit based on the fact that there should be more transparency in food labeling (ingredients in "secret" recipes still need to be disclosed in some way), but I think there's a lot more behind this than is seen in the article. And again, although I think McD's "technically" answered correctly, I think they were still in the wrong because it doesn't take a rocket scientist to realize that when you give an answer like 'our fries don't contain beef' you need to qualify that statement. I feel there's so much cover-up going on in the fast food industry about what's in the food and how bad it is for you, that I stopped eating there long before I got celiac.

Well I think this is all the problem.

This is just the first link but at the time I read more. People had letters (in America) from McDonalds saying the fries WERE vegetarian (following the change from using tallow) The final wording of the settlement is a compromise (obviously) ...

The reason this is important is I read the whole analysis of McDo's oil for the fries AND it definitely says they contain gluten. However it is written in such a way that unless you are reasonably proficient at reading analytic reports it seems to say the opposite. The whole preface only mentions negative results on the ELISA and it it only 1-2 lines buried deep inside that mention the positive RAST testing for gluten specific proteins.

As you say "our fries don't contain beef" needs qualifying but they rely on people taking this at face value. They don't say "bovine derived products" because they deliberately write in a way that this would sound inappropriate. That is they keep the writing conversational and dumbed down hence "beef" is taken to mean (in context) stuff from dead cows.

At the end of the day the issue of CC is probably as or more important but to me the company set out to deceive.

As I posted direct from the McDo website, the fries are NOT gluten-free but you have to search for this and its made difficult but it's there... (in other words for legal reasons they can say its there) . Like with your "beef" example... on has to ask very specific questions BUT since they know that when we are confronted with an "employee" on minimum wage they know we will not be able to ask those very specific questions ..

Each country is different ...

UK you can get stuff in supermarkets reasonably easily .. there are quite a few that label reasonably well but look for WHEAT FREE as well as Gluten free. Some of the London supermarkets have almost nothing in the specific gluten-free ranges. You can usually buy cooked meats etc. ready sliced and many are gluten-free

Eating out is a mixed bag.... many places will say no problem but in reality you will get CC etc.

France: Harder but stick to the simplest. In summer I eat Carpaccio and steak tartar since they are uncooked ... this means they have to be handled and stored seperately = less chanceof CC and not cooked in the same pan .. watch out for fries cooked in the same oil

If you can pay for the better resto's then you have a better chance...

Italy.. A dream... Many resto's have specific menus there are even gluten-free pasta and pizza places.

Open Original Shared Link

List them by region. In Italy you can actually get really cheap safe food ...

I certainly don't trust McDonalds, but I think part of the problem with this was that they did not use beef in their fries in India but still used beef in the USA. So when someone in the USA asked about the fries, they assumed that the fries in India were made the same way.

Open Original Shared Link

It is a completely callous, insane idea.

It really is.... I honestly think if we looked at this out of context it is the sort of thing you would see on a TV programme like house!

1/ We have a patient becomes ill when eating gluten

2/ (optional) We have blood tests showing this

3/ We have a patient respond well to a gluten-free diet

4/ We ask the patient to damage themselves so we can have a 'golden test' for our diagnosis

5/ We do a biopsy... its either positive or not certain. So we either continue to subject the patient or not.

6/ Regardless of 5 we are back where we started ... a gluten-free diet.

The only value of a biopsy is to check for any other damage .(and this does not require eating gluten) .. even if its genuinely negative (not a false neg which cannot be sure) then what does it mean... there is a large (I would say very large) chance the patient will eventually develop enough damage to be positive if they keep eating gluten.

In the meantime... as Ursa said, neuro damage, depression, thyroid problems ... can develop.

If this was any other disease it would seem crazy to deliberately make a patient ill to diagnose what cannot be treated other than a gluten-free diet.

If it was something required drugs with a lot of (potentially dangerous) side effects then obviously that is different ... but it's not.. there ae no drugs, just a gluten-free diet which is perfectly healthy ... and if 1:1000 are incorrectly on a gluten-free diet because of lack of testing ??? Its not like they are taking a dangerous drug ... they will probably have a healthier diet gluten-free anyway and no harm is done.

100% positive the fries are gluten-free.

their website lists it, and if they were wrong they could be sued for millions of dollars

and it's in this book that i have, its basically a foundation that finds out whats good and they personally go to every place and verify that its good.

dont worry

The testing they did said conclusively that the fries did contain gluten. If you find the actual PDF document (and I don't have time now) it is written in such a way as to make you think its negative because they start off with a ELISA test which was negative then write a whole lot... later on they have the results of the RAST test which were positive...

From theMcDonalds website

Small French Fries

Potatoes, vegetable oil (partially hydrogenated soybean oil, natural beef flavor (wheat and milk derivatives)*, citric acid (preservative), dextrose, sodium acid pyrophosphate (maintain color), dimethylpolysiloxane (antifoaming agent)), salt. Prepared in vegetable oil ((may contain one of the following: Canola oil, corn oil, soybean oil, hydrogenated soybean oil, partially hydrogenated soybean oil, partially hydrogenated corn oil with TBHQ and citric acid added to preserve freshness), dimethylpolysiloxane added as an antifoaming agent). *CONTAINS: WHEAT AND MILK (Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients.)

As for trusting McDonalds they lied for years to the ameriocan Hindu Association about the fries being vegetarian and not containing beef.

Open Original Shared Link

Quite why people choose to keep believing this in the face of facts is beyond me but this is from the McDonalds site.

Hi folks,

I'm so floored right now. Something that wasn't supposed to have anything to do with my personal medical records was added to them because of a billiing error, not to mention that they billed my insurance company, which also wasn't supposed to happen. At this point, they can't remove the information from my medical records because of federal law.

This is how it happened:

I went to the endodontist and the assistant pricked her finger (after I left) with a needle that had been used on me. subsequently, I rec'd a call from them requesting that I go in for bloodwork because the gal that had been pricked was taking precautionary meds to halt the possible progress of HIV or Hep C or B, and it was making her really sick.

So, as a favor to them (because I understand the emotional torture of not knowing whether you have a life-threatening virus and because I understand how horrible some of those drugs can make you feel) I was more than happy to go in for testing. So, I go in & sign the releases - 1 for them to release the records to the Endo & 1 for the results to be sent to me. Well because I happen to be a patient of this HMO (not for long - I plan to cut all ties with these guys after this) and because the stupid lab that processed my bloodwork blew it, my insurance was billed and they tied it to my medical records. I was assured when I went in (again, as a favor) that I, as a patient, would have nothing to do with it and they would be billing the Endo & not my insurance.

This has nothing to do with the Endodontist - they did everything right - it's my medical group I'm aggrevated with.

Here's the problem (2 problems): I never received the results (I was supposed to have them 2 weeks ago). I don't know if anything came up positive or not. Now when I see my nephrologist, there it is in black & white. What if (long shot) it's positive for one of them? How's that gonna affect my ability to get insurance if my husband changes jobs? And, also, I won't be the one telling my nephrologist about it - it's already there ! They assure me that the charges will be re-imbursed to my insurance.

I don't think anything came out positive because the endo says that the doctor took the gal off the meds, and also I was tested when they were trying to figure out what my kidney disease was connected to. I didn't have anything 4 years ago - I just feel invaded !

They're (the HMO) sending me a complaint form that I can fill out and send in RE: Invasion of privacy, but I almost think it's a CYA for them. Like 10 people have called me today from the HMO about this. Apparently, when I said "I don't think this is something you should be taking lightly", they listened.

Oooooh - I'm sooo mad

Usually, I'm a pretty friendly kind of gal, but I'm so pissed right now !

Maybe just a vent, but wouldn't you be mad too?

Ok, insurance aside.... Why feel bad about being tested?

This whole stigma thing is so stupid ....

Firstly the worst possible case.. lets say you had cause to want to be tested because you had unprotected sex with a stranger .. Ok, a bit stupid in todays age but YOUR BUSINESS all the same... but this is just one reason for being tested!!!!

A perfectly valid reason is you are a nurse and prick yourself with a needle, a guy who someone stabs with a blade for no good reason... or like me just a dumb guy who's girlfriend was having multiple affairs!!! Why should I fel stigmatised by being tested whe she was the one sleeping about???

Does it make me mad too? Yes ... but who is more stupid? Someone who has been put at risk and then forgoes testing and risks infecting someone else or someone who takes responsibility and gets tested???

I recently had to get a full suite of STD and HIV tests because of my ex girlfriend cheating on me... I didn't try and hide it from friends or family.. what did I do wrong??? (We were together for 5 years) ... I doubt she has even considered it... so really who should be embarrassed?

So I just thought that might at least put it in a different light... Not everyone who gets tested has done anything wrong!! Indeed I bet its less than 50% since those stupid enough to take the risks are probably the last to take responsibility

The insurance might be a different matter though!

My 14 yr old son has had celiac for the past three years. I just found out I also have celiac (ate gluten for 3 months before test). My question is my 27 year old daughter has the signs of celiac but her blood test came back neg. Is this common for a mother and just child to have celiac and not the other children. I also have a 24 year old son and don't know if I should have him go get tested. My son that has celiac is also has type 1 diabetes. We found out he had celiac after his yearly blood test that the doctor does. Can you go years without Celiac showing in the blood test .....

melissa

Difficult question... My mom and I are both diagnosed and my brother manages not to be. He chooses not to do a gluten-free diet but I honstly believe it would benefit him regardless of the test results since his 'symptoms' are very much like mine and my mothers when we are glutened.

Hi there! I'm new to the forum and I'm really hoping that I can find help here because I feel at crossroads here. I first suspected Celiac Disease 2 years ago when I began experiencing the following symptoms:

- bloating and gas

- extremely itchy rashes after eating gluten

- mood swings and depression

- stomach pains

- inconsistent stools which can be hard or loose, sometimes with blood in them

- extreme fatigue

- trouble breathing

- brain fog

I've been gluten free for nearly 2 years now and feel much better and happier. Although sometimes I accidentally eat gluten and get some of the symptoms again.

I've seen several doctors and had a blood test done which was likely a false negative since they told me I didn't have to be eating gluten prior to testing. I then saw my family doctor who does not know much about celiac disease. He referred me to a gastroenterologist. I saw her a few weeks ago. She said that if I want to get tested for celiac disease then I need to be on a gluten diet for 3 months. That's an extremely long time so I'm quite scared of what's going to happen to me. I'm still not sure if I want to go through with the test. The doctor at the clinic on my school campus recommends that I go through with the test to confirm if I have celiac disease since it can lead to other serious illnesses like cancer. He also believes this will end questions about whether I truly have celiac disease or not since it's still up in the air.

At the moment, I feel trapped and helpless. I just read that after being gluten free for so long, going back on a gluten diet for 3 months won't guarantee accurate test results. And frankly, I'm not willing to go through this torture for nothing. Also, I dont' know if there's a point in being tested if I know I feel better being gluten free. The only upside of being tested is that I'd know if I have celiac disease and also the tax breaks I'd get if I do since gluten-free food is insanely expensive.

Can someone please tell me if 3 months on a gluten diet prior to testing is recommended? I'm hoping to get others' opinions and advise concerning my dilemma. I feel so helpless! Any help at all would be much appreciated!

I feel very strongly on this so sorry if this sounds strong. I very much doubt your doctor would put themselves through this or their child!

What your doctor is asking is for you to deliberately go and damage an internal organ.

Smoking also causes cancer... imagine going to the Dr. and saying your concerned because you have chest pains etc. your so concerned you quit smoking for 2 years and they x-ray you and find a suspect lump.... then they biopsy and find its benign. Would your Dr. then suggest you go back to smoking?

Eating gluten to damage the intestine enough simply to get a 'test' is IMHO beyond sick. Any Dr. who even suggests this should be sued until they end up begging on the street. I can't express how SICK this is...

I once read one medical paper written by a Dr. who spent seven years giving what was initially a young child repeated gluten challenges and 7 years later he got a positive biopsy.

How he could publish this is beyond me... this sort of behaviour should end in nothing less than a very long custodial sentence for the MD. The actual aim of the gluten challenge is to damage the intestine sufficiently to be found on a biopsy.... If this wasn't real life I'd be convinced, its the sort of thing House would do with a throw away statement like "it will either kill them or we get the diagnosis"

In this 3 months you will be wrecking your villi and they might never heal (unlikely at your age but possible) and also taxing your thyroid and immune system risking neurological damage and cancer ... and If the test is positive the result will be (wait for it) A gluten Free diet.

Sometimes, in a misguided bout of false hope, I'll read some cerial box ingredients at the grocery store. You know the drill. Corn, good. Rice, good. Everythings looking OK until towards the end. Then there it is, wheat starch. Or malt flavoring, or simply wheat. You know since it's at the end, and based on weight, it's got to be a miniscule amount. Surely it couldn't be that critical to the formulation.

Seems like they just throw that stuff in there so as not to have to deal with us.

best regards, lm

I guess its just short cut... and extremely cheap as its essentially a waste product.

I have to admit though, sometimes it FEELS like they just throw it in for good measure...

I know that proteins are normally broken down by digestive enzymes then absorbed into the blood stream to be utilized for our own protein synthesis, but gluten proteins are proline and glutamine rich and have a hard time being digested. Therefore, 50 amino acid peptides are commonly absorbed into the body and can make their way into the milk supply, supposedly in small concentrations. I know for a fact that when I was breastfeeding my son my milk was making him sick. As a baby he spit up constantly and had numerous watery STINKY bowl movements each day.

Or more simply because IgA is definitively transferred in breast milk... he got your IgG about 12 weeks into the pregnancy when the placental barrier first allows blood to be transferred.

I also know that he does not have any common food allergies. Now I am putting him back on cow milk and I am a little concerned about him getting gluten through the milk. I understand that it would be a tiny amount, but my son seems to be quite sensitive to gluten.

Does anyone have any thoughts or experiences to share about gluten in milk? Does anyone know of any brand of milk that the cows are not fed gluten (I know it's a stretch)? I found an organic milk that states that their cows graze on organic pastures but I'm not sure what that means.

Thank you so much for any replies.

If we assume it was your antibodies, not gluten then there is no danger in cows milk (lactose/casein intolerances excluded) since cow antibodies are not the same as human ones...( even if cows produce gliadin specific antibodies. )

BAD BAD BAD ....

Food grade wheat starch is not particularly pure... its just what washes away from the wheat and bits of gluten get carried along and its 'food' so its not really important. I have had reactions to the much purer pharmaceutical grade wheat starch... used in some tablets as a binder/filler let alone food grade.