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celiac3270

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Everything posted by celiac3270

  1. celiac3270
    About a week ago a celiac friend let me try some ABSOLUTELY terrific choc. chip cookies -- better than anything you buy in a box and actually better than the old gluten-containing cookies you might make at home. I'm not a crazed cookie person, but I keep eating these constantly. I usually heat them up in the microwave so that the chips melt in and the whole...
  2. celiac3270
    You could also bring some of your own food in..........I've done that before -- and if they complain, you can explain in elaborate terms what would happen to you if you ate normal stuff and tell them about the intestinal wreckage and the fact that you're technically disabled because of the disease . What to bring....chips, I guess, although, I just...
  3. celiac3270
    No reaction -- no sickness -- no abdominal pains -- formed stools -- nothing. I doubt that it's the casein/lactose/dairy.......wouldn't it have hit me by now? It doesn't take days, does it? Anyway, I think it's SIBO still. But could I have some soy allergy? Cause it seems like a lot of gluten-free products contain soy and maybe I didn't have much before...
  4. celiac3270
    mmm...someone brought up cheesecake as a least favorite: that's probably my favorite dessert -- it's just I haven't had it since diagnosis. Jill also triggered my memory on coconut....yuck.....I agree.....
  5. celiac3270
    I said this under my bacterial overgrowth topic (post-diagnosis section), but I'm gonna show that article to my new celiac dr....I'm making a list of symptoms, explanations, and that article. Thanks again. -celiac3270
  6. celiac3270
    Sue (burdee), I know that you've suggested that I might have casein or lactose intolerance. Therefore, today I did a little experiment. The last time I ate a Hershey's Bar (a few months ago), I got sick after -- it might have been dairy after just going gluten-free. I know Hershey's are gluten-free, so that's not the issue. Anyway, I thought that if I...
  7. celiac3270
    You're doing damage whether you feel it or not......trace amounts affect everyone, it's just some will show visible symptoms (getting sick) and others won't.....you still have to be concerned with cross-contamination
  8. celiac3270
    1) 3 favorite desserts: hmmm.....brownies, choc. pudding.......most things chocolately, it appears. Oh, before limiting dairy, I used to periodically eat an entire tub of icing (the cream cheese kind of Duncan Heinz...sp?).....mmmm 2) Hmm...I don't really have something I dislike, but I guess I don't really understand the big deal about cake. I...
  9. celiac3270
    Richard, you've said before that celiac disease nearly killed you. How so? Were you malnourished to the extent that it almost killed you? Thanks.
  10. celiac3270
    Wow.....that stinks....why the hell wouldn't they want this allergy bill? I don't get it.........
  11. celiac3270
    Perfect......that's similar to the article on celiac.com, but a little more detailed, which is good. Anyway, I think I have SIBO since I still have symptoms and I know that I'm SO cautious about foods, contamination, everything! I bet I have this, like I've said before. Thanks for the article -celiac3270
  12. celiac3270
    New toaster......it's not too expensive, but it'll make a big difference. Crystal Light is great....I called Kraft awhile ago and it's fine. I don't know if it's sugar free, but it's gluten-free and really good. I drink it all the time. I like the strawberry kiwi the most, but their lemonade and pink lemonade are good also. You might want to...
  13. celiac3270
    I still think that you are just one of those symptom-less celiacs......I doubt that it's wrong and biopsies are as accurate as tests get....if you're convinced, you can have a different doctor run the tests or get a different lab for bloodwork....I don't think you were misdiagnosed, but if you do, you retest for it. -celiac3270
  14. celiac3270
    Yay! That is absolutely terrific! You mentioned not being careful about contamination, finding out a soy sauce you were using wasn't gluten-free, and now this! I am 100% sure now that this wasn't refractory sprue, but rather, a misdiagnosis by your GI due to a steady gluten intake all along....you found it! I was actually going to write you back later...
  15. celiac3270
    Wow....from early twenties to 41 years old....20 years of symptoms....and I'm fed up with 7 years of symptoms (6-13 years). That could definitely be it....often, misdiagnosed RS is from when there is hidden gluten that's mistaken to be refractory sprue -- cut out all the hidden stuff and you might find that you have no problems, after all. One...
  16. celiac3270
    Hi Karen, First off, don't believe everything your GI says....a true celiac specialist might be able to help, but my GI knew less than I did about celiac disease after awhile. Second, you don't know for sure that it's refractory celiac disease. Refractory celiac disease is defined as when your symptoms will not respond to the gluten-free diet. However...
  17. celiac3270
    Yep....I'm the older of two children in a family of four. I'm the only celiac in my family, so nobody else eats gluten-free, not because the food is horrible or anything, but simply because it is soooo expensive. It is a challenge to eat out. About fast food places, McDonalds fries are gluten-free....cooked in oil that is used only for the fries and hashbrowns...
  18. celiac3270
    Before I started the diet, five months ago, I was constantly sick and I felt really depressed (not technically/medically depressed, but felt down all the time). In addition, I was noticing an increasing irritability -- I'd snap at people for no reason. Since starting the diet I'm a lot less irritable and sad....even though I still have symptoms....so I...
  19. celiac3270

    ARCHIVED Nutritionalists

    celiac3270 replied to a topic in Doctors

    Makes sense....I went to Anne Lee (a nutritionist who works with Dr. Green; one of the most famous celiac doctors in the US). I don't know if she goes to support groups, but she tries out her gluten-free stuff on family (who aren't celiacs, but still used as guinea pigs ). I trusted her, especially since she works for a really famous celiac dr..........
  20. celiac3270
    Rian, If you find something in your post that you want to change, you can click on the "edit" button where you read the thread. I think it's in the upper right next to "report" and "quote". I nearly always edit my posts after finding grammatical errors or wanting to add something I forgot... Getting back to the main question: THERE IS NO WAY YOU...
  21. celiac3270
    Celiacs have internal symptoms at the slightest crumb of gluten....and some have external symptoms with one crumb, as well. Most doctors would recommend at least a month, usually 2-3 months of gluten. 2 months would probably be fine. Of course, all this depends on how much gluten your daughter has daily. Two meals for two months would do it.
  22. celiac3270
    Hi Deb, Moderators can't remove posts themselves. Therefore, you should probably PM Scott (admin) or e-mail him at scott@gluten-free.com. We can't remove your post, but he could. You could e-mail one of us, anyway, but we'd just have to relay it to Scott. Now, if your post is part of a thread.....and isn't that important so people wouldn't notice it...
  23. celiac3270

    ARCHIVED Nutritionalists

    celiac3270 replied to a topic in Doctors

    With my nutritionist, I was already 2 months in or something, so I knew what I could and couldn't eat. Therefore, a lot of the basic stuff wasn't helpful. She did, however, recommend some products that were gluten-free.....unfortunately, many contain significant amounts of dairy. So, it wasn't as helpful as it could've been, but then again, I was already...
  24. celiac3270
    Propel, too? And Jessica mentioned Powerade...cool......I don't drink that stuff often, so I never bothered to call, but this is great to know. -celiac3270
  25. celiac3270

    ARCHIVED Can My Gi Dr. Be Wrong?

    celiac3270 replied to EddieJP125's topic in Doctors

    Eddie, You're probably just a celiac without a lot of symptoms -- bloating, plus bloodwork, plus a biopsy would mean you surely have it, I would think. Some celiacs have no symptoms; you have very mild ones.
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