celiac3270
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Latest Celiac Disease News & Research:
Everything posted by celiac3270
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Is that magazine really helpful for celiac disease? If so, is it the best magazine? I was thinking of subscribing to something and heard about this magazine, but was wondering if it's really worth it -- and if there's anything that's better than it......I've never seen it, so I can't judge it, myself, but would appreciate the opinion of others who have...
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ARCHIVED Food Manufacturers Threatening Labeling Bill
celiac3270 replied to angel-jd1's topic in Publications & Publicity
I wasn't sure who to send an e-mail to, but being told that it would probably pass this next vote, I sent my e-mail to President Bush....shoot those e-mails out, people!!! We need this thing to pass or we're not going to get another chance for quite awhile. -celiac3270 -
A few more things...there's a Fairways (big grocerystore-type thing) on 74th and Broadway. It's really packed all the time, but the second floor has a lot of gluten-free foods that are also less expensive because they're not in a healthfood store... Don't know of any healthfood store locations in midtown, but can list some uptown if anybody will be...
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I did stuff like that towards the beginning. At school, for example, they always provide some sort of snack...in the beginning I found myself gravitating towards it, then remembering that I couldn't and stopping. In addition, I made the careless mistake of picking up a wrong box of cereal while on vacation earlier in the year......etc. I realized half...
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ARCHIVED What Are Yoyr Symptoms?
celiac3270 replied to HappyCat22's topic in Introduce Yourself / Share Stuff
Hi, First, welcome to the board. Second, your symptoms are not abnormal at all. There is such a wide variety of symptoms for Celiacs so no symptoms are "abnormal" in any way. Actually, you have some of the common ones. Common symptoms include cramping, vomiting, diarrhea, bloating, weight loss, fatigue, and weakness. You have the diarrhea, fatigue... -
ARCHIVED What Did You Find Most Difficult About The Gf Diet
celiac3270 replied to celiac3270's topic in Coping with Celiac Disease
I have two that sort of tied, but in the end I voted for symptoms.....that's the worst and is the source of my second problem: anxiety and emotions....thanks for replying so quickly...I realize that most Celiacs hate the symptoms, and many also have anxiety or great emotions....I was just wondering which outweighed which...etc....and I got my answer....thank... -
ARCHIVED Need A Little Advice, If You Will...
celiac3270 replied to jools's topic in Coping with Celiac Disease
I Live in NYC!! Hi Jools, I know of a lot of health food stores, but they're all uptown so they might not be helpful for you....there's also a Fairway's (big foodstore-type thing) at 74th and Broadway...go to the 2nd floor -- they have a lot of gluten-free food and its pretty inexpensive because you're not getting it from a healthfood store . PM... -
Hi, I apologize if anyone finds this a bit harsh, but nutritionists are usually a waste. I did a ton of research after being diagnosed and nearly everything the nutritionist said was stuff I had already heard. The handouts weren't very helpful and were repeats of everything I already knew. And, this was Anne Lee, the nutritionist that works with the most...
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ARCHIVED Got Some Questions About Gf Living.
celiac3270 replied to Alexolua's topic in Coping with Celiac Disease
Hi Alexolua, I'm not a big fan of many of their flavors either. If you want a more "lemonadey" taste, the pink lemonade is okay....I almost always drink the "strawberry kiwi", though...it's the only one that I drink, now. All Tropicana OJs are safe (+ vitamin D, calcium, whatever). I don't think that I have any medical reason to stay away from milk... -
ARCHIVED Endoscopy
celiac3270 replied to abby82's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
An endoscopy is when they stick a thin tube down your throat and cut 5-6 microscopic pieces of your intestine off, so that they can test them. They take the test in multiple spots because the flattening of the villi can be patcy. There is a camera on the tube, as well, so that while they're in there, they can see (on a screen in the procedure room) the... -
Thanks...I try to be helpful to others and appreciate your compliments . I think experience and a great family has helped me....I'll try to keep helping.... -celiac3270
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ARCHIVED Newbie Need Help!
celiac3270 replied to Dfrankjazz1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Don't have much time, but have a little to say: first, oats are debatable. Second, you do have to be religious about it...a finger nail of gluten or contamination will throw your intestines off. You have to keep the lifestyle: otherwise you'll get cancer or osteoporosis....you've got to. Here are some foods that I have pasted from Microsoft Word where... -
ARCHIVED Came Back From Endo/biopsy
celiac3270 replied to EddieJP125's topic in Introduce Yourself / Share Stuff
Sorry to hear about that....you'll get it, though, with enough persistence.....I don't think there's much that I can say to keep you on the diet during vacation, but I hope you realize its importance and start again once you get back. Give it a chance and try again.....once you can stay consistently on the diet, you'll see improvement....you just have to... -
ARCHIVED Planters Nuts
celiac3270 replied to beelzebubble's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know if they have a problem...I've tried their peanuts....and got sick, but then again, it might very well have been the usual symptoms........I don't know, but I haven't had a peanut in a long time. Feel better. -celiac3270 -
ARCHIVED New To The Board And Waiting
celiac3270 replied to tyki's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First off, you're not alone in getting emotional from Celiac....whenever I have cramping/vomiting symptoms I get REALLY emotional....you know, the: "why me?" feelings. During the school year, I was seeing a counselor there. We talked about celiac disease (he has no clue, but tried to help....). However, he is going to be my teacher next year for Advanced... -
ARCHIVED Help Removing Gluten From Older Asymptomatic Child
celiac3270 replied to mpeel's topic in Parents, Friends and Loved Ones of Celiacs
I'm 13 years-old...still a kid...and therefore, with some advice to offer. One of the reasons why someone would dislike the gluten-free diet would be because of the restrictions and limitations that come with it. After all, if your daughter could eat a macaroni and cheese that tastes the same, a delicious pizza, and bread that is identical to that which... -
Wow...that's horrible....first off, your problems with dairy/casein/lactose, second your problems with your girlfriend, and third, the fact that rather than just try to cover it up, she actually tried to poison you! I don't really know anything about this casein thing...I've been staying dairy/lactose/casein limited...but not concerned to have some dairy...
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ARCHIVED Doritos
celiac3270 replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
Strange...I haven't seen those....if it really is that easy to elimiate gluten from it, why doesn't FritoLays make the regular Doritos Nacho Cheesier gluten-free....manufactureres.. -celiac3270 -
ARCHIVED Symptoms Several Days Later
celiac3270 replied to valerie-s's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not even going to try to understand the medical stuff, but all I know is that they don't have to be immediate. First, every Celiac has unique symptoms. Most got their symptoms shortly after eating gluten. For example, if they had diarrhea, they'd get it after eating a gluten lunch, or something. Another Celiac I know would be eating dinner and then... -
ARCHIVED What Did You Find Most Difficult About The Gf Diet
celiac3270 posted a topic in Coping with Celiac Disease
Just interested what everyone found most difficult -- there isn't any question that I need answered, but I was just interested. Thanks for voting! -celiac3270 -
ARCHIVED Got Some Questions About Gf Living.
celiac3270 replied to Alexolua's topic in Coping with Celiac Disease
You already know that malt isn't. Artificial and natural flavors are questionable, so you have to call the companies. However, on all foods/drinks made by Kraft, they promise that they put something bad, like wheat in parens, so artifical/natural flavors by Kraft are fine unless otherwise stated, and natural/artificial flavors in other foods are questionable... -
ARCHIVED Not Sure If I Am A Celiac
celiac3270 replied to Sher's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That was one of my concerns, as well: cutting out ALL the gluten, because I knew that even a tiny bit would throw me off. When you look at it that way, it may seem challenging, and at the beginning, you might not be able to elimate everything at once...for example, at the beginning, I thought that eliminating wheat, rye, and barley was sufficient; not realizing... -
ARCHIVED Dinners/lunches?
celiac3270 replied to MySuicidalTurtle's topic in Gluten-Free Recipes & Cooking Tips
Slightly confused....do you want new recipes that you haven't seen, or new products that don't require baking and recipes? Thanks, celiac3270 -
ARCHIVED Not Sure If I Am A Celiac
celiac3270 replied to Sher's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Why? I don't know...but a lot of people who are Celiacs have mentioned on this board that they feel great pain after eating eggs...as a matter of fact, that seems very common among Celiacs....don't know why, though....I just know that you're not alone in "egg-pain". -celiac3270 -
ARCHIVED Help With Baking Cakes
celiac3270 replied to justmel74's topic in Gluten-Free Recipes & Cooking Tips
I'm back....and I'm posting from home again...the Gluten-Free Pantry makes Danielle's Chocolate Cake (or something similar). It is really good....tastes like regular chocolate cake. In addition, they provide the normal recipe, but also a lactose-free version of the recipe, and an egg-free version of the recipe....a lot of options, so lactose won't hinder...