Jump to content

Mia H

Advanced Members
 View Profile  See their activity

  • Posts

    74

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Mia H

  1. Mia H
    Well I will keep going than with her gluten-free/cf/tapioca & soy free diet and hope she calms down. The thing about autism is interesting because she has had some interesting symptoms. When she was young I almost thought she has sensory integration disorder, couldn't stand sox, tags bugged her, certain food textures bug her. And she has STRONG reactions...
  2. Mia H
    Do you not drink milk because of the lactose or the casein? I'm intolerant to the casein and goats milk also has casein. I like almond milk, the original tastes like regular milk in cereal and cooking. For butter I used ghee which is clarified butter, has no lactose or casein in it. I buy it at the natural food store. For ice cream I eat ben &...
  3. Mia H
    I haven't had her tested yet, its so expensive to do Enterolab on your own. My husband has enough symptoms that he is going to get a blood test at the Dr next week. If that's negative (cuz he's been off gluten a couple weeks now and low gluten quite a while) we will test him at Enterolab, then next month our first child, then our youngest. But the rashes...
  4. Mia H

    ARCHIVED Numb Tongue?

    Mia H replied to Natlay's topic in Coping with Celiac Disease

    I get a burning tongue and esophagus from tapioca flour which is common in gluten-free baked goods. Mia
  5. Mia H
    I have been struggling with my 4 1/2 year olds rashes for over 2 years. I finally found out that I am gluten and casein intolerant so I decided to take her off. She broke out from Kinnikinick (I also have a tapioca problem) so I thought maybe its the tapioca. So since Thursday (only 3 days now) she has been off and she has had tantrum after tantrum and does...
  6. Mia H
    uuuuug, I thought I was safe with Burt's Bees. Couldn't find any gluten or casein in there. But my head kept itching and had red bumps and it is falling out heavily. I'm so happy to hear about soy being a possible culprit. The Burt's Bees says "with soy protein" right on the front so I will try something else. Thank you guys! I thought I was going...
  7. Mia H
    In my Living Without magazine quick start guide is says: All bovine milk and milk products contain casein. Avoid foods derived from goat and sheep milk as well as, cow dairy products. I got excited when I saw that post about goat cheese but it looks like it has casein Mia
  8. Mia H
    I had it done at enterolab too, it is a stool test and right now it is included in the price of the gluten panel. I was glad it was included or I wouldn't have done it ( I really did NOT want to know I was casein intolerant), but I am and now that I'm cf I'm starting to feel better slowly. I can' t remember the name but when you look on the website you...
  9. Mia H
    That sounds yummy, do you have a recipe? Mia
  10. Mia H
    Thanks for the suggestion. I was so bummed, I was really excited to make Bette's egg noodles for some comfort food-chicken noodle soup, and bought ALL the flours ($23 worth), then found out I could eat the tapioca Mia
  11. Mia H
    I was starving in the begining too. I used to have to have some dairy to calm my stomach, then thru enterolab found out I was casein intolerant. I gave up dairy, then I was REALLY starving. I thought I was going to die. But, within 3-4 days it began to subside and now I can fill up. Fat helps too. I make sure to put clarified butter on my veggies and popcorn...
  12. Mia H
    I am so thankful for this site. Without it I would have tested negative on a blood test and been sick the rest of my life. But now I tested with enterolab and found gluten and casein intolerances and that made all the difference. Also I found out I get the burning from tapioca and I'm sad because it's in all Bette's bread recipes and kinnickinick. But...
  13. Mia H
    I looked at this recipe and it has tapioca flour in it. In fact ALL of Bette's recipes for bread do that I have ever seen. Does anyone know of a good replacement for tapioca? Mia
  14. Mia H
    I gave up gluten 2 months ago and about 1 month ago I developed a spot on my top lip that seems like a burn too. I'm so glad to have this board so that I know I'm not going crazy with all these strange things! Since giving up gluten it also seems like my lips have shrunk (or are slightly swollen). I now feel like I have buck teeth a little. Like my lips...
  15. Mia H
    I have been receiving from the priest's chalice with the small piece of Eucharist in it. I haven't felt any ill effects yet (like being glutened). and I am pretty sensitive. Do you think I could still be hurting myself? I'm scared to make extra work for the priest. Also there are a ton of people of there before distribution, 2 priests, a decon, the lectionaries...
  16. Mia H
    I've had chronic fatige for at least 10-15 years. It got very bad after my first daughter was born 4 1/2 years ago. I started to have the feeling of literally wearing a lead suit. I felt so heavy, it was hard to pick up toys off the floor. I would wake up more tired than when I went to bed. In the morning I was puffy, hung over feeling, stuffy. Long story...
  17. Mia H
    When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished. After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my...
  18. Mia H
    I'm Catholic and I just receive the chalice as well. According to the Catholic faith the body, blood, soul and divinity of Jesus are contained fully in the consecrated wine as well as the host so we are receiving our Lord if we receive only one. I haven't gotten sick yet this way, but I did once receive the low gluten host and became sick from that. (Besides...
  19. Mia H

    ARCHIVED Casein

    Mia H replied to majicbunnies's topic in Coping with Celiac Disease

    Enterolab (www.enterolab.com) is a site that you can send a stool sample and mouth swab to and they can tell you if you are having an autoimmune response to certain foods, or if you carry the main celiac genes. It can help you find out if you are celiac or gluten, casein intolerant and other foods. Many people on this site have used it and this site is...
  20. Mia H

    ARCHIVED Casein

    Mia H replied to majicbunnies's topic in Coping with Celiac Disease

    Open Original Shared Link This is a site I found that has lots of the hidden names. Yes, going cf is very hard! I'm one month in and still miss it a lot. But I'm feeling better so I am motivated to keep on. I was tested with enterolab and found to be gluten/casein intolerant. I was happy to find clarified butter (ghee) at the healthfood store...
  21. Mia H
    I don't know what kind of insurance you have but I submitted mine (Enterolab provides the icd9 codes) and my insurance reimbursed me about 80%. I was soooo happy. I thought they would not, either way, it was so worth it to have that information. Never in a million years would I have gone off dairy until I saw the casein intolerance on paper. Now I am gradually...
  22. Mia H
    I had similar results except I did not have fat malaborption yet. The gluten part was pretty easy for me, the casein has been tough! I found a product at the health food store (or you can make it) called clarified butter (or ghee). This has been a life saver for baked potatoes and popcorn and corn on the cob, etc. it is cf I found a web site about...
  23. Mia H
    You definately sound like you could have Celiac or Gluten intolerance symptoms. I had chronic fatigue for 10+ years and was always offered prozac too. (I'm tired not depressed dammit!). Anyway, have you asked your dr to test you for celiac? They can run a blood test but you want to take the test before you give up gluten or it will make the test inaccurate...
  24. Mia H

    ARCHIVED Constipation

    Mia H replied to Moongirl's topic in Coping with Celiac Disease

    Thank you, that gives me hope. I have actually been off the gluten one and a half months (not weeks) and off casein (dairy) for 2 weeks. I think even now there is small improvement. I haven't had to do La Mas recently to get it out. Mia
  25. Mia H

    ARCHIVED Constipation

    Mia H replied to Moongirl's topic in Coping with Celiac Disease

    There are a lot of replies on here so sorry if this is a duplicate but I too have had bad C since childhood. To keep regular I need to take metamucil 3 times a day. I took the magnesium in the past and it did help but I had to take so much (2 capsules twice daily) that is sort of scared me. Senokot also helps if really bad. I have been gluten-free for...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.