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Scott Adams' Story of His Diagnosis of Celiac Disease

Like many people with celiac disease, I spent a lot of years and money to go through many tests and misdiagnoses before doctors finally found my problem. Because of the large variety of symptoms associated with celiac disease, diagnosis can be very difficult. Most medical doctors are taught to look for classic symptoms and often make a wrong diagnosis, or no diagnosis at all.

During my doctor visits my diet was never discussed, even though most of my symptoms were digestive in nature. My symptoms included abdominal pain, especially in the middle-right section while sleeping, bloating, and diarrhea (off and on over a period of several years). A simple (and free!) exclusionary diet would have quickly revealed my problem. An exclusionary diet involves eliminating wheat, rye, oats, barley, dairy products, soy and eggs for several weeks, and recording any reaction as one slowly adds these foods back to their diet.

It took two years for the doctors to discover that I had celiac disease. During that time I was misdiagnosed with Irritable Bowel Syndrome (IBS), told that I could have cancer or a strange form of Leukemia, treated for a non-existent ulcer with a variety of antibiotics that made me very ill, and was examined for a possible kidney problem. I also underwent many unnecessary and expensive tests including CAT Scans, thyroid tests, tests for bacterial infections and parasites, ultrasound scans, and gall bladder tests. Luckily I ended up reading something about celiac disease in a book on nutrition, which led me to ask my doctor to test me for it. I was finally diagnosed via a biopsy of my small intestine (which is not as bad as it sounds). Although the biopsy is still considered the gold standard of diagnosis, there are also several blood tests for CD.

I decided to create this Website to help others avoid a similar ordeal. I also want to provide people who know they have the problem with information which will improve their quality of life, and broaden their culinary horizons. To do this, I have compiled information from a large variety of sources including medical journals, books, doctors, scientists and the Celiac Listserv News Group, and posted it all right here. Please remember that I am not a doctor, and none of this information should be considered expert medical advice....enjoy! - Scott Adams

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51 Responses:

 
Catherine
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said this on
23 Oct 2007 7:47:19 AM PST
Hi there. I guess you've heard this time and time again, but your site is great! I too went through many, many years of mis-diagnosis - almost died. Turns out that at least 2/3 of my family have it also. Thanks for the site and the help. I'm still fighting symptoms and yes, I'm completely gluten-free but the docs say it may be possible that I have Celiac as a secondary disease.....but they still can't figure out the first.

Thanks again and wish me luck. I need a diagnosis and soon.

Catherine

 
Marissa
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said this on
15 Sep 2012 8:51:25 PM PST
I have been having a symmetrical rash for at least a year now and everyone always just thought it was a fungus because no one would listen to me about the symmetrical part. I have spent a very long time searching symmetrical rashes and all I can find is celiac disease. I'm very scared to go to the doctor and ask them to test me for it on Monday. Reading all these stories about misdiagnoses scares me. I am only 16 but if they tell me I don't have it I'm going to get rid of gluten in my diet anyways. I'm nervous about having my diet change for the rest of my life, but I think I can do it. I really liked this website and I appreciate everyone sharing their stories, I got a lot of information out of this website and others' comments... Wish me luck!

 
Jim Crandell
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said this on
18 Apr 2014 4:52:49 PM PST
Hi Marissa, my name is Jim and I was just diagnosed with celiac. How did your change of diet work for you. I am 42 and need to change everything I eat, and I too, am nervous about it.

 
Fiona
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said this on
01 Nov 2007 5:20:04 PM PST
Thank you so, so much for this incredibly helpful website! I was just diagnoses with celiac disease a few weeks ago, and as a newbie I'm relying heavily on your lists of safe vs. unsafe ingredients. Thank you, thank you, thank you!! :-)

 
Jane Claflin
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said this on
14 Nov 2007 5:07:49 PM PST
Dear website, I have been severely ill since 1998-99. They diagnosed me with a brain disorder called Arnold Chiari Malformation 1. I had three major brain surgeries for the pain. I have suffered all these years and no answer from any gastro doctors or surgeons. Walked into my new GP other day and she said have you heard about celiac sprue. I am floored and thanking God I have finally received and answer from heaven!!! All these years of being bedridden are fixing to be gone and I can live a normal life!This website has given me my life back and one simple word of advice by a doctor after hundreds of them had written me off as crazy. No more pain!!!! Thank you Jesus and Scott for giving me my life back im 48 years old and spend 7-8 years in bed with debilitating pain. There are no words to describe how I feel right now. My sister has same problems too they will be floored to know there is an answer now. Thank You from all my heart, Jane in Texas!!!

 
Lisa
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said this on
20 Mar 2013 5:59:03 PM PST
Hi Jane,

I know this is a long shot that you will see this after so many years, but I too have Chiari and I am curious to know where you read something about the connection? I do not have the symptoms here personally, but my children & mother do. Please let me know if you changed your diet and how it affected your Chiari as well. I am just terrified of the surgeries. Thank You

 
BackCheck48

said this on
10 Apr 2008 5:52:57 PM PST
Thanks for the site bro! found tons of info that has really helped food wise. I think i have it easy. No symptoms, regular blood work showed low iron and some other stuff so a scope was ordered and I was confirmed as a celiac. (my sister has it and the doc was on the ball so he had the biopsy done) funny thing was that I felt fine, I have always had tons of energy and am never tired. I've been gluten free for about 10 days and I feel even better. I traded my Guinness for jack and coke!!

'take the shortest route to the puck and arrive in ill humor.'

Cordially,
MEF

 
naomi putticvk
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said this on
24 Jul 2008 12:57:32 PM PST
After reading your story Scott I am convinced hat I now have an answer to my problems. I have suffered bloating pain in my right side and intermittent diarrhea for many years now. I am also lactose intolerant and so follow to the best of my ability that kind of diet, so when I next see my doctor in ten days time I will ask him to test me for it. Once again thank you Naomi Switzerland. PS Will keep you up to date on final diagnosis

 
JCarter
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said this on
04 Nov 2008 10:25:08 AM PST
Thanks for the website. I have been having progressively worsening symptoms over the past few years that have been escalating over the past few months. I never would have considered celiac disease. Interestingly, when I feel truly terrible I will stay on a clear liquid diet and perk right up - then fall into the same eating patterns and feel terrible. I have had diagnostic tests that to date have been negative. I have an appointment with a GI specialist today and will surely ask him to test me for celiac disease - I am miserable!

 
norma
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said this on
26 Jul 2012 12:04:53 PM PST
This is exactly how I feel. I had the blood test on monday, still waiting for results. Thanks for your post.

 
Charline
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said this on
13 Jan 2009 6:50:13 PM PST
Dear Scott,
I love your site and all your helpful info. I am a mother of a newly diagnosed 8 year old celiac sufferer. I however feel confused even though I trust his gastroenterologist from Children's. So I was hoping you might help me if you could find the time to respond to my question. My son had problems since he was a baby with some type of intolerance but no allergies. Severe reflux as well. Constipation with bleeding off and, and stomach pain after eating which led me to seek a specialist. One antibody was 14 (supposed to be <4) and biopsy showed high lymphocytes, immune cell presence, BUT NO DAMAGE to the VILLI in his small intestine. This is why I am confused. I know he has some autoimmune disorder as I have several (not celiac though) but I want to be 100% sure this is the correct diagnosis before I put him on this diet for the rest of his life. I am sorry for imposing on you but I have dealt with so many doctors with my own health problems. Even hearing I was looking for something to be wrong when I had 3 miscarriages! This was a top doctor from a renowned university. IF, you can find the time to briefly guide me in this difficult diagnosis I would be so greatly thankful. Again, your site is so helpful and I plan on ordering plenty of food soon! Keep up the great work and best to you and your progress!

 
Vivian, PT
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said this on
01 Aug 2009 11:36:05 PM PST
It is a common misconception that celiac disease is only confined to the small intestines but it is not based on the seminar I attended in the past. If he's already having problems with digestion, most likely he's starting to have the signs and symptoms of gluten sensitivity. Celiac disease is the end stage of gluten sensitivity. There are also manual therapy techniques available and the one I use is called integrative manual therapy along with NAET (Nambudripad's Allergy Elimination Technique) which could help detect where the problem is coming from. Hope this helps answer some of your questions.

 
Helen
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said this on
17 Jun 2012 4:46:38 PM PST
Your son's symptoms sound like my son's. After nearly 2 years, a specialist realized he couldn't digest the protein in dairy. We just had to take dairy out of his diet and he was a different child with no pain.

 
judith
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said this on
28 Jun 2012 1:44:12 AM PST
Don't wait to put on a gluten-free diet. Just do it. Whole foods before ordering a bunch of gluten-free stuff. Watch your spices and condiments. You will be glad you did as your son will feel much better. At least he got a diagnosis; just think of all the people out there who don't have one and are still suffering needlessly.

 
Lisa
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said this on
21 Jan 2009 2:08:09 PM PST
This is an amazing site. I needed to know different recipes and what foods my daughter needs to avoid. She has just gone through so much and had a biopsy yesterday. She is only 8 years old and has lost 6 lbs. and always has chronic stomach pains and loose bowel movements. We should find out the results in a few weeks but she has started today on a wheat free diet. She loves banana bread and was sad she couldn't eat it anymore until we found this site. She loves the new banana bread more than the old type with wheat in it.
Thank you very much for all this much needed incredible information for a parent learning to care for her child.

 
Rachel
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said this on
29 Apr 2009 3:10:41 PM PST
I have found this website very informative and helpful. I was diagnosed with celiac disease right before Christmas. I have been misdiagnosed with IBS for 10 years and finally my body gave up and I lost 30 lbs within 2 months. My new doctor finally took me serious and diagnosed me through blood tests and small intestine biopsy. I am eating gluten free and still having weight loss and still waking up sick every single day, hopefully they help soon. You website gave me a lot of new information. Thank you!

 
Sally Dellas
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said this on
22 Sep 2009 12:42:18 PM PST
Hi Rachel,
Hope you are feeling better by now as it's been over four months since your post. It took me several months before I was finally gluten free. I didn't realize that things like soy sauce and root beer and modified food starch contained gluten.
Little by little, I discovered all the things that were causing me trouble.
It sure feels good not to feel bad!

 
claudia
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said this on
10 May 2009 8:07:39 PM PST
Great site

 
Kathleen
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said this on
24 Aug 2009 9:33:15 AM PST
I gained 10 pounds and had severe abdominal bloating this spring. I've had intermittent problems with diarrhea and constipation over the years. My doctor had a CT scan that showed an enlarged ovary so I was given an internal ultrasound. I had a hemorrhagic cyst but it was not the problem. My doctor sent me to a gastroenterology specialist and he suggested an upper endoscopy, looking for ulcers or polyps. He also did a stomach and intestinal biopsy. The biopsy came back positive for Celiac. I am having blood work done today to confirm and check my gluten levels. I am 50 years old and although I am glad I have a diagnosis, I am having a hard time with the complete change of lifestyle. I have always loved to cook and bake and now I have to modify everything. I often travel with my husband, and this can now be a problem when I travel to places like Africa. I am grateful for this website. I would like to see something on how to adjust to the radical changes one has to make, especially someone my age! Thank you.

 
kennedymoore
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said this on
02 Jul 2011 10:37:10 PM PST
I am 47 started suffering terribly in 1993 and was just diagnosed in 2010. I am always interested in what people actually mean when they say adjust to the changes after diagnosis. Changing my diet was easy. As I figured it out I chose vegetables, fish, shrimp, bake, broil, steam, grill. What was difficult was handling the emotional side of all of the suffering I had endured. I needed a safe place to just talk. I needed someone to hear me about, not think I was crazy. I wanted to understand how all of these doctors could have failed me. I saw several psychiatrist who just offered me medication - wrong answer. Saw 3-4 therapist who basically thought I should get over it - wrong answer. The only comfort was God, my faith and my Bible. The celiac disease support groups help with food choices and lifestyle changes, but I have not been able to identify an emotional healing celiac support group in the United States. I met an addiction therapist who really understands the emotional toll suffering causes. Through treating celiac patients he has come to understand the need for emotional healing. The more we heal emotionally the better we are able to adjust to a new found opportunity for improved health. He is in the process of creating an emotional healing support group for celiacs. I hope that since 2009 you have received the emotional support that we all need and some help with lifestyle changes.

 
Pamela

said this on
01 Mar 2013 8:33:40 PM PST
Thanks for sharing that. I am 56 and have gone through hell. I was so sick I couldn't get out of bed.
I just went for it. It wasn't that hard as I have always eaten a healthy fresh diet. I just got rid of the wheat. I almost immediately began improving, and I am getting better every day. I have serious remaining issues with how I was treated by the doctors and the thousands and thousands of dollars spent, and in the end I had to diagnose and heal myself. I will never trust another doctor again.

 
Sally Dellas
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said this on
22 Sep 2009 12:55:56 PM PST
Hi Kathleen,
I was 68 when I finally got diagnosed six years ago. I never was too crazy about pasta, bread, and pastries, so I don't miss that, except for some good French or Italian bread now and then.
Actually, the gluten free diet is a really healthy one, as you can't eat much processed food. Lots of fresh fruits and veggies, brown rice and corn, lean meat, chicken and fish, and dairy products if you don't happen to be lactose intolerant. And even if you are, there are lactose free products or the pills you can take with dairy foods. I happen to LOVE Mexican food, so I'm in luck if I have to eat out. Just make sure there is no wheat in the tortillas or sauces.
As far as baking goes, I was really getting into turning out piles of Christmas cookies and treats for the family when I" had to go gluten-free, so there went the baking. However, the web is a great source of gluten-free recipes. I make a great lemon sponge cake that is a good substitute for the angel food cake I always loved. And if you live near a Trader Joe's, they have a good gluten-free ginger snap cookie and also reasonably priced mixes for brownies and maybe cookies. I also miss stuffing. I bought some self-rising corn meal and make cornbread, which I then use as the base for the traditional stuffing with onions. celery, sage. etc. It works for me!
Best of luck to you, and drop me a line and let me know how you're doing.

Regards,
Sally

 
Shell
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said this on
01 Jan 2012 3:56:01 PM PST
Any chance on posting the recipe for the sponge cake? I loved to make elaborate cakes before I was diagnosed about 6 months ago. I'm still learning how to live with this!

 
carol
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said this on
21 Jan 2010 9:39:32 AM PST
I thank you so much for this website. I think it's terrific information for people with celiac disease

 
Cathi
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said this on
12 Apr 2010 1:12:54 PM PST
Any hope of adding information about those who are gluten free, corn free, soy free and need to be low carbohydrate diet also. It is so hard to find bread recipes or tortilla recipes that would fit this bill. Rice flour and all the starches are really high in carbohydrates.

 
Gabrielle
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said this on
30 Jul 2010 4:57:03 AM PST
My friend had stomach problems for over 20 years! The doctors didn't know what was wrong with her. They wrongly diagnosed her for IBS. I now found this website and she has been tested for Celiac two days ago. The results should come in today. Wish her luck!

 
Linda
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said this on
31 Jul 2010 7:00:32 PM PST
Thank you for your website and all the comments are helpful also.. I was diagnosed about 20 months ago and have been following gluten-free diet always! I must admit, if I didn't actually get so sick shortly thereafter it would likely be much more difficult to follow. But the thought of what it is to come immediately is probably even more powerful than the long term. I almost died and am grateful to be alive. I do worry terribly about the lack of nutrients since my intestine has not healed and I can receive none. It scares me I must admit and I fear I have had it for years and could be refractory. If you have any suggestions I am open for any and all ideas. Thank you for helping others like yourself!

 
Lara
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said this on
02 Aug 2010 11:10:33 AM PST
Good site...

 
Anna Mae Schroeder
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said this on
06 Sep 2010 3:49:33 PM PST
It is most interesting to read what people have to relate about their gluten sensitivity.
But some folks do not read labels, or know exactly what ingredients contain wheat. It would be good to instruct readers about what ingredients are taboo. THANKS SO MUCH for this site!

 
Cathy
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said this on
27 Mar 2011 4:59:31 PM PST
Hi Scott, I contacted you in 1998 after receiving my diagnosis of being a celiac regarding gluten-free food and flours. I have been an avid reader since, and abstain from anything that could possibly have any gluten containing ingredients. I have regained my health after being diagnosed with IBS, gastroenteritis, duodenitis, anxiety, depression, had breast lumps removed, hysterectomy for massive bleeding, lipomas, and reactive arthritis reaction to antibiotics, lower back disc surgery ..... never did any physicians (even after colonoscopy for diarrhea) suggest celiac! Finally had diagnosis and it is truly amazing that I feel better than I have in my whole life since abstaining from gluten since 1998! The reason this is not better known is because there is no drug to advertise as a treatment, therefore no money to be made in pharma or medical world. Just imagine the evening commercials for a drug for celiac: " do you suffer from ...... ask your doctor if xxx is right for you!" All that is needed is abstaining from what is basically poison to your body. It's like NOT sprinkling a little ant poison on your food every day! Thanks so much! Cathy from CO

 
Mariela
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said this on
05 Jul 2012 4:37:50 PM PST
Hi Cathy, I just read your comment. Thanks for sharing! There are similarities in our conditions. I gave up gluten because I started to research and listen to my body. I'm grateful for your story as it confirms to me that I'm doing the right thing. I also gave up cow milk a long time ago and now enjoy a vegan diet! I feel incredible. My family are also on this healthy life changing journey with me. We are so much healthier for it. All the best!

 
norma
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said this on
26 Jul 2012 12:11:18 PM PST
You hit the nail right on the head, big pharma. Rules! Time for them to get run out of town on a rail.

 
ann
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said this on
20 Oct 2011 9:26:35 AM PST
Your site says that ALL wines are safe for celiac. Then why do ALL other sites say that some do contain gluten?

 
admin
( Author)
said this on
21 Oct 2011 2:49:52 PM PST
We are aware of the claim, the problem is that none have ever tested positive for gluten, and I challenge the other sites to produce such a test. Winemakers don't want gluten in their wine...would be a big mess.

 
Liam Murphy
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said this on
19 Feb 2016 9:30:20 AM PST
My info is that some wine casks use a gluten product to line the insides of wine barrels.

 
Admin
( Author)
said this on
19 Feb 2016 12:36:44 PM PST
Wine makers steam clean all barrels with a pressure washer before using them...wine is gluten-free.

 
nadine bico
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said this on
09 Jul 2012 3:44:42 PM PST
I'm suffering from the same symptoms for more than 2 months now. Please, I really need help. I told my doctor that it could possibly be celiac disease. He sort of said that I'm thinking too much! But I'm not crazy. I've had blood tests, ultrasound and stool test and results are all normal.
My doctor gave me another prescription (again) and the nausea and stomach pain don't go away. But he said to take it for 4 weeks and come back! But I don't want to suffer from this anymore and start the gluten-free diet, but I have no choice as I want to prove to him that the pills don't work and I still feel ill. I need your advice, guys. Thank you!

 
Chris
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said this on
16 Aug 2012 11:26:12 AM PST
I'm 59. I have been overweight all my life and developed type II diabetes in my 40s, but I keep good control. I always had occasional gastric issues, but nothing intense. I also have a long history of depression and am in treatment for it. In 2010 I got really physically sick literally overnight. 7 hospitalizations in 7 months and 2 major surgeries resulted in total colectomy later. I was told I would have routine diarrhea the rest of my life. Nobody ever mentioned the words gluten or celiac ever! 4 months ago, the daily movements intensified and began awakening me at night every hour or two. Just consulted a new gastroenterologist who gave me blood tests for celiac disease and bingo! Major positive results. Biopsy is scheduled. I am anxious, scared and I hate to admit it, but the depression is almost intolerable with the months of no real sleep. If you are the praying type, I'd appreciate a mention to the guy upstairs for me. Nothing else keeps me going. Thanks for the forum. Best wishes to all.

 
Brad
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said this on
09 Oct 2012 7:18:44 PM PST
Excellent post. I'm experiencing a few of these issues as well.

 
Katie
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said this on
21 Oct 2012 10:29:27 PM PST
I am 21 years old. I was diagnosed with celiac disease about seven years ago. I was a moody, small, unhealthy little girl. For years I thought that feeling awful all the time was just a part of life. I learned to live with feeling weak and lightheaded all the time. It was later that I started to realize that everyone else didn't feel the same way that I did. That's when I started asking questions and opening up to my parents with things that I had previously thought were just facts of life. A couple of weeks later we figured out that I had celiac disease.
The only reason that I was diagnosed so quickly is because my grandma on my mom's side has celiac disease and went through similar terrible experiences with being diagnosed. I am so grateful that my diagnosis was not so drawn out and hard. Living the diet is another story entirely, however, and I'm afraid that I'm not very good at it.
I hope that being diagnosed gets easier. I know that I am very open with people about celiac disease in hopes to raise awareness. Thank you so much for this website!! It is a wonderful resource for a disease that can be hard to live with at times.

 
David
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said this on
22 Oct 2012 7:05:04 AM PST
Very informative website with an abundance of useful advice. Thanks to all for sharing!

 
Stacy
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said this on
18 Mar 2013 3:00:03 PM PST
I am 21 years old. Three years ago, when I was 18 and a few months away from graduation, I had ultrasound down to check on my bladder... (I was having overactive issues and the urologist wanted to make sure there was nothing wrong with my bladder)....and we discovered that I had gallstones. I had begun to have digestive problems before we found out about the stones, so when I found out about them I thought that was what was causing it. Shortly after having my gallbladder removed abdominal pain and bloating as well as diarrhea after I ate. I went back to the doctor who did the surgery and he said that happen sometimes and put me on some medicine. The medicine worked for about half a year before it quit all together and the pain came back with a vengeance.
For the next two years I would visit my regular doctor and GI several times. The GI diagnosed me with IBS. He told me to cut fried and greasy foods out my diet and that would help some.
I never actually agreed that it was IBS but he was the doctor. A year and a half later and as my problems continued to persist. About 4 months ago I woke up to the worst pain in my upper abdomen and my heart seemed to be trying to beat out my chest, a few minutes later this was followed by diarrhea that would last for the next couple of hours. Unsure of what was going on my family took me to the ER. While there I was told I was severally dehydrated, which made no sense since I had drinking water through the whole night before falling asleep, and that my electrolytes were off. What got to me was that the doctors there didn't know what was going on either. One doctor asked me how i had been feeling leading up to this moment. So I told him about everything that had been going on. He told us he didn't believe I had IBS and that my GI probably only told me that because he wasn't sure what I had either.
I was kept at the hospital over night, my heart rate wouldn't drop past 150 till early in the morning, and then i was released with them telling me to see my regular doctor soon.
My appointment to see my regular doctor was suppose to be two weeks after leaving the hospital but she ended up seeing us four days after I came back home. When I tried to eat I ended up throwing up and this deep ache had settled into my muscles and joints. I think this is what finally made my regular doctor begin to suspect what was going on. She order some blood test done and a week later we got a call saying that I had a gluten intolerance.
A month into a gluten free diet and I could already tell the difference. So I then sat there and wondered why, for three years, I had to go all this pain and no one could get it right but my regular doctor. So I asked her when I went in for a checkup.
Turns out I would of been diagnosed sooner if I had went to her more instead of trying to deal with the pain on my own. Instead I either kept the problems to myself or went to the GI, who was convinced it was IBS. I was surprised to learn that my doctor has Celiac disease. When I finally gave a complete list of all the problems I had been having through out the last three years..from the pain to my fatigue, irritability, to the simple decline in my dental health..she knew what it was and had some test done it made sure.
She then told me to check out this site and I did. For the last few months this is where I've gone to find out what I should and shouldn't eat. Thank you. I'm still trying to figure everything out but at least this site gives me a good place to start.
Now for a quick question, how do you get over the looks people give you when you ask what on the menu is gluten free?

 
Michael Ervin
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said this on
06 Apr 2013 5:24:06 AM PST
I love your site, thank you. I have been struggling for years. I asked the doctors about celiac disease and was told that it's rare for a man in his 50s to have celiac disease. It is more of a woman's disease, they said. I have gone gluten-free on my own and what a wonderful difference it has made.

 
Karen
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said this on
15 May 2013 11:42:21 AM PST
Thank you, your symptoms are mine, and I thought I was going mad with it. I am so scared to go out and eat, I don't bother. I seem to live on milky coffee 'just in case' whatever I eat will affect me!

 
Jacqueline
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said this on
10 Jun 2013 5:17:50 PM PST
Cool for people suffering to finally feel some peace of mind body. Thanks!

 
chani
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said this on
14 Jul 2013 8:04:48 PM PST
My daughter was just diagnosed with celiac disease. She went to the doctor for her eight year old check up and had only grown an inch. She has always been short, but I am short so didn't think much of it. My husband is tall, but just assumed she took after me. I was shocked that the blood work came out positive for celiac and the endoscopy confirmed. My doctor is excellent because besides being short my daughter has no symptoms. I want people to know that celiac doesn't always present with GI issues and not growing two inches a year for a child is significant enough to check for celiac. She was only diagnosed a week ago but I did find tons of great products at Whole Food's. The rest of my family is being tested soon to see if anybody else has it. In the meantime, as shocked as I was and sad for her that she needs to be on this diet, there are so many great products that she doesn't even mind the diet. I have a friend with children with celiac disease and she said they do eat out and ask TONS of questions!! Don't be shy - ask about ingredients, what foods are fried in the oil, any soy sauce, teriyaki sauce etc. Just like nut allergies are so known we need people to be aware of gluten allergies because they are so common.

 
Nayda
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said this on
09 Sep 2013 9:51:46 AM PST
I have gluten intolerance and I believe it is the first step to celiac disease. But of course the doctor told me that I am not allergic to gluten However, the only thing that bloats me and gives me gas and other problems is gluten. I have been gluten free and pain free for 2 years now only get sick when I eat gluten. My cholesterol is normal and my arthritis seems to have disappeared. I have all kinds of problems due to years of suffering from IBS, gastritis, stomach flues, chronic diarrhea, bumps and all kinds of problems which Doctor tried to medicate and I refused the medicine because I did not feel I had what they said. Acid reflux comes with intolerance to gluten and it can cause cancer and damage the thyroid. I was always bloated, with arthritis, mental fog, depression and pains that would not go away on the right side they almost took my gallbladder. I would go into the doctor complaining of problems and pain and he thought I was crazy or something of the sort. Stopped gluten and mind is sharp with rare occasions when I eat anything with gluten.

 
Sally Dellas
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said this on
11 Nov 2013 7:35:14 PM PST
Nayda,
If going gluten-free works for you, stick with it. Nobody else can know how you feel. I believe my husband had gluten intolerance, though the doctor said no, the test was negative. But my husband had alopecia, (hair loss) he was the shortest in his family of four boys, and he said he often had stomach aches as a child. In later years, he would usually get diarrhea after finishing half a loaf of the olive bread or Italian bread that he loved. And our daughter was diagnosed with celiac disease when she was just a toddler. Then they thought she would outgrow it, but I now know that once diagnosed, a lifelong gluten-free diet is the only treatment. Unfortunately, she does not believe that and continues to eat gluten. My husband had dementia for several years before his death, and that can also be an effect of celiac disease.

 
Elizabeth
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said this on
11 Sep 2013 10:27:45 AM PST
Very informative!

 
Danny
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said this on
06 Oct 2016 9:14:38 AM PST
I only found out about it after another member of the family had similar problems and it's genetic. As a child I was diagnosed as having dyslexia, later on in life I experienced classic tell tale signs of Schizophrenia such as mumbling to myself, being pot bellied and experienced being cranky obsessional and slightly deluded. Reading about it I see another medical professional once wrote in 1959 that many (adult celiacs) showed extreme obsessional neuroses, suffering delusions, frequently believing they had cancer. Paranoid ideas were also frequent and many were considered psychotic or near psychotic. It fitted perfectly, went to see a dietician and another G.P had my thyroid levels checked, the bit supposed to provide T3 & T4 to your brain and the rest as they say is history, been wheat and grain free for a while now and already feeling the huge difference, but having it go undiagnosed for years, while there was family history of it hasn't been pleasant!

 
Missy
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said this on
30 Oct 2016 3:52:05 AM PST
After having issues for 24 years, I am being tested for celiac disease. My only wish is that doctors would truly sit down and listen to patients.




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