Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Shop Hungry


EmiPark210

Recommended Posts

EmiPark210 Contributor

Today my roommate and I went to the grocery store after a couple hours of walking around a museum so we were both shopping hungry. Everything I picked up had the coveted Austrian "gluteinfrei" symbol on it, until I got to the chips. I found one brand that based off the ingredients seemed safe, but then I found "Wild Tex Chili Chips" that looked delicious. A quick look over the ingredients yielded no warnings, the allergy listings didn't say anything about wheat or gluten, so I bought them. It wasn't until I was eating them in the elevator in my apartment building that I noticed the "wheat flour" in the English translation of the ingredients. I forgot that the allergin listings here don't include things that you can easily read in the ingredients, it's just traces that are listed. In my hungry state I didn't read the ingredients multiple times over, in every language I understand, until it was too late. I'm almost convinced that I shouldn't buy anything without that wonderful, government regulated, less than 20ppm label. Has this ever happened to anyone else?

 

Also, my short term coping method is a glass or two of wine because my initial reaction looks more like intoxication than anything else, and I'm really scared of mentally causing my reaction to become worse. So I have a drink, then I can't tell if it's the alcohol or the gluten that's making my head woosy and the world spin, and since I can't identify the source of my off-ness I feel like I won't accidentally psychologically make a mountain out of a mole-hill. But at the same time, I feel like this isn't a good coping mechanism. I never knowingly eat something with gluten and avoid CC at all costs, but when it does happen and I find out soon after, I get rid of the gluten food and triple check everything else in my kitchen.  Any other ideas on not psyching myself out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

I have heard about the wine thing, that some can avoid the worst of symptoms by drinking some wine!

 

About labeling, I have seen swedish labels where the wheat starch was not listed on top of the list.

 

Here the ingredients must be listed in falling order by weight, but not so over there I guess. (I do not tolerate wheat starch either, nor milk)  Also, it said lactose free on the package, and it actually contained milk (lactose free milk powder) so it did not help, since it was milk. (crazy bakers cookies)

 

here wheat is listed in the ingredients, not allergens

Pegleg84 Collaborator

I think we've all done that before, then are super incredibly careful afterwards. My best (er, worst) example is that I recently discovered I've been using shampoo with wheat protein in it for months! Like, I've bought it several times and never noticed. The conditioner has oat protein, which is fine, so I mustn't have read the shampoo label well enough... Coincidentally I've been feeling pretty great since I stopped using it.

 

Anyway, about the wine, it won't reduce your symptoms, but it will mask them with drunkeness. Maybe not a good regular coping mechanism, but i'm guilty of doing the same on occasion.

 

Also, don't freak out. It's just a reminder to always always (always always) read the labels! (this is our mantra). All of it. You never know what might be lurking.

It's great that you can read more than 1 language too. I've seen conflicting info on a few translated labels. For example, some Korean seaweed snacks that had "corn oil" listed in the english, but the french said "huile de soja" (soy oil), so I steered clear of those (soy intolerance).

 

I think here (canada) any major allergens should be (it isn't hugely enforced) listed below (contains: such and such) even if it's in the ingredients. It only needs to say "may contain" if not listed, and made in the same fascility.

Ingredients are usually listed by weight, so if it was just a little flour in the chip seasoning, it wouldn't have been listed first.

 

Hope the glutening doesn't last long.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    2. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

    3. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    4. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

    5. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.