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Gluten Intolerance Making Me Skinny?


StoryHorse

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StoryHorse Newbie

Hi guys.

I am 6 foot 1 and 156 pounds. I am about average weight for my age but because I am tall it's harder to fatten up if you get me? I am very boney and would like to start gaining a few pounds so I won't be so skinny and boney.

I have been eating gluten foods for all my life especially pizza, white bread, cereals and pastas and I do think I eat enough so that I should be normal proportion .

Do you think this could be due to a gluten intolerance? Does eating calorie dense gluten filled foods such as pastas and breads not count to gaining weight if you are intolerant to gluten?

Any help is much appreciated! Thanks.


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ndw3363 Contributor

My extreme weight loss (along with other symptoms) is what lead me to my self diagnosis two years ago.  I've always been tall and thin, but at 5'10", I got down to almost a size 0 and I looked horrible.  Didn't matter how much I ate, I simply could not gain an ounce.  As soon as I took gluten out of my diet, I started absorbing nutrients again - gotta tell ya, I've never been that hungry in my life...I ate ALL time my first month gluten-free.  Started to gain weight back - once I figured out to cook healthy meals for myself that didn't include a lot of calorie/fat dense gluten-free substitutes, my health improved greatly.  I've recently gotten very serious about weight-lifting and for the first time in my life, I'm at a size and body shape that I love.  Have enough curve to still be feminine, but my muscle tone has never been better.  I will never go back to eating all that stuff again.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
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      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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