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Gluten Intolerance Making Me Skinny?


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StoryHorse Newbie

Hi guys.

I am 6 foot 1 and 156 pounds. I am about average weight for my age but because I am tall it's harder to fatten up if you get me? I am very boney and would like to start gaining a few pounds so I won't be so skinny and boney.

I have been eating gluten foods for all my life especially pizza, white bread, cereals and pastas and I do think I eat enough so that I should be normal proportion .

Do you think this could be due to a gluten intolerance? Does eating calorie dense gluten filled foods such as pastas and breads not count to gaining weight if you are intolerant to gluten?

Any help is much appreciated! Thanks.


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ndw3363 Contributor

My extreme weight loss (along with other symptoms) is what lead me to my self diagnosis two years ago.  I've always been tall and thin, but at 5'10", I got down to almost a size 0 and I looked horrible.  Didn't matter how much I ate, I simply could not gain an ounce.  As soon as I took gluten out of my diet, I started absorbing nutrients again - gotta tell ya, I've never been that hungry in my life...I ate ALL time my first month gluten-free.  Started to gain weight back - once I figured out to cook healthy meals for myself that didn't include a lot of calorie/fat dense gluten-free substitutes, my health improved greatly.  I've recently gotten very serious about weight-lifting and for the first time in my life, I'm at a size and body shape that I love.  Have enough curve to still be feminine, but my muscle tone has never been better.  I will never go back to eating all that stuff again.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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