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Do Doctors Really Know Best?
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6 posts in this topic

I am FINALLY on the roll of getting things taken care of for me physically, mentally, all togehter Im trying to make a better life for me, my honey, and my little girl.

I finally gor my family physician (whos a whole crock of shite if you ask me) to refer me to a specialist! Its only taken me YEARS to get her to do so.... Uuuugh, This damn disease is sooo annoying. Obviously IM not getting better so let me see someone who knows what he heck theyre doing. Do you guys ever feel like that?

Anyway, I went to see the gastro doc day before yesterday. He gave me some pamphlets on Celiac and we talked a little about it. Nothing really that I didnt already know. He wants to do a colonoscopy (eventhough ive been on a gluten-free diet for over a year), and he also wants to do an upper Gi endoscopy. Any of you had these both done? What are they like? Scarey? Did the phosphasoda make you sick????

Im am soooo scared of the procedures, as well as the possible news I can find out. I want to hear something thats not horrible.... not like colon cancer, stomach cancer or something. My mom and brother both have stomach cancer. Is that possibly hereditary, I mean like my odds, are they higher because they both have it?

I am sooo confused with all of this. I NEED A HUG!!!! I just need to hear that Im not in this alone!!!!

Thanks for listening to me rant and nag.

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Heather,

I've had both procedures done and they are painless. The medicine they gave me to put me under put me out like a light and I have no memory of it. I came home and had the best nap I've had in years :). I have to have a follow up biopsy in 6-8 months to see if my villi are growing back. I had a barely noticeable sore throat the next day but those were the only side effects I noticed.

I wanted to have everything looked at so I could know where I stand. I too was/am scared of cancer and glad they were looking around. Better to know what you're dealing with than to wonder what it could be, don't you think?

Here's a big hug :).

Lily

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Hi Heather,

Ditto to everything Lily said!

I had both "scopies" done at the same time. Piece of cake. Don't remember a thing. Zero problems afterwards.

Generally speaking an Upper GI and an Endoscopy are two different tests. The Upper GI test involves drinking a barium solution while having xrays taken. The Endoscopy, of course, is the camera down the throat to examine the stomach and small intestine. I have also had the Upper GI test and other than the somewhat yucky tasting barium, it wasn't bad at all.

I completely understand about your anxiety over these procedures. I felt the same way. But now that I have had them, I realize my anxiety was baseless. I would consent to have any of them done again in a heartbeat. And this time I wouldn't worry a bit! So here's two hugs for you! :):)

On a darker note, I'm no doctor, but yes, I do think you are at a higher risk for cancer because of the family history. Sorry :( And no, disowning them won't help!

You probably realize that it is doubtful that your doctor will be able to make a Celiac diagnosis from these procedures since you have been gluten-free for a year. I imagine he just wants to rule out other problems. Also, since I'm being a nit picker anyway, it is the Endoscopy that is used to diagnose Celiac, not the Colonoscopy.

Good luck!

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Heather,

I am new to this board and I too have an endoscopy scheduled soon. I am also nervous, but my mother who had both endo and colonoscopy at the same time said it wasn't bad. I am going to do the test first so I know what to expect for my girls (11 & 7) if they have to have one done too. I hope everything goes well with your tests.

Here are some hugs too from me and mine. :):):):)

Kelly

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Good luck to us all! :D

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Best Wishes to you all!!

The worst part of the scopes is the prep. I had to drink some nasty liquid!! BLEH!! It was very gross!! I did wake up during my scope. I layed there and watched it on tv. :blink: I didn't feel a thing though!! If I can say that I woke up during the procedue and STILL say the worst part is the prep...don't worry!! Everything will be fine. Just think of it as a step in the right direction twards a healthy life.

-Jessica :rolleyes:

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    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
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