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Endoscopy On Thursday


j9n

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j9n Contributor

I dont know why but I am freaking out about the endoscopy. I asked for lots of drugs, lol. I know I have to have it done but I have such a huge gag reflex, I don't know I am just afraid. I am also worried they won't find anything and I will be sick forever. No matter what the results afterwards I am going to limit my carb intake. Either celiac or small bowel bacterial overgrowth carbs seem to be a problem. I do know I can not tolerate sugars or heavy grains such as in cereals without getting nauseated, been that way since I can remember. Oh well thanks for listening, I know it will be ok but I guess a little reassurance from those who have been through this helps.


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Karina Explorer

Dont worry about the endoscopy, mine was a cake walk. I don't remember a thing! I have found this to be everyone's experience that I have talked to. Good luck and keep us posted.

Karina

zippyten Newbie

I think everyone can reassure you, including me, that the endoscopy will be fine. If you don't want to be awake for the procedure -- which most doctors do not recommend -- just make sure that's clear beforehand. As long as you're sedated, there is no gag reflex and you won't know anything that's happening. The only after-effect might be a sore throat (and mine was gone by the next day). It might also help to know that the endoscopy is very short, especially compared to a colonscopy. It's barely 10 minutes long.

I was also nervous ahead of time, but it was very easy, and I was pleasantly surprised. Which is saying something, as nothing with celiac disease has been too pleasant otherwise! I was very relieved afterwards and you will probably be, too. Try not to be worried. All will go well. Good luck to you.

Ellen

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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