Will Catscan Show Celiac?
Posted 03 May 2004 - 06:31 AM
My question is, will a catscan confirm that I have celiac? I am having one done this month. I am schedualed for a colonoscopy and endoscopy in July because the doctor wants biopsies of my large and small intestines. I am scared to death to have those tests done. I've already postponed them once. How bad are those tests? I was also wondering, how long does it usally take to be symtom free after starting a gluten-free diet? I have been gluten-free about 9 days now and really haven't seen any results.
Thank you all so much for listening to me. Any replies would be greatly appriciated. I don't feel so alone now. Susan
Posted 03 May 2004 - 08:58 AM
Posted 03 May 2004 - 09:06 AM
I too had a CT scan and it does not show Celiac. The Colonoscopy doesn't either (I don't think) but I am sure because of your symptoms and weight loss your doc wants to check your entire GI tract. The Endoscopy will show if there is any "villi damage" in the small intestines. The tests are not bad if you are sedated, when you wake up you should not remember anything and should not be in any pain. The worse thing is the ďprepĒ for the colonoscopy but itís bearable.
It can sometimes take months to feel better on a gluten-free diet. I could tell a difference within a couple of days because the abdominal pain that I experienced daily was gone, I still have other symptoms and I have been gluten-free for almost 8 months.
You have to remember: You MUST be eating gluten for these GI tests results to be accurate. I am sure you donít want to have to go through them more than one time.
Posted 03 May 2004 - 11:39 AM
Both the endoscopy and colonoscopy are a breeze. The colonoscopy prep the night before isn't a barrel of laughs, but for people who have suffered through years of diarrhea and worse, it's not so bad. For the actual procedure you will be sedated and also given an amnesiac. I remember nothing at all about either one. I was groggy for part of the day because of the sedation but I didn't even have a sore throat (or a sore anything else).
I'll repeat that you must continue eating gluten for this test to be accurate.
Posted 03 May 2004 - 12:49 PM
As for the CT Scan, it can show additional problems but not Celiac. The endoscopy will show that. The colonoscopy is there to show Inflammatory Bowel Diseases such as Crohn's and Colitis (just found out myself I have that one, too.) There is no pain with any of these procedures, and they're worth having. Good luck!
Posted 03 May 2004 - 03:00 PM
Wish you much good luck! You're story mirrors my husband's in that it took doctors many, many years to get the diagnosis correct. They kept saying IBS just until late 2003. He too was too sick to work or travel or attend social engagements. Undiagosed celiac disease is debilitating and creates its own stress.
Keep you chin up and stay positive. Keep gluten free forever - no cheating. You should have relief soon and will feel better than you had in a long time.
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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