Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Testing Whole Family

mat4mel

Recommended Posts

mat4mel Apprentice
mat4mel
Posted

Hello,

Some of you may remember, that my 2 yr old dd was just confirmed via blood tests that she probably has Celiac. I am now wondering about my other kids. One of my children I suspect might have it, although he does not have any GI symptoms.

The blood tests that suggested Celiac in my dd was Anti-gliadin IgA and IgG. In the meantime, I am putting my whole family on a gluten free diet, but now I am wondering.. should I go ahead and get the whole family tested? What tests should I ask for specifically so that we don't all have to be stuck 2 and 3 times in the case of inconclusive results? ALSO... my dr is out of town for a few weeks! We have only been gluten free for 2 days.. should I put the whole family (except my 2 yr old) back on gluten right now and wait weeks to be tested? Feeling a little irritated that my dr is not around right now. For insurance reasons, we can't switch drs easily.

Mel

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ashlees-mom Rookie
ashlees-mom
Posted

I would probably put everyone but the 2 year old back on gluten until you can get tested. I think it would be easier now then in a couple weeks once you are getting used to being gluten-free, and the tests won't be accurate if you don't have enough gluten in your diet. Especially with the siblings, I would want to know! I don't know much about what tests to ask for though, hopefully someone else can help out there! Is there anyone who is filling in for your Dr. you can use without causing a problem in your insurance? Just a thought! Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,127
    • Most Online (within 30 mins)
      7,748
    sue j
    Newest Member
    sue j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten challenge and Hashimoto's Thyroiditis

      By Scott Adams · Posted

      I’m so sorry you’re going through this—it sounds like your body is sending a clear signal that gluten is a major trigger for your Hashimoto’s. The dramatic spike in your anti-TPO (from 50 to 799!) and the severe symptoms you’re experiencing suggest a strong immune reaction, even if celiac testing wasn’t done earlier. While a formal diagnosis would clarify cross-contamination risks, continuing the challenge may not be worth the damage to your thyroid and quality of life, especially since you already know gluten worsens your antibodies and symptoms. If you need answers, you could discuss genetic testing (HLA-DQ2/DQ8 genes) with your doctor—this can rule out celiac predisposition without a gluten challenge. For now, prioritizing your health by quitting gluten again (strictly, given your sensitivity) and supporting gut healing (like probiotics, L-glutamine, or zinc carnosine) might be the wisest path. Your thyroid will thank you!
    • trents
      tTg at 234 at 6 month bloodwork

      By trents · Posted

      Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's worth tracking. Thirteen years of elevated liver enzymes was what eventually led to my celiac disease diagnosis. But I was 50 years old by that time and it was my ALT and AST that were mildly elevated all that time, not my alk phos. I just found out last week from an ultrasound that my liver is 20% larger than normal and I'm hoping that is a legacy effect. I have more testing lined up. 
    • CeliacMom79
      tTg at 234 at 6 month bloodwork

      By CeliacMom79 · Posted

      Hi. Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against. All his other liver test functions have been normal.  Just the elevated ALP. Thank you.
    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
    • trents
      tTg at 234 at 6 month bloodwork

      By trents · Posted

      Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"?  Were his other liver test functions (ALT, AST) originally elevated?
×
×
  • Create New...