Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Question About Testing Whole Family
0

Started by mat4mel,

2 posts in this topic

Posted

Hello,

Some of you may remember, that my 2 yr old dd was just confirmed via blood tests that she probably has Celiac. I am now wondering about my other kids. One of my children I suspect might have it, although he does not have any GI symptoms.

The blood tests that suggested Celiac in my dd was Anti-gliadin IgA and IgG. In the meantime, I am putting my whole family on a gluten free diet, but now I am wondering.. should I go ahead and get the whole family tested? What tests should I ask for specifically so that we don't all have to be stuck 2 and 3 times in the case of inconclusive results? ALSO... my dr is out of town for a few weeks! We have only been gluten free for 2 days.. should I put the whole family (except my 2 yr old) back on gluten right now and wait weeks to be tested? Feeling a little irritated that my dr is not around right now. For insurance reasons, we can't switch drs easily.

Mel

0

Share this post

Link to post
Share on other sites
Ads by Google:

Posted

I would probably put everyone but the 2 year old back on gluten until you can get tested. I think it would be easier now then in a couple weeks once you are getting used to being gluten-free, and the tests won't be accurate if you don't have enough gluten in your diet. Especially with the siblings, I would want to know! I don't know much about what tests to ask for though, hopefully someone else can help out there! Is there anyone who is filling in for your Dr. you can use without causing a problem in your insurance? Just a thought! Good luck!

0

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0
Go To Topic Listing Celiac Disease - Parents of Kids or Babies With Celiac Disease

  • Forum Statistics

    • Total Topics
      104,685
    • Total Posts
      921,748

  • Topics

  • Posts

    • Centime
      request suggestions

      By Centime · Posted

      Push for the endoscopy.  My GI said at the initial consult that he didn't think I had celiac but wanted to do the scope to "rule it out"  When he saw me immediately after the endo, while I was still in recovery, he saw enough damage to change his position and sure enough the biopsy came back positive.
    • cstark
      Getting sicker after diagnosis

      By cstark · Posted

      Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • Jessie.Cait
      Getting sicker after diagnosis

      By Jessie.Cait · Posted

      I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • jhc
      request suggestions

      By jhc · Posted

      Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.
    • squirmingitch
      blood test result help

      By squirmingitch · Posted

      I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/

  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,687
    • Most Online
      3,093
    Jessie.Cait
    Newest Member
    Jessie.Cait
    Joined